Indian Osteogenesis Imperfecta Foundation IOIF

15/08/2026

This Independence Day, we’re sharing the inspiring journey of Dr. Anchal, who was born with Osteogenesis Imperfecta and spent much of her childhood dealing with fractures, surgeries and long periods away from school.
Finding a school that would admit her was a struggle. Yet Anchal kept going.
Today, she is a PhD holder, researcher and Guest Lecturer in Political Science at NCWEB, University of Delhi. She travels independently, continues her research and works to create greater understanding of disability.
One line from her story stays with us:
“Anchal always wanted her identity to be known by her name, not by her disability. Today, she has fulfilled that wish.”
This Independence Day, we invite you to read her journey and celebrate the courage to choose your own path.
Read Dr. Anchal’s story:
https://indianoifoundation.org/freedom-to-learn-freedom-to-dream-freedom-to-be-dr-anchals-journey/

🇮🇳 Happy Independence Day from IOIF!

01/07/2026

In India it's National Doctors' Day.
IOIF wishes all the doctors a Happy Doctors' Day! 💙
Thank you to the doctors whose care and compassion bring hope to individuals and families living with Osteogenesis Imperfecta.
Your dedication makes a lasting difference every day.

30/06/2026

We are delighted to see the Osteogenesis Imperfecta Federation of Europe sharing highlights from the International Conference on Children's Bone Health (ICCBH) 2026 in Montreal.

06/05/2026

Meet Aarika, a bright and brave 10-year-old living with Osteogenesis Imperfecta (OI). Through her heartfelt write-up, she shares what it means to grow up doing things a little differently—sometimes missing out, but always finding her own reasons to smile.

Her story is simple, honest, and deeply moving. It reminds us that joy is not about perfect circumstances, but about embracing every moment in our own unique way.

🌼 Take a moment to read and be inspired by Aarika’s beautiful perspective:

🔗 https://indianoifoundation.org/fun-times-my-way/

06/05/2026

💛 Wishbone Day – May 6th 💛

Today is Wishbone Day, and we come together to raise awareness about Osteogenesis Imperfecta (OI) and celebrate the strength of every individual living with it.

At IOIF, we believe in standing together, supporting one another, and creating a more inclusive and understanding world.

Join us in making a difference:
💛 Wear Yellow
💛 Spread Awareness
💛 Support OI

🌐 www.indianoifoundation.org

05/05/2026

💛 Wishbone Day 2026 – Raising OI Awareness 💛

Join us this Wishbone Day as we come together to spread awareness about Osteogenesis Imperfecta (OI) and celebrate the strength and spirit of our community.

Date: 6th May 2026
Time: 6:30 PM IST
Online Event

What to expect:
🔹 Career opportunities for persons with OI by VMinds
🔹 Inclusive employment talk by Pavithra Y. S. (Vindhya e-Infomedia)
Special Attraction: IOIF’s Got Talent – a talent showcase by our young members

Dress Code: Wear Yellow
Be there. Show your support. Make a difference.
Zoom ID: 820 7839 9911
🔐 Passcode: ioif

Let’s stand together for awareness, inclusion, and empowerment.

06/04/2026

On April 4, 2026, the IOIF Maharashtra Chapter launch in Mumbai culminated in a wonderful gathering of like minded individuals from the Osteogenesis Imperfecta community.
The meeting created space for meaningful interactions with discussions ranging from community initiatives and OI care to personal journeys and ways to collectively make life easier and better for one another.
A special thank you to Dr. Suma Uday for her insightful session on managing OI in adults.
From introductions and shared experiences to thoughtful conversations, the day truly fostered a strong sense of community, connection, and hope.
Grateful to everyone who joined us. We look forward to continuing to support one another and building many more such meaningful engagements together.

28/02/2026

Rare Disease Day – February 28, 2026

On this Rare Disease Day, IOIF shares the journey of Kashyap Trivedi, a powerful reminder that strength is not the absence of challenges, but the courage to move forward despite them.

Living with Osteogenesis Imperfecta, Kashyap’s life reflects resilience, family support, timely medical intervention, creativity, and the determination to live fully. His journey shows what awareness, access to treatment, and the right guidance can truly change.

Behind every rare condition is a real story. A real family. A real dream.

Let us continue building a strong, informed, and connected OI community.

Read his full story here:
🔗 https://indianoifoundation.org/finding-strength-in-fragility-kashyaps-journey-with-osteogenesis-imperfecta/

22/02/2026

22/02/2026

Today, IOIF participated in Racefor7 in Bengaluru as part of Rare Disease Awareness Month.

Racefor7, organised by Organisation for Rare Diseases India (ORDI), brings together rare disease communities and the general public to raise awareness and stand together in solidarity.

February is dedicated to rare diseases, and 28th February is observed worldwide as Rare Disease Day. For families living with Osteogenesis Imperfecta (OI), awareness is not just a word. It means earlier diagnosis, informed doctors, safer handling, better support systems, and dignity.

We walked not just for OI, but for every individual and caregiver navigating a rare journey.

Every step counts. Every voice matters. 💙