Drae’s Journey Living with TBCK - new

06/06/2026

To follow Draes journey, most things are posted under tags&mentions…. This is because I post mainly if my page. Click on content and go to tags and mentions 💙

25/03/2026

Don’t know if anyone struggles with there kiddos little faces from bipap mask etc, butt draes face was awful just from being on it a couple of weeks and adding in another med to reduce secretions his face was dry and sore and not recovering from mask, we tried all sorts of cream and cavlon, nothing was helping….

THEN I thought what about ni**le cream for when you breast feeding!!!! It helps sore cracked dry ni**les and safe cos a baby can feed on top, so don’t matter if it ends up in Draes mouth….

24 hours and we are 10x better already. GENIOUS 😅😂

24/03/2026

TBCK is rare… but these warriors are unforgettable 💚
Awareness matters. Knowledge matters.
Share to help more people understand TBCK.

28/02/2026

Hi hope this ok to post, I’m now working alongside an amazing micro charity in Wiltshire called Wonder Wards.

💙 Please support & follow a new children’s charity making a real difference 💙

I’d love to introduce Wonder Wards — a registered charity created to bring comfort, joy and meaningful moments to children living with serious and complex medical conditions.

Wonder Wards is all about supporting children and families during long hospital stays and incredibly difficult journeys — reminding them that they are seen, valued, and not alone.

👉 Please help by liking and following Wonder Wards, and sharing their page so more people can learn about the amazing work they’re building.

Following a small charity in its early days genuinely helps more than you realise and that person could one day be you 💙

Thank you for supporting something special.

💙

https://www.facebook.com/wonderwardsfoundation/

Wonder Wards improves the quality of life for children with life limiting conditions, by providing the little things that mean a lot.

15/02/2026

Cupid Drae 💙

19/12/2025