09/06/2026
Ethan attended his 6 monthly appointment to at Westmead Children's Hospital. The Opthamologist said Ethan's eyes are great and to keep up with the eye drops. Once again Ethan is the talk of the department and always has a few doctors come in to check out the crystals he has. Ethan was asked if he would like to be apart of the doctors final exams, meaning they would be given Ethan's case and they will have to solve it by what is seen when they assess his eyes. Of course he said yes.
Then off to pharmacy to collect his life saving medication and eye drops but once again they were not ready ( they only had 12 days to have them ready for us). They stuff up his meds every month without fail, to the point we have bets on them 🤣.
Then lastly off to see the renal team who shared Ethan's blood results taken first thing this morning. His potassium levels were low and his sodium was a little low. This explains why he has been unwell and off school the last week.
