Cnot-3 Research Fundraising

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Cnot-3 Research Fundraising

A community dedicated to raising awareness, supporting families,
and funding research into CNOT3-related disorder.

Together, we can create hope for every family affected. 🤍

26/07/2026

Hi everyone 👋🏻

Here’s a recent interview we did for the regional news, spreading the awareness of CNOT-3 disorder

Family launch fundraiser for son's rare genetic condition thought to affect only 50 people worldwide https://www.itv.com/watch/news/family-launch-fundraiser-for-sons-rare-genetic-condition-thought-to-affect-only-50-people-worldwide/5gkd6m6

25/07/2026

Hi everyone 🌞

Just an update regarding our fundraising!

On Sunday, we have a reporter from ITV calendar (regional news) to do a story on the fundraiser and CNOT-3 related disorder 🙌🏻

22/07/2026

Hello everyone! Welcome to the group 🤍

Here is some info on what we’re hoping to achieve but we need all the CNOT-3 community to get involved and spread the word and fundraise fundraise fundraise!

Thank you 🤍

Address

Sheffield

Website

https://www.justgiving.com/page/cnot3-research-programme?utm_medium=FR&utm_source=CL, https://www.justgiving.com/page/cn

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