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Prurigo Nodularis League

Despite its prevalence and severity, prurigo nodularis remains a relatively unknown skin disease. Prurigo nodularis ist eine relativ unerforschte Erkrankung.

Our goal is to raise global awareness and provide current news relating to this debilitating illness. Hier finden Sie aktuelle News rund um das Netzwerk Prurigo nodularis Liga.

13/08/2026

💜 Patient Tip of the Week

Living with chronic prurigo can be challenging, and sometimes the best advice comes from people who truly understand what you're going through.

✨ What's one tip that has helped you?

Maybe it's:
✔️ A skincare routine
✔️ A way to cope with itching
✔️ A tip for sleeping better
✔️ Something that makes everyday life a little easier
✔️ Advice you wish you had received sooner

💬 Share your experience in the comments.

Your story might help someone else who is facing the same challenges. Let's learn from and support each other—because no one should face chronic prurigo alone. 💜

Please remember that every person's experience is different. Always speak with your healthcare provider before making changes to your treatment.

06/08/2026

📢 Patientenforum Chronischer Pruritus 2026
Im Rahmen des 10. Münsteraner Pruritussymposiums laden wir Betroffene, Angehörige und Interessierte herzlich zu unserem Patientenforum „Praktische Pruritusmedizin: Tipps und Tricks für die Praxis“ ein.
Einen Tag vor dem wissenschaftlichen Symposium möchten wir aktuelle Erkenntnisse rund um chronischen Pruritus und Prurigo verständlich und praxisnah vermitteln. Freuen Sie sich auf Vorträge renommierter Expertinnen und Experten, sowie auf die Möglichkeit zum persönlichen Austausch.
📍 Hörsaal der Hautklinik, Universitätsklinikum Münster
📅 04. September 2026
🕑 14:00–16:00 Uhr
☕ Einlass ab 13:30 Uhr mit Kaffee & Kuchen
Programm-Highlights:
• Chronischer Pruritus – was ist das Problem?
• Wie eine gute Therapie gelingen kann am Beispiel der Prurigo
• Warum Eincremen so wichtig ist
• Die Rolle von Patientenorganisationen
• Gute Gründe für eine Rehabilitation
• Was Betroffene sonst noch wissen sollten
• Fragerunde mit unseren Expertinnen und Experten

Die Teilnahme ist kostenfrei und verbindlich. Da die Plätze begrenzt sind, empfehlen wir eine frühzeitige Anmeldung.
📧 Anmeldung: [email protected]

Wir freuen uns auf Sie!

Please note: This symposium will be held in German and is intended for German-speaking participants.

04/08/2026

🌍 Global events, one shared goal: improving skin health and raising awareness.

Around the world, patients, healthcare professionals, researchers, and advocacy organizations are coming together to increase awareness of skin diseases and improve care for those affected.

📅 From World Prurigo Day (June 21) to World Skin Health Day (July 😎 and World Psychodermatology Day (November 21), these awareness days remind us that skin diseases can impact every aspect of life—and that no one should face them alone.

We are also excited to see the dermatology community gather at major international events such as the EADV Congress 2026 in Vienna, bringing together experts, researchers, and patient organizations to share knowledge, strengthen collaboration, and advance skin health worldwide.

💜 Every awareness day, every conversation, and every shared experience helps create greater understanding, better research, and improved care.

Together, we can continue to raise awareness for chronic prurigo and support everyone affected by chronic itch.

📌 Save this post and join us throughout the year as we highlight important dates in skin health and prurigo awareness.

28/07/2026

💜 Not getting the help you need? Here are some next steps.
Living with chronic prurigo or chronic itch can be frustrating—especially if you feel your symptoms are not improving or you're struggling to access the care you need.
Here are a few things you can do:
✔️ Keep an itch diary. Write down when the itch occurs, how severe it is, and how it affects your sleep and daily life.
✔️ Take photos of your skin. If your symptoms change over time, photos can help your healthcare provider better understand your condition.
✔️ Be open about how itch affects your life. Tell your doctor if it impacts your sleep, work, mental health, or relationships. These details matter.
✔️ Ask about all available treatment options. If your current treatment isn't helping, ask whether other therapies may be appropriate for you.
✔️ Seek a second opinion if needed. If your symptoms remain uncontrolled, another specialist may offer additional insights.
💜 You deserve to be heard. Living with chronic itch is not "just part of the disease"—effective management starts with open communication and the right support.
Have you found something that helped you navigate your care? Share your experience in the comments—it may help someone else.

