Suzanne Dixon - My Cancer Journey

04/06/2026

Positive update 4th June 2026

Had call with my oncologist and my cancer is stable with no notable change.

The plan is to keep going with current medications as they are working.

I will have an antibiotic added as prolonged use of Dexamethazone can cause chest infections, which I seem to have been getting frequently. So the infections should lessen now hopefully.

I’m so happy!

💜PMA💜

11/04/2026

POSITIVE UPDATE 11/04/2026

My Ribociclib has been reduced from 600mg to 400mg since last Saturday (4th April). I had been off it for a while and don’t know my tumour markers on the blood test just before yet, I will find that out. I’m intrigued to find out if there’s any difference when I get my next blood test.

Anyhoo, the positive is that I am feeling top of the world at the moment! I haven’t felt so well in months!

Yesterday we went bowling and I actually played. I initially had the pusher that little kids use and my lush niece May was loading it for me, so I just had to push the ball off but I hated it. I gave bowling normally a go with a lighter ball than I would usually use, took my time an was careful not to twist myself etc. we played 4 games! I even won a game.

This might seem like nothing but it’s massive to me. I feel like a different person. I hope I can stay on this dose but that it proves to keep the cancer at bay for as long as possible.

A few couple things that have worked for me:

Timings of medication;

7am I take My normal twice daily tablets
Lansoprazole - protects stomach from steroids.
Morphine - pain relief.
Apixaban - blood thinners due to previous blood clots.
DulcoEase - to counteract anti sickness meds (constipation).
Eve cal D3 chewable - help bones.

8am
Ondansetron - Anti sickness due to Ribociclib.
Dexamethazone - Steroid for pain relief and to increase appetite.

10am
Ribociclib - Chemo meds.

1pm
DulcoEase - to counteract anti sickness meds (constipation).

7pm I take My normal twice daily tablets
Lansoprazole - protects stomach from steroids.
Morphine - pain relief.
Apixaban - blood thinners due to previous blood clots
DulcoEase - to counteract anti sickness meds (constipation).
Eve cal D3 chewable - help bones.

Oral care (massive improvement due to new routine):

I now brush my teeth with disposable toothbrushes, scrape my tongue and mouth wash as soon ad I get up, after all meals and right before I go to bed. Since doing this I have had zero oral thrush (which I had been plagued with when taking any chemo meds previously. I can also taste food a lot better and I am enjoying food a lot more. I am also now enjoying wine ( which I had previously gone right off).

I’m very happy right now and those around me have noticed it massively too. Long may it continue!

I’ve had a head scan and awaiting results of that. I’ve had some head aches but hopefully that’s just all the meds or dehydration or something along those lines. I shall await the results. Next blood test is due around 29th so with any luck I will see a reduction in tumour markers at that point. If so, the dose I’m on is working and I will be over the moon!

If anyone suffers with oral thrush due to meds, I highly recommend a routine like above. It’s worked for me.

Hope my update is useful.

💜 PMA 💜

24/03/2026

Update 24th March 2026

I had a spell of being very unwell. I got quite a bit better and then was able to restart my cancer medication (Ribociclib). Unfortunately it made me ill, I couldn’t keep anything down and was visibly bright red, itching all over and extremely lethargic. I couldn’t really be bothered to speak to anyone at all.

I’ve seen my oncologist and have been told that the Ribociclib is working well to stabilise the cancer and keep it at bay, which is great but I have no life on the current dose. So my options are I either stay on Ribociclib on a lower dose to see if symptoms are manageable or I come off Ribociclib all together.

If I come off Ribociclib, I will only be offered chemo if I have proven via scans to have deteriorated. They won’t give me another treatment if I’m stable.

Scans are every 3 months or so, a lot can change in that amount of time. I could deteriorate very quickly and it be too late by the time I’m scanned. Feel like I’m stuck between a rock and a hard place.

What’s the point in being here with zero quality of life.

Obviously I am going to have to try the lower dose and see how I am. I don’t expect to be fit and healthy when on drugs like this but I hope it to be tolerable. I hope to be awake and be able to hold a conversation.

It’s so strange that on the NHS once it’s secondary cancer their goal is for you to be stable. They don’t try to improve anything, they just try to stop it getting any worse or slowing it down. Don’t get me wrong, I love the NHS and all of the support I have had. We are very lucky as a country to have this. I just don’t agree with this particular thing for obvious reasons.

I have been researching treatment options in Germany. The problem is, it’s very expensive!

I await confirmation of whether any treatments would be available to me, as I don’t know that yet. If there are, I’m going to have to do some serious fund raising and would massively appreciate any advice and/or support anyone can give me with that.

Watch this space, with any luck I will be posting soon with a new just giving fundraising page with details of treatment options including costs. 🤞

I have to be here for as long as possible for my boy!

Wish me luck with the lower dose of Ribociclib! Fingers crossed it’s just as effective but with lessened side effects. 🤞

💜 PMA 💜

05/02/2026

Update from oncologist 5th Feb 2026

No spread, if anything there’s slight improvement!

