Dystonia Support & Awareness - Thompson/Okanagan

06/01/2026

the Freedom to Move: Run, Walk and Wheel for Dystonia has begun! To register, please visit https://freedomtomove.org/ . 🩵

Virtual Freedom to Move: Run, Walk and Wheel 2026 kicks off today! 💙💚

From June 1–30, walk, run, or wheel from anywhere in Canada in support of Canadians living with dystonia.

Every step and every dollar raised helps fund vital support programs, advocacy, education, and research for individuals and families affected by .

Join the movement, share your journey, and help raise critical awareness and funds across Canada.

📅 June 1–30
🌎 Participate from anywhere
🔗 Register today: freedomtomove.org

Special Thanks to Our Sponsor – Ontario Brain Institute

05/15/2026

There will be a National Virtual Support meeting tomorrow on May 16, 2026, from 12:00pm to 2:00pm (PST). To join, please visit https://dystoniacanada.org/events/national-virtual-support-meeting-may-16th-2026.

Join us for a national online support meeting this May.Meeting Topic: National Virtual Support Meeting. This meeting will be open to anyone across Canada. Host: Soreyea ApolzerEmail: [email protected] Date: May 16th, 2026Time:12:00 PM – 2:00 PM PST (Check your local Time Zone)Link: DMRFC...

01/02/2026

Happy New Year, everyone! 🎉
We will be continuing to host meetings online (via Teams) on the 7th of each month for anyone needing support or wanting to meet others living with Dystonia.
💬 If you have any Dystonia-related questions or would like to schedule a one-on-one meeting outside of these dates, please feel free to contact us at [email protected] or by Messenger.

12/29/2025

For anyone wanting to review frequently asked questions (FAQs) regarding Dystonia, please visit https://dystoniacanada.org/faqs.

How do I know if I have dystonia?The type of doctor with the training and expertise to diagnose and treat dystonia is a movement disorder specialist—a neurologist with special training in movement disorders. Dystonia is a clinical diagnosis, which means the physician must observe and recognize the...

12/21/2025

🔷 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on December 23, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link. 😊

Send a message to learn more

12/11/2025

For anyone struggling with their emotional and mental health, please visit https://dystoniacanada.org/emotional-mental-health.

Dystonia is More than a Movement Disorder Dystonia is a neurological disorder that affects the physical body, but the impact goes far deeper and may affect a person's emotional and mental health. Individuals diagnosed with dystonia commonly experience symptoms that affect more than how the body move...

12/08/2025

🔷 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on December 10, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link. 😊

Send a message to learn more

11/27/2025

For any parent(s) or caregiver(s) needing support, please visit https://dystoniacanada.org/support-for-caregivers.

The participation and support of family members and friends is critical for the successful care of people living with dystonia. However, supporting someone with a disorder like dystonia can take a toll on the main caregiver too, and family members as well. Despite the challenges, caring for someone....

11/23/2025

🔷 Upcoming Meeting!
We will be hosting an online meeting (via Teams) on November 26, 2025, at 7:00pm PT. To join, please send us a message/email and we will send you the Teams link. 😊

11/12/2025

For anyone interested in trying the BC Brain Wellness Program's online exercise classes (for FREE), please visit https://www.bcbrainwellness.ca/classes.

Our Classes Home Our Classes Explore our Program Classes Click the button below to view information regarding the upcoming Fall 2025 semester Fall 2025 Details OnlineExercise Creative &Expressive Care PartnerWorkshops In-PersonExercise One-on-One Exercise Food &Nutrition In-Person Dance Project Plea...