... very disheartening day with a morning of tears with Dr. Brown and team....I don't know whether to be sad or mad or brush it off and move on... but Michael is officially in limbo care and limbo plan and limbo time frame for the 2nd half of his surgery... Childrens Hospital just up and decided to not renew Dr. Browns contract.... they have no plan in place just that they are not renewing the con
tract... so we come home today with no clue as to how urgently he needs his second surgery we just come home to wait for a letter that might possibly come from the hospital explaing something...explaining what...their justification for not taking quality patient care in to consideration when making their money and politically based decisions?.....Does Childrens Hospital maybe forget they are dealing with Children...that have all formed a big bond with their Dr....do they have no awareness of continuity of care...and that these kids are scared enough at what they are going through...you don't need to change what has been the constant for them......how awful does that feel for the kids that show up like Michael did today...so happy to see Dr. Brown again...to show him how awesome the bone is...to show him how tall he is getting...and then to hear the news that Dr. Brown had to give us...which was alot of I don't knows....I hope this gets shared around, and one day gets seen by whatever yahoo might work for Childrens Hospital and had to do with the non-renewing of this contract...true shame...no communication at all...and at what point did it stop being about quality patient care....
