Fibromyalgia Friends Together

Fibromyalgia Friends Together We are a UK group for Fibromyalgia sufferers and their carers.

Big news for the fibromyalgia community: the largest-ever genetic study of fibromyalgia, over 2.5 million people across ...
25/08/2026

Big news for the fibromyalgia community: the largest-ever genetic study of fibromyalgia, over 2.5 million people across the US, UK, Finland, Estonia, Denmark and Iceland, has found the strongest evidence yet that fibromyalgia is a nervous system condition, not an autoimmune one. Researchers identified 26 genetic variants linked to the condition, including one gene that could become a new drug target. It won't change anything overnight, but it's a real step towards fibromyalgia being taken more seriously and towards better treatments down the line. 💙

07/08/2026

A few spaces just opened up for our Quiz Night, don't miss out!

Hi everyone,

A few places have come free for our Fibromyalgia Friends Together Quiz Night next week, so we wanted to get the word out quickly! 🗣️

It's a fun, relaxed evening for a great cause, and a lovely chance to catch up with familiar faces and meet others who understand what living with fibromyalgia is really like, whether that's you or someone you support.

When: Wednesday 12th August 2026, starting at 6pm. The pub opens at 4pm, so feel to come from then onwards and join us for an early drink and chat. 🥂

Where: The Hallcroft Tap. 20-22 Hall Croft. Shepshed. LE12 9AN.

Cost: £3 per person

There will be prizes up for grabs, plus chips at the halfway point to keep everyone going!

All money raised goes straight back into supporting our work for people living with fibromyalgia, so every ticket makes a real difference. 🙂

For further information get in touch with us at [email protected] / 07364 117190

We would love to see you there.

Best wishes,

Fibromyalgia Friends Together

You Belong Here  https://fibro.org.uk/pride2026/Celebrating Pride at Fibromyalgia Friends TogetherJune is Pride Month, a...
01/06/2026

You Belong Here https://fibro.org.uk/pride2026/

Celebrating Pride at Fibromyalgia Friends Together

June is Pride Month, a time to celebrate the LGBTQ+ community, honour those who fought for the rights many enjoy today, and recommit to building a world where everyone can be themselves without fear. At Fibromyalgia Friends Together, we know something about what it means to be seen, believed, and accepted. So this month, we wanted to take a moment to celebrate Pride from where we stand as a community built on understanding.

Two experiences that often overlap
Living with fibromyalgia and being part of the LGBTQ+ community can carry a surprisingly similar weight. Both can mean carrying something other people can’t always see. Both can mean explaining yourself, being doubted, or bracing for how others might react before you’ve said a word.

For people who live with both, those experiences don’t sit side by side they overlap. Navigating healthcare can feel harder when you worry about being judged. Finding spaces where you’re fully accepted, exactly as you are, can take more searching. And the exhaustion of constantly advocating for yourself is something many in our community know all too well.

That’s exactly why community matters so much.

What Pride and our community share
At its heart, Pride is about a simple, powerful idea: you don’t have to hide who you are to be worthy of respect, care, and belonging. That’s a message that resonates deeply here.
Whether it’s an invisible illness or an invisible part of your identity, the longing to be believed and welcomed is universal. The relief of finding people who get it who don’t need you to perform, explain, or justify yourself is one of the most healing things there is.

That sense of belonging is what we try to offer every single member, all year round.

“As Chair of Fibromyalgia Friends Together, and as someone who is both part of the LGBTQIA+ community and living with fibromyalgia, this month means a great deal to me. I know what it is to carry things others can’t see, and to long for a place where you don’t have to explain or apologise for who you are. That’s the community I want us to be, one where every part of you is welcome. To anyone reading this who has ever felt unseen: you belong here, and we are proud to have you with us.”

