Molsgarner l Dialysis Diabetes and Me

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Molsgarner l Dialysis Diabetes and Me 💚 Kidney failure • Dialysis • Real life
🫂 No one faces this journey alone

Okay so… as you all know, I have been having a bit of a nightmare with my ankle. 😭The badly sprained ankle + that weird ...
27/08/2026

Okay so… as you all know, I have been having a bit of a nightmare with my ankle. 😭

The badly sprained ankle + that weird plantar fasciitis thing have teamed up to make walking an absolute nightmare.

Well… I ended up back at the GP today because MY GOD I CAN’T WALK AGAIN. 🙃

They've given me some codeine to hopefully help with the pain, but unfortunately I think this might mean I won't be able to complete my Diabetes UK Million Step Challenge. 💔

And I am genuinely gutted because I've worked SO hard on this.

So I have one very important question…

IS IT ACCEPTABLE TO GET CRAIG TO DO THE STEPS FOR ME?! 😂😂😂

Because… we are married.

SOO...his steps are basically my steps, right?!

Right?!

…No?

Okay fine. 😂

I might have to accept defeat on the million steps and concentrate on getting this stupid foot better instead.

But I refuse to give up on the fundraising side of things! ❤️

So if you've sponsored me, shared my posts, encouraged me or followed along with my ridiculous stepping journey — THANK YOU.

And if anyone wants to sponsor Craig to do my remaining steps, I will happily take that under advisement. 😂🚶‍♂️

Craig: congratulations, you've just been promoted to professional stepper.

I am SO frustrated and stressed right now.Craig and I claim Universal Credit because I’m unable to work, and like so man...
26/08/2026

I am SO frustrated and stressed right now.

Craig and I claim Universal Credit because I’m unable to work, and like so many families, we still have bills to pay, food to buy and a home to run.

And honestly? I am incredibly grateful that there is a system there to provide financial support when you need it.

BUT…

There is a massive problem with how that system works when someone is paid every 4 weeks.

Craig has been paid twice during one Universal Credit assessment period.

And yes — technically, that is true.

But it does NOT mean we have suddenly had an extra payday.

He is still being paid every 4 weeks.

The money has simply landed twice within the dates Universal Credit uses to calculate our entitlement.

That means our Universal Credit has been affected as though we have had extra income — when in reality, we haven't.

And now we are left trying to work out how we are going to cover our bills and put food on the table.

This isn't about wanting more money.

It isn't about wanting something for nothing.

It's about the reality of having a system that looks at numbers on a spreadsheet without necessarily reflecting the reality of how a household actually budgets.

And I know we cannot possibly be the only family this happens to.

I've been told I can have an appointment with a final adviser.

And I'm sure that person will do everything they can within the system.

But realistically, an appointment doesn't put food in the cupboards today.

It doesn't pay the electricity bill.

It doesn't stop the direct debits coming out.

It doesn't change the fact that the money we were expecting to live on simply isn't there.

So instead of just sitting here panicking, I've been looking at what help is actually available — and I wanted to share it because someone reading this might need it too.

❤️ CITIZENS ADVICE

They can help you look at what support you're entitled to and may be able to help with food support, fuel vouchers and other local assistance.

❤️ COUNCIL TAX

If you're struggling with your monthly payments, you can ask your council to spread the annual bill over 12 months instead of 10, reducing the amount you pay each month.

❤️ THE PANTRY – HUNTINGDON

There is a scheme in Huntingdon town centre where you can fill a basket for around £5, which could make a huge difference when money is tight.

❤️ ENERGY SUPPLIERS

If you're struggling, speak to your gas and electricity supplier BEFORE you miss a payment. They may be able to look at your circumstances and agree reduced payments, more time to pay or other support. There are also grants and fuel vouchers that you may be able to access.

And this is why I'm sharing this.

Because struggling financially shouldn't be something we are ashamed of.

There are families working. Families with disabled members. Families on benefits. Families with children. Families dealing with illness. Families who have always managed their money carefully but have suddenly been hit by something completely outside their control.

