29/07/2026
To everyone pouring their heart and soul into running a patient group, charity, or advocacy movement: I see you, and I stand with you. 💚
This isn't just a job, it's a calling driven by genuine passion, love, and a deep determination to make things better for our families. We do this work because we care immensely and wouldn't choose to be anywhere else.
But loving what you do doesn't mean it doesn't carry a heavy cost.
In my last article for my Brainz Magazine series, I dive into the hidden emotional impact of leading in the rare disease space. It’s an honest look at how we can stay deeply dedicated to our mission without burning out from the unspoken weight of vicarious grief and constant advocacy.
Advocating for others shouldn't mean sacrificing your own wellbeing. If you are carrying that hidden load today, Mind Over Matter Therapy is here to offer a safe, validating space dedicated entirely to you.
Read the full article here: https://www.google.com/url?q=https://www.brainzmagazine.com/post/the-hidden-emotional-impact-of-running-a-rare-disease-patient-organisation&source=gmail&ust=1785439551543000&usg=AOvVaw3bsU8i9NMU3hUMaS1BsShY