17/07/2026

🌍 Breaking language barriers in Prurigo care!
We are pleased to announce that the Prurigo Control Test (PCT) is now available in 20 languages.
The PCT is a short questionnaire that helps people living with chronic prurigo or prurigo nodularis understand how well their disease is currently under control and communicate this with their healthcare provider.
Why is this important? 💜
✔️ Complete the questionnaire in your preferred language.
✔️ Help your healthcare team better understand how your disease affects you.
✔️ Support open conversations and shared treatment decisions with your doctor.
✔️ Contribute to research by using the same questionnaire worldwide, making results easier to compare.
To make sure the PCT has the same meaning in every language, each translation was carefully developed and reviewed according to international standards. Patients also took part in the validation process to ensure the questionnaire is easy to understand and relevant across different cultures.
Making the PCT available in 20 languages is an important step toward more accessible, patient-centered, and globally standardized care for people living with chronic prurigo.
🔗 Read the publication: https://pubmed.ncbi.nlm.nih.gov/42403311/
📖 Reference:
Metz M, Weller K, Ständer S, Nesbeth A, Bahloul D, Wiggins S. Standardizing Prurigo Control Assessment Globally: Linguistic Validation and Cross-cultural Adaptation of Prurigo Control Test in 18 Languages. Acta Derm Venereol. 2026 Jul 6.

03/07/2026

💚 World Prurigo Day 2026 – Visible Together
On June 21, 2026, people from all over the world took part in World Prurigo Day and worked together to raise awareness of prurigo.
🌍 More than 1,000 participants from 10 countries joined us:
🇧🇷 Brazil: 296
🇹🇷 Türkiye: 205
🇩🇪 Germany: 121
🇮🇳 India: 120
🇺🇸 USA: 102
🇷🇴 Romania: 60
🇫🇷 France: 46
🇯🇵🇨🇳 Japan/China: 37
🇬🇧 United Kingdom: 31
🇰🇷 South Korea: 20
Every single participant helps raise awareness, provide more information, and strengthen the international prurigo community.
💚 Thank you for being part of World Prurigo Day 2026. Together, we’re raising awareness about prurigo.

24/06/2026

🧒🔬 Prurigo Nodularis in Children: Insights from a Nationwide Finnish Study

Prurigo nodularis (PN; Chronic Prurigo) is a chronic inflammatory skin disease characterized by intensely itchy nodules, but data in children have been scarce. A new nationwide registry study from Finland analyzed all pediatric PN cases diagnosed between 1995 and 2024.

📊 What did the researchers find?
• Only 48 children met diagnostic criteria over the 30-year study period.
• The incidence was approximately 2 cases per million children per year, confirming that PN is rare in childhood.
• The average age at diagnosis was 10 years.
• More than 75% of children had a previous dermatologic diagnosis before PN developed.

🌿 Atopic dermatitis was the most important associated condition
• 52% of children had a history of atopic dermatitis (AD).
• Other associated conditions included unspecified dermatitis, asthma, rhinitis, and recurrent infections.
• These findings support the close relationship between chronic itch, atopy, and the development of PN.

💊 Systemic treatment was required in 25% of patients
• Dupilumab was the most frequently prescribed systemic therapy.
• Methotrexate and ciclosporin were used less often.
• Most children receiving dupilumab also had underlying atopic dermatitis.

💡 Clinical relevance
Although PN is uncommon in children, it should be considered in patients with chronic pruritus, excoriated nodules, and an atopic background. The strong association with atopic dermatitis highlights the importance of early itch control and appropriate management of underlying inflammatory skin disease.

