FOXG1 Italia ODV

26/07/2026

Oggi gli auguri vanno alla piccola Beatrice che compie gli anni .. tantissimi auguri di buon compleanno Principessa !! 🦊 🎂

23/07/2026

We are excited to share that our first site, Texas Children's Hospital and Baylor College of Medicine in Houston, Texas, has been activated, and screening for the trial has begun.

We expect the first participant to be enrolled shortly. As communicated in our recent webinar, the gateway for potential participation in the trial is filling out the Citizen Health survey, which is sent to families whose child is registered in the FOXG1 Citizen Health natural history study. Families will be contacted if their child is chosen to be screened. We will announce additional participating sites at the time they are activated.

G*i Ayalon, Ph.D., FRF's Chief Drug Development Officer, adds: "This is a significant threshold we are crossing, from an intense period of preparation and clinical readiness work for the trial, to our first operational site and active screening. This marks the start of our clinical trial for FRF-001.”

This information will be updated on clinicaltrials.gov and we are also in the process of refreshing FOXG1genetherapy.org, including an updated FAQ. That site will go live pending IRB approval, and we'll let you know the moment it's updated.
For clinical trial questions, please email: [email protected]
Watch our latest webinar: https://youtu.be/YDcjTw8graI

19/07/2026

Tantissimi auguri al piccolo Francesco che oggi compie gli anni!! Buon compleanno campione 🦊 🎁 🎂

13/07/2026

Tantissimi auguri di buon compleanno alla nostra principessa Chiara che oggi compie gli anni !! 🦊 🎂

27/06/2026

Evento del 26.06.26 che si è tenuto a Besnate(VA) Presso l’oratorio in collaborazione con il Minipalio Besnatese .
Grazie a tutti coloro che hanno contribuito , e soprattutto grazie a Mattia e Francesca genitori della piccola Ludovica .

18/06/2026

Oggi è il turno del nostro Brando !! Tantissimi auguri di buon compleanno campione !! 🥳 🦊 🎂

17/06/2026

Oggi gli auguri vanno Ludovica che compie gli anni !! Buon compleanno principessa 👑 🦊

30/05/2026

Tantissimi auguri alla piccola Diana che oggi compie gli anni !! Buon compleanno Principessa 👑 🦊 🥳 🎂

18/05/2026