24/06/2026
📋 Do you have experience with pain, wellbeing, and/or care as someone who lives with a neurodisability or supports someone who does? Are you open to completing a brief survey?
Dr. Katie Birnie and Dr. Melanie Noel at the University of Calgary are leading a project centered around improving the wellbeing of young people with neurodisabilities, and reducing their hurt and discomfort.
Families across Alberta report that pain can be overlooked, especially for children, teens, and young adults with neurodisabilities. The Healing Children’s Pain Together team is inviting young people under the age of 25, families, caregivers, community organizations, and health workers to share their experiences through a brief survey.
What they learn will be used to make recommendations for better treatment, policy, access to care, and future research, to better reflect the real needs of children and youth with neurodisabilities.
Interested in participating? Scan the QR code included in the post, or check out https://survey.ucalgary.ca/jfe/form/SV_7VV1GniebV92B3E!
For more information about the project or survey, please contact the team’s project coordinator, Sean Lindsay, at [email protected].