Further information can be found here: https://pubmed.ncbi.nlm.nih.gov/42191639/

📖 Huilaja L, Jokelainen J, Sinikumpu SP. British Journal of Dermatology (2026)

23/06/2026

💚 World Prurigo Day 2026 – Working together for greater visibility
The second World Prurigo Day took place on 21 June. People from Europe, North and South America, and Asia came together to raise awareness of prurigo, present the latest developments and promote international exchange.
Under the slogan ‘Recognise prurigo, act early’, one message took centre stage: an early diagnosis and timely access to effective treatment can make a crucial difference for those affected.
International experts, researchers and patients shed light on the condition from different perspectives. It became clear just how significantly prurigo can affect daily life, sleep and mental wellbeing – and how important education, research and better care are.
The exchange between those affected and experts from around the world was particularly valuable. Together, they sent a strong message calling for greater awareness, understanding and support.
🎥 Were you unable to join us live? The recording of World Prurigo Day will be available on YouTube shortly. We’ll keep you updated!
Many thanks to all the speakers, organisers and participants who made this special day possible. Together, we’re raising awareness of prurigo. Let’s keep the spotlight on prurigo long after this day is over. 💚

21/06/2026

🩸 𝗪𝗼𝗿𝗹𝗱 𝗣𝗿𝘂𝗿𝗶𝗴𝗼 𝗗𝗮𝘆 𝟮𝟬𝟮𝟲 🩸

Today, June 21, 2026, we are raising awareness of a disease that often remains invisible but has a profound impact on the lives of many people: Chronic Prurigo.

Chronic Prurigo is much more than “just itching.” It is a complex condition characterized by a persistent itch-scratch cycle that is extremely difficult to break. Those affected experience not only skin lesions but often also sleep deprivation, fatigue, concentration difficulties, and significant psychological distress. 🩸

World Prurigo Day was established to highlight exactly these issues:
👉 This disease is still diagnosed too late in many cases
👉 Many patients do not feel taken seriously
👉 There is still far too little awareness and understanding 🩸

Key messages of the day:
🩸 Chronic Prurigo is a serious dermatological disease
🩸 Patients cannot simply “will away” or ignore the itch
🩸 It has nothing to do with poor hygiene
🩸 Early diagnosis and modern therapies can significantly improve quality of life

In addition, it is important to remember:
🔬 Research continues to advance, including the development of targeted therapies that address itch mechanisms within the nervous system
🧠 Psychological burden is a major aspect of the disease and should be addressed as part of comprehensive care
💊 Several modern treatment options are now available, offering new hope for patients

World Prurigo Day is therefore not only an awareness day—it is also a symbol of greater visibility, medical understanding, and solidarity with everyone affected by this condition. 🩸

For more information, please visit:

🌐 www.worldprurigoday.org

18/06/2026

🩵𝗪𝗵𝘆 𝗱𝗼 𝘄𝗲 𝗻𝗲𝗲𝗱 𝗮 𝗪𝗼𝗿𝗹𝗱 𝗣𝗿𝘂𝗿𝗶𝗴𝗼 𝗗𝗮𝘆? 🩵

Chronic prurigo / prurigo nodularis is much more than just an itchy skin condition. The disease can significantly impair sleep, concentration, mental well-being, and quality of life. Yet many people are unaware of the condition—and many affected individuals face a long journey to receiving the correct diagnosis.

That is exactly why World Prurigo Day exists. 🌍

On June 21, 2026, dermatologists, researchers, patients, and patient organizations around the world will come together to raise awareness of chronic prurigo, advance research, and improve care for those affected. The day of action will feature events and webinars in numerous countries and give a voice to those affected.

The message is clear: Recognize prurigo—act early. Those affected deserve understanding, education, and access to appropriate treatment.

📅 Save the Date: June 21, 2026

For more information and free registration for the international webinars:

https://worldprurigoday.org/de/

Adresse

Münster

Webseite

http://www.skinhealthcampus.org/

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