I’m so relieved! My positivity had started to wane slightly with me feeling so poorly for weeks. I’ve just been run down with colds that have become infections. It’s had nothing to do with the cancer (which was my concern).

The cancer is still contained within bone and is staying put for now.

My oncologist is very happy with my CT & MRI scans and is confident that the treatment I’m on is working. I don’t need to be seen again for another 12 weeks.

I’m so happy and got my positive head firmly planted back on!

Now to focus on getting rid of whatever is making me feel so unwell and kicking it’s arse so that I can crack on with life and get moving more.

💜 PMA 💜

02/02/2026

Update 2nd Feb 2026

Had a day in A & E with suspected spinal compressions. Back home now after it was ruled out with an MRI.

May have more spinal metastasis but theres nothing in spinal cord so thats good news really.

I await results of staging CT but will hopefully hear from my oncologist soon as she was emailed about what happened today. If not my next appointment is on 16th so will have a thorough update then.

I have been quite poorly for a while now and two different types of antibiotics due to chest and sinus infection.

My mobility is getting worse so now need a sit on walker for anywhere my stick won’t take me (which isn’t far).

Whilst I remain positive on the whole as always, I’ve had a few dips for different reasons. Mostly being fed up with feeling unwell.

Don’t know if you can click on the music video below but it’s called More Than Words by Extreme so have a google if you can’t. It’s one of my favourite songs of all time (certainly lyric wise) the words are poignant and in my opinion will be relatable to everyone.

Source: YouTube https://share.google/h1YbxI0mVpQQvxuci

Anyhoo, a further update will come soon.

💜 PMA 💜

22/12/2025

Update 22nd Dec 2025

Well what a year! It’s been just over a year since I got the news that my cancer had returned and is now incurable.

I’m still here and have made fond memories with my family and friends over the past year. I hope to make many more and hopefully over several more years yet! 💜PMA💜

Now that I have a mobility van that I’m able to easily get my electric wheelchair into, I have a lot more options for uk travel.

We’re going to do a Scotland trip (all being well) in the spring/summer.

Will have to save up some funds for that somehow. Now that I’m medically retired, funds are substantially lower unfortunately.

If anyone would like to help, my go fund me page is linked on here and I will also add to this post (shy bairns get nowt and all that 🤣).

https://gofund.me/3e9efb17f

Medical update:

I haven’t been on any cancer fighting treatment for several weeks now but after my lovely oncologist has sat and manually calculated my past ECGs with her team, they have determined that I’m in a normal enough range to get back on the Ribociclib.

This will start in January as I am currently having radiotherapy to my spine for pain relief. My oncologist doesn’t want me starting until that’s had time to set in.

While I’ve been off ribociclib my tumour markers have unfortunately risen from 103 to 193 which means that tumours are potentially growing and/or spreading.

Hopefully the hormone treatments I’m on are helping to keep that at bay alongside the radiotherapy which may be helping in the bones being treat.

There’s still no sign of spread to organs, as far as we’re aware anyway. I’m having a CT scan of my torso soon. I will next see my oncologist in early Feb to go over the results of that so fingers crossed 🤞.

I’m currently feeling well, I’m able to taste food! I’m looking forward to a lovely Christmas with my wonderful family and I’m just so thankful to be here!

I don’t know how long I have and nobody can answer that question either. Every day means the world to me and I refuse to waste a single one!

Thank you to everyone for your kind words of support and positivity over the past year. It has meant the absolute world to me and I truly appreciate every single word.

I hope you all have a wonderful Christmas and a happy, healthy and fabulous 2026.

💜PMA💜

### Suzy out for 2025 ###

Hi my name is Suzanne, I am mother to my handsome, resilient and intelligen… Suzanne Dixon needs your support for Live my best life with my family and friends

28/11/2025

Update 28th November 2025

Had another few changes/issues/improvements

1, Cancer meds have caused a prolonged QT interval in my heart which may mean another change in meds. I’m yet to find out. Other hormonal and bone strengthening to continue as normal but with extra precautions due to blood thinners.

2, After weening off steroids my appetite took a massive nose dive, couldn’t stomach anything and was very nauseous to the point of vomiting a few times. Not good 🤦‍♀️.

3, Changed from blood thinner injections to tablets thankfully. This appears to have relieved the awful itch I have had all over my torso 🙌. So far so good. 🤞

4, Hospital admission with suspected spinal compressions. I was admitted on Tuesday and got out yesterday. Thankfully after scans there were no spinal compressions found. They have dosed me quite highly with steroids which I now need to ween off again.

They also found no increase in metastasis in my skull but there have been some increases in my spine. I was reassured that they are not dangerous increases and have still not come outside of bone which is always a good thing.

Ultimately I’m back home, had a chilled day and appetite is a bit better which is amazing!

As I have been having increased issues more frequently we have taken the decision to knock the holidays abroad on the head and stick to the UK. This will be more expensive but definitely more accessible for me. Especially when I get my new WAV as the last car mobility provided was not suitable (that’s a whole other story).

Onward and upward!

💜 PMA 💜