Canadian MPS Society

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Canadian MPS Society We supports families affected by MPS and related diseases. Increasing awareness about MPS is critical. Help us spread the word. What is MPS?

Many people don't even know what it is, so it is everyone's job to educate! MPS, Mucopolysaccharide - part of RARE Disease Founded in 1984, The Canadian Society for Mucopolysaccharide and Related Diseases Inc. (The Canadian MPS Society) is committed to providing support to individuals and families affected with MPS and related diseases, educating medical professionals and the general public about MPS, and raising funds for research so that one day there will be cures for all MPS and related diseases. The Society is a registered charity governed by its Board of Directors with the support and expertise of its Medical Advisory Board. There are seven types of MPS syndromes, each one caused by a distinct, inherited enzyme deficiency. Upon birth, a child with MPS appears normal and will seem to develop normally for the first year or more, depending on the type of MPS they have. The first signs can vary and are evident at different ages in affected children. Symptoms that usually prompt medical attention include frequent ear infections, runny noses, and colds. The mucopolysaccharide storage disorders are progressive and vary widely in severity. MPS children tend to have coarse facial features and all of them have, to some degree, skeletal involvement. For most children this involves joint changes with limitation of movement. Children often have clouding of the cornea, leading to vision impairment. In all of the MPS disorders, multiple organs are involved. Enlargement of the liver and spleen and involvement of the heart and blood vessels are frequent symptoms. Other effects of MPS may include groin hernias, stunted growth, fluid on the brain, thickened skin, excessive hair growth, chronic runny nose, and chronic ear infections causing hearing loss. Some children will experience progressive neurological decline, depending on the type of MPS they have. Projected life expectancy averages ten to twenty years.

Your experience matters.Living with MPS can create costs that many people never see, from travel and caregiving to lost ...
17/08/2026

Your experience matters.

Living with MPS can create costs that many people never see, from travel and caregiving to lost income and other out-of-pocket expenses.

Help ensure these experiences are represented by completing a Canadian survey about the financial impact of living with MPS.

✅ 10-15 minutes
✅ Anonymous and confidential

Take the survey: https://survey.alchemer-ca.com/s3/50616616/9f68712426a9

Votre expérience compte.

Vivre avec un syndrome de MPS peut entraîner des coûts que beaucoup de gens ignorent, qu’il s’agisse des frais de déplacement, des soins prodigués, de la perte de revenus ou d’autres dépenses à votre charge.

Aidez-nous à faire en sorte que ces expériences soient prises en compte en répondant à une enquête canadienne sur l’impact financier de la vie avec un syndrome de MPS.

✅ 10 à 15 minutes
✅ Anonyme et confidentiel

Répondez à l’enquête : https://survey.alchemer-ca.com/s3/50616616/9f68712426a9

On se met à la mode chic ✨We are hopping on the chic trend✨
15/08/2026

On se met à la mode chic ✨

We are hopping on the chic trend✨

We are hopping on the chic trend✨On se met à la mode chic ✨
15/08/2026

We are hopping on the chic trend✨

On se met à la mode chic ✨

Not every day is easy but just try to remember that you are not alone. We are so proud of the MPS community.Toutes les j...
13/08/2026

Not every day is easy but just try to remember that you are not alone. We are so proud of the MPS community.

Toutes les journées ne sont pas faciles, mais essayez simplement de vous rappeler que vous n'êtes pas seuls. Nous sommes très fiers de la communauté MPS.

https://conta.cc/3TUsPTc
12/08/2026

https://conta.cc/3TUsPTc

Email from The Canadian MPS Society Connect, receive aid, and empower your family this summer with the Canadian MPS Society.     Summer 2026 Pharmacie Chabot & Vermette in Laval QC held their third an

UNE NOUVELLE FORMIDABLE !Consultez la page de Santé Canada ici : https://www.canada.ca/en/health-canada/services/calenda...
11/08/2026

UNE NOUVELLE FORMIDABLE !

Consultez la page de Santé Canada ici : https://www.canada.ca/en/health-canada/services/calendar-health-promotion-days.html
pour découvrir que la Journée de sensibilisation aux MPS, le 15 mai, est officiellement reconnue !

Nous pensons qu’il s’agit d’une avancée majeure dans notre action de sensibilisation, qui contribuera à mieux faire connaître, reconnaître et comprendre les MPS à travers tout le Canada. 💜✨

Poursuivons sur cette lancée en sensibilisant les dirigeants et les décideurs politiques aux MPS.

EXCITING NEWS!

Check out the Health Canada page here: https://www.canada.ca/en/health-canada/services/calendar-health-promotion-days.html
to see MPS Awareness Day, May 15th, officially recognized!

We believe this is a significant advocacy milestone that will help increase awareness, recognition, and understanding of MPS across Canada. 💜✨

Let's keep the momentum going by raising awareness of MPS among government leaders and decision-makers.

EXCITING NEWS!Check out the Health Canada page here: https://www.canada.ca/en/health-canada/services/calendar-health-pro...
11/08/2026

EXCITING NEWS!

Check out the Health Canada page here: https://www.canada.ca/en/health-canada/services/calendar-health-promotion-days.html
to see MPS Awareness Day, May 15th, officially recognized!

We believe this is a significant advocacy milestone that will help increase awareness, recognition, and understanding of MPS across Canada. 💜✨

Let's keep the momentum going by raising awareness of MPS among government leaders and decision-makers.

UNE NOUVELLE FORMIDABLE !

Consultez la page de Santé Canada ici : https://www.canada.ca/en/health-canada/services/calendar-health-promotion-days.html
pour découvrir que la Journée de sensibilisation aux MPS, le 15 mai, est officiellement reconnue !

Nous pensons qu’il s’agit d’une avancée majeure dans notre action de sensibilisation, qui contribuera à mieux faire connaître, reconnaître et comprendre les MPS à travers tout le Canada. 💜✨

Poursuivons sur cette lancée en sensibilisant les dirigeants et les décideurs politiques aux MPS.

Today is National Hand Holding Day! 💙MPS can cause individuals to have curved hands, and we think that just makes them e...
09/08/2026

Today is National Hand Holding Day! 💙

MPS can cause individuals to have curved hands, and we think that just makes them even better hands to hold.

Take a moment today to appreciate the opportunity to hold the hand of someone you love.

Aujourd’hui, c’est la Journée nationale de la main tendue ! 💙

Le syndrome de MPS peut entraîner une déformation des mains, mais nous pensons que cela les rend encore plus agréables à tenir.

Prenez un instant aujourd’hui pour apprécier la chance que vous avez de pouvoir tenir la main d’un être cher.

Did you know there is a Canadian MPS Families Group:=https://www.facebook.com/share/g/1EWLX9Bt9b/This group is for Canad...
08/08/2026

Did you know there is a Canadian MPS Families Group:
=https://www.facebook.com/share/g/1EWLX9Bt9b/

This group is for Canadian MPS families to share, chat, and learn.
This space is to support others and share your experiences.

Saviez-vous qu'il existe un groupe canadien dédié aux familles touchées par le syndrome de MPS :
=https://www.facebook.com/share/g/1EWLX9Bt9b/

Ce groupe est destiné aux familles canadiennes touchées par le MPS afin qu’elles puissent échanger, discuter et s’informer.
Cet espace a pour but de s’entraider et de partager vos expériences.

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