Mark, Chair, Fibromyalgia Friends Together

A space for all of you

You are welcome here as your whole self. Your fibromyalgia is part of your story, and so is everything else that makes you you, your identity, who you love, and how you move through the world.
This Pride Month, and every month, our promise is the same: this is a place where you don’t have to leave any part of yourself at the door.

Looking after yourself this Pride season

Pride can be joyful, but celebrations, busy events, and big emotions can also take a toll — especially when fatigue and pain are part of daily life. A few gentle reminders:

Rest is not giving up. Pacing yourself so you can enjoy what matters most is a form of strength, not weakness.

You set the terms. You can celebrate quietly, loudly, in person, online, or not at all. There’s no single right way to mark Pride.

Reach out if you need to. Whether you’re celebrating, struggling, or somewhere in between, you don’t have to do it alone.

Happy Pride 🌈
To every member of our community who is part of the LGBTQ+ family, and to everyone who stands alongside them: we see you, we believe you, and we are so glad you’re here.
Happy Pride Month from all of us at Fibromyalgia Friends Together.

We need your help!  Fibromyalgia Friends Together has been entered into the Movement for Good Health & Wellbeing Draw, a...
11/05/2026

We need your help!

Fibromyalgia Friends Together has been entered into the Movement for Good Health & Wellbeing Draw, and your nomination could help us win £5,000 to support people living with fibromyalgia.

This funding would make a huge difference — helping us reach more people, run more support sessions, and continue building a safe, understanding community for anyone affected by fibromyalgia.

💜 It only takes 30 seconds to nominate us:
👉 https://movementforgood.com/health
Search for Fibromyalgia Friends Together (Charity No. 1210681) and submit your nomination.

Every nomination counts. Every share helps.
Thank you for supporting our community — we truly appreciate you. 💜🦋
www.fibro.org.uk

We have launched a Youtube Channel And a quick note to tell you about our next in person meeting on Monday..We are thril...
17/04/2026

We have launched a Youtube Channel
And a quick note to tell you about our next in person meeting on Monday..

We are thrilled to announce the launch of the Fibromyalgia Friends Together YouTube channel! 🎉
In our very first video, our Chair, Mark Farmer, provides a comprehensive overview answering the crucial question: What is Fibromyalgia? Whether you are living with the condition, seeking a diagnosis, or supporting a loved one, this video breaks down everything you need to know about this often misunderstood and invisible illness.

Key topics briefly covered in our first video:

How fibromyalgia affects the nervous system and processes pain.
The prevalence of the condition and common misdiagnoses.
A closer look at widespread pain and extreme tiredness.
An insight into understanding 'Fibro Fog' and cognitive difficulties.
Why having an open conversation with your GP is essential.
📺 Watch the full video here: https://www.youtube.com/watch?v=J4_m7LbS0SI

Over the coming months will be adding more content so do not forget to subscribe to our new channel to help support our community! 💜

Our next in person meeting is this coming Monday
The next meeting of Fibromyalgia Friends Together is taking place on Monday 20th April 2026 from 12pm to 3pm.

We will be hearing from our Communications Officer, Nadia, who is going to be undertaking research with Loughborough University around Fibromyalgia. She will be telling us all about the research and how we can get involved.

There will be basic refreshments available for purchase before the meeting starts. Please note - you can access our room, from 12pm until 3pm. We will hold our main meeting at the usual time of 1.15pm.

Here is the venue address:

Bright Hope in North West Leicestershire
Bright Hope House
Talbot Lane
Swannington
Leicestershire
LE67 8QT

Google maps link: https://www.google.com/maps?ll=52.751526,-1.379759&z=14&t=m&hl=en&gl=US&mapclient=embed&cid=11392077805485891156

what3words: ///trying.items.fuses

Please call: 07825 610925 if there are any problems finding us.

Look out for people wearing lanyards - if you need any support joining us for the first time or with anything else on the day they can help!

3 likes, 1 comment. "What is fibromyalgia? Fibromyalgia symptoms explained"

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