And sometimes you don't need someone to tell you to budget better.

Sometimes you need someone to say:

"I know this is s**t. Here is where you might be able to get some help."

So if you know of any other local schemes, food support, community groups, grants, charities or genuinely useful ways of getting through a financially difficult month — please put them in the comments.

Let's make this post useful.

Let's share information rather than judgement.

Because if the system isn't designed around the reality of people's lives, then the least we can do is make sure our community is. ❤️

Gosh, I have been SO bad at posting recently! 🙈 Thank you for still being here, checking in on me and sticking around ev...
25/08/2026

Gosh, I have been SO bad at posting recently! 🙈 Thank you for still being here, checking in on me and sticking around even when I disappear for a bit. ❤️

I’m really hoping that over the next month we can finally find some pain relief for my ankle and foot because it is STILL incredibly sore and swollen. It’s really starting to get me down, especially when I just want to be up and about again.

My eye is healing, which is a positive, although I’m still getting some pretty sharp pains towards the end of the day. There’s still quite a bit of blood there and, unfortunately, still no vision. I’m trying to remind myself that healing takes time, even though the impatient part of me would quite like to fast-forward it! 👁️

And then there’s the transplant… I’m STILL not activated on the transplant list because of my heart function. That one is particularly hard to get my head around because it feels like everything is on pause while we wait for answers.

And, because apparently I didn’t have enough going on, I’ve also got an infection in my port that needs dealing with. 🙃

So yeah… it’s been a bit of a rubbish few weeks.

And my best friend has now gone home after being my personal maid, nurse, cleaner, chef and general life assistant for the last week… so naturally I’ve reverted to being a bit of a negative nelly now she’s gone! 😂💗

But I’m still here. Still fighting. Still hoping that the next few weeks bring some better news, a little less pain and maybe even a tiny bit of progress.

Thank you for continuing to be here with me through all the messy bits. ❤️

19/08/2026

Treating Kidney Disease

I recently had the opportunity to meet with Kidney Research UK at Hinchingbrooke Hospital’s dialysis unit.

An estimated 7.2 million people are living with kidney disease in the UK, equivalent to 1 in 10 of the population or 11,000 people in the Huntingdon constituency.

Those who require Dialysis will travel to a dialysis centre, usually at a hospital, multiple times a week, which significantly impacts their quality of life. However, many cases of kidney failure can be prevented with early diagnosis and appropriate treatment.

Incredibly the NHS hasn’t included dialysis treatment in the scope of the new hospital programme, with no space for a new dialysis unit included within the plans for the rebuilt Hinchingbrooke Hospital.

Patients who use this dialysis centre are reliant upon it and whilst the NHS may notionally expect this service to move into community care I have asked the Government what budget provision has been made and what plans are in place for 2028 when this will be required.

Thank you to Lucy and Alison from Kidney Research UK, and to the team at Hinchingbrooke’s dialysis unit, Lead Nurse Susan Bell and Service Lead Consultant Anil Chalisey for taking the time to highlight the treatment challenges they are facing.

Small update on my eye 👁️💕I've started seeing the odd little shot of light from my eye, so I'm keeping a close eye on th...
17/08/2026

Small update on my eye 👁️💕

I've started seeing the odd little shot of light from my eye, so I'm keeping a close eye on that (no pun intended 😂) and will obviously get it checked if it gets worse or anything else changes.

I'm still feeling pretty bruised and sore, which I think is to be expected after everything my eye has been through.

But honestly… the tiredness is on another level. 😴 I'm still extremely, extremely, extremely tired! My body has been through a lot with the surgery and GA, and with my kidneys not being able to clear medications in the same way, recovery is definitely taking its time.

Thankfully, I have one of my best friends staying with me for 2 whole weeks, so I've basically got a built-in maid, nurse, cleaner, chef, babysitter and general life organiser… all conveniently packaged into one small 5ft 5" package 😂❤️

Honestly, I couldn't ask for better support while I'm recovering. It makes such a difference knowing I don't have to do everything myself and can actually just focus on resting and getting better.

