Des has Lupus

Des has Lupus Living with a chronic illness has changed how I move through the world.

This page is where I share what lupus looks like in my body, in my life, and in my quiet moments💜

30/07/2026

There was a time when I thought surviving was my main priority. I didn't think I needed healing.

☑️If I got out of bed.
☑️If I made it to work.
☑️If I smiled through the pain.
☑️If I kept going.

I told myself I was getting better.
But I wasn't living.
I was surviving.

Healing didn't begin when I became stronger.
Healing began when I stopped treating survival as the only option.

✅️When I started listening to my body instead of arguing with it.
✅️When I rested instead of pushing through.
✅️When I separated my self-worth from my endurance.

Survival kept me alive.
Healing taught me how to live again.

🤍 What's one thing healing has taught you?
Don't feel pressured to have an answer. Some of us are still taking those first steps, and that's okay too.🫂

28/07/2026

MYTH: Rest is something you earn after everything is done.

REALITY: There will always be another task, another responsibility, another demand on your time.

📝The to-do list will always find something to add.

Rest isn't a reward.
It's a human need.

Give yourself the grace to rest when you need it, you are not a machine🤍

26/07/2026

I spent a long time calling it "just stress."

Just stress.
Just tired.
Just a busy season.

Meanwhile, my body was sending signals I wasn't ready to listen to.

Chronic illness, burnout, mental health struggles and emotional exhaustion don't always arrive all at once. Sometimes they build quietly while we're busy convincing ourselves that we're fine.

The truth is, denial doesn't make the problem disappear. It just postpones the conversation.

💬 Have you ever told yourself you were "fine" when you clearly weren't? No judgement over here.

23/07/2026

Throwback.
I came across this video today.

Looking at her now, I wish she knew she'd make it through.

She thought she was losing herself.
She had no idea she was meeting the strongest version of herself.

Some memories hurt.
Some remind you how far you've come.

21/07/2026

If we're being honest, I almost didn't post my first video.

A lot of the videos I've posted were also almost never posted.

Turns out, confidence isn't a prerequisite for showing up.

Thank you for giving me a place to have difficult, uncomfortable conversations out loud.

It's been one hell of a year.

If you've been here since the beginning, you've seen the transformation and still chose to stick around.

Thank you🫂

If you're new here, welcome to our little corner of the internet where we discuss exhaustion and celebrate putting on pants.

You'll fit right in🤍

🥂 Here's to another 365 days.





20/07/2026

A reminder for anyone who needs it:

☑️You do not have to conquer the day.

☑️You just have to participate in it.

☑️Today, participation counts.

16/07/2026

Later has a funny way of arriving.

One day, it's "just this week."
Then suddenly, it's years of pushing, surviving, and wondering when your body stopped asking and started demanding.

Sometimes the hardest thing isn't recognizing the warning signs.

It's believing you're allowed to respond to them.

💬 What signs are you ignoring right now?

14/07/2026

You have survived it💜


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​ #ʜᴇᴀʟɪɴɢᴊᴏᴜʀɴᴇʏ

Lupus awareness quotes
Chronic illness coping strategies
Spoonie community quotes
Invisible illness survival
Lupus recovery and mental health

12/07/2026

Tiny wins still count. 🤍

Today I packed my medication for the week.

Not exactly the kind of achievement that earns a trophy, but around here, we celebrate progress, not perfection.

So tell me...

🥳 What's your tiny win today? Let's celebrate it together.





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