As most of you know, I was born with a complicated congenital heart defect (cc TGA) that resulted in open heart surgery when I was 9. I am extremely fortunate and have lead a mostly "normal" life, including being blessed with my gorgeous boy. This registry is gathering information to help discover what the future holds for me and others like me. Very little is known at this stage. It is also coll
ating data based on existing Fontan patients to assist the ever increasing future generations with congenital heart disease. Some of the research includes fertility and pregnancy outcomes. This information didn't exist when I had Crosby and the process was very much a wait and see. I am one of only 15 women that have had babies with a Fontan circulation Australia and NZ wide. Exercise type and benefits are being researched as well as liver and kidney disease associated with a Fontan circulation and the incidence and success of heart transplant or conversion surgery (an updated version of my original surgery). I have also become involved with Heart Kids SA. They provide support in a multitude of ways for children and families dealing with the stresses of having a child with Congenital Hear disease. As with most research and volunteer organisations they require funding. It is our aim to help raise the much needed funds and awareness