I'm hoping that now I've finished the tablets and my body has a little more time to recover, I'll slowly start feeling more like myself again. 🤞🏻

For now, it's lots of rest, lots of patience and letting my body do what it needs to do. 💕

I've been absolutely wiped out since my operation 😴The last few days have honestly been rough. I've been hallucinating, ...
16/08/2026

I've been absolutely wiped out since my operation 😴

The last few days have honestly been rough. I've been hallucinating, sleeping an insane amount and barely functioning. I think my body is just completely exhausted after everything it's been through, but I'm really hoping that now I've finally finished the tablets, I'll start feeling a little more like myself again.

The one positive is that all this enforced bed rest seems to be doing wonders for my ankle 😂 So I suppose my body has decided that whilst one thing is recovering, everything else can take a little break too!

Fingers crossed the next few days bring a bit more energy, a clearer head and, most importantly, feeling like me again. 🤞💗

13/08/2026
13/08/2026

Operation went well... I'll post a video update later today.💚💚💚

On Wednesday, I had the privilege of meeting our MP, Ben Obese-Jecty MP  alongside Lucy, Alison and Adam from Kidney Res...
10/08/2026

On Wednesday, I had the privilege of meeting our MP, Ben Obese-Jecty MP alongside Lucy, Alison and Adam from Kidney Research UK. We were also joined by Dr Chalisey from CUH and Renal Social Worker, Aimee Robinson from CUH.

We had some incredibly important conversations about kidney failure: including the trajectory of kidney disease and the estimated cost to the NHS over the next 5 and 10 years.

But most importantly, we spoke about how we can actually improve the lives of people living with kidney failure.

I shared my own story with Mr Obese-Jecty. I spoke about how desperately we need better education and understanding of kidney disease amongst healthcare professionals, and how mental health support needs to be far more equal for renal patients.

I explained that PCH had no mental health support they could offer me, while CUH has just one renal social worker serving renal patients.

How is that enough?

We also discussed the medications currently available that can slow the progression of kidney disease by years.Potentially up to 25 years in some circumstances. Yet only around 2% of eligible patients are currently receiving them.

Why?

We also talked about our local hospital, Hinchingbrooke, which is expanding. Yet, as far as we could see, there were no plans within the blueprints for a dialysis unit.

For those of us living with kidney failure, this isn't just a statistic or a line on a spreadsheet.

Kidney failure is serious.

Dialysis is gruelling.

The condition itself is gruelling.

And yet, kidney disease still feels like one of the forgotten areas of healthcare.

We need to start asking some uncomfortable questions.

Why isn't kidney care properly embedded into NHS pathways?

Why isn't prevention of kidney failure a national priority?

Why are people reaching kidney failure when treatments already exist that could potentially delay progression for years?

Why are dialysis services struggling to meet demand while new hospital developments are being planned without adequate renal provision?

And perhaps most importantly — how many more people need to become seriously ill before kidney disease is treated with the urgency it deserves?

Because this isn't simply about saving money for the NHS, although preventing kidney failure would undoubtedly save millions.

This is about saving lives and protecting quality of life.

Every person who can be prevented from reaching kidney failure is someone who may not have to endure years of dialysis.

Every year that kidney failure can be delayed is another year someone can spend with their children, their partners, their families and their lives.

We cannot keep treating kidney failure as something that happens at the end of the road and then expecting dialysis to pick up the pieces.

Prevention needs investment. Early intervention needs investment. Mental health support needs investment. Renal services need investment.

And people living with kidney failure need a voice at the table when decisions about their care are being made.

I am grateful that these conversations are happening. But conversations alone won't change the trajectory of kidney disease.

We need political will. We need proper funding. We need accountability. And we need action.

Kidney disease should not have to become a crisis before it gets attention.

The NHS cannot afford to ignore kidney failure — and neither can our government.

Because kidney failure isn't someone else's problem.

It could be any one of us.

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