PD Mama

06/06/2026

My lovely little medal for playing with the in the walking football tournament in Portishead.
It chucked down but that didn't stop us from participating and having a good time.
Thanks to these ladies for being a bloody brilliant bunch. 💜💙

22/05/2026

is a priority not a luxury
Finally starting to understand how important physio is for my
I wish it hadn't taken 13 years and an injury to allow myself to get help. The amount of pain I now live with daily isn't normal. But it's never too late to do something about it.

20/05/2026

Just wow.
I've voted for the Parkinson's UK garden. Cast your vote here - https://www.bbc.co.uk/programmes/articles/37ycygGmQRx8fFDmKyZ8ykT/the-bbc-rhs-peoples-choice-award-at-chelsea-flower-show-2026

07/05/2026

02/05/2026

I read another post that described as unlike any other and it truly is. Even baking a loaf of bread exhausts me now. I'm getting little joy out of something i would have relished not so long ago. I have to constantly re-read recipes, etc., as i don't retain info like i used to. I think my current medication regimen isn't helping but I have to wait until July to discuss this with a specific consultant. Feels a long time away. Still awaiting next steps for my so no news yet there either.
I'm also getting the sun on me slightly and occasionally, which always makes me look much better than I feel. I can sleep for hours at the moment and still feel knackered. Are you affected by fatigue?

30/04/2026

Yesterday I had my first ever fall (in public) due to . One minute I was walking, the next I felt myself hit the pavement. I managed to break my fall somehow with my hand and wasn’t badly injured (thankfully I didn't hit my head), but I was very shaken. I couldn't get up at first and sat sobbing in a heap on the pavement whilst several people walked past without so much as asking if I ok. Eventually someone checked on me and fortunately my husband was on his way to meet me.

Taking it easy today - feel pretty bruised and sore. Made a very easy recipe: wholewheat sourdough discard crackers with parmesan and herbs. They taste good even if I don't feel good. Carry on we must.

28/04/2026

Who's going? 😃

27/04/2026

I taught myself how to bake in the last 10 days or so. (Inspired by 🙌) This is my first ever little loaf using my active starter, which I have made myself and named Eranu. I have put him and his twin, Uvavu, in the fridge and will give them maintenance feeds. I also have my second ever loaf cold-proofing in the fridge. I am shattered now. Turns out baking sourdough is exhausting. Add and doing a bit too much without a rest this weekend and well... yeah.
But this bread tasted great and looked better than I expected as i made lots of mistakes. Need a rest now. Hope everyone is doing OK.