Sickle Cell Prevention & Intervention Initiative

Sickle Cell Prevention & Intervention Initiative Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Sickle Cell Prevention & Intervention Initiative, Medical and health, CITEC Estate Mbora, Abuja.

Sickle Cell Prevention & Intervention Initiative (SCI Initiative Nigeria) is a registered non-profit organisation dedicated to preventing Sickle Cell Disease through education, genetic literacy, and informed family decision-making.

ONE ORGANISATION CAN’T DO THIS ALONE.Creating lasting change for people living with sickle cell requires more than aware...
22/10/2026

ONE ORGANISATION CAN’T DO THIS ALONE.

Creating lasting change for people living with sickle cell requires more than awareness. It requires people willing to show up, contribute, collaborate and take action.

From healthcare professionals and organisations to advocates, communities, volunteers and individuals—every contribution matters.

You can help us take the message further by:

🤝 Partnering with us
💛 Volunteering your time or skills
🙏🏾 Donating to support the work

Together, we can reach more people, amplify important conversations and build stronger support systems for the sickle cell community.

How would you like to contribute? Tell us in the comments or send us a message.

Sometimes, living with sickle cell can make the diagnosis feel like it takes up so much space in your life.The appointme...
20/10/2026

Sometimes, living with sickle cell can make the diagnosis feel like it takes up so much space in your life.

The appointments.
The medications.
The pain.
The fatigue.
The questions.
The days when your body doesn't cooperate with your plans.

But you are still you beyond all of that.

You are a friend.
A sibling.
A creator.
A professional.
A student.
A dreamer.
A person with gifts, hopes, talents and a future.

Sickle cell may be part of your story, but it is not the whole story.

So today, remember:

You are more than your diagnosis. You are more than your symptoms. You are more than your difficult days. ❤️

Tag a warrior who needs this reminder today. 👇🏾

What does better sickle cell care actually look like?It goes beyond treating a pain crisis when it happens.For many peop...
15/10/2026

What does better sickle cell care actually look like?

It goes beyond treating a pain crisis when it happens.

For many people living with sickle cell, quality care also means having access to healthcare, receiving accurate genotype testing, getting appropriate counselling and education, being listened to by healthcare professionals, and having support that extends beyond the hospital.

It also means recognizing that the experience of sickle cell is not the same for everyone.

Better care should be informed, respectful, accessible and patient-centred.

This conversation requires everyone at the table—people living with sickle cell, caregivers, healthcare professionals, researchers, policymakers and advocates.

So let's hear from you:

What is one change you would like to see in sickle cell care?

Share your thoughts in the comments and join the conversation.

“ You don’t look sick.”“Maybe it’s just stress.”“Just drink more water.”“Are you always sick?”If you live with sickle ce...
13/10/2026

“ You don’t look sick.”

“Maybe it’s just stress.”

“Just drink more water.”

“Are you always sick?”

If you live with sickle cell, chances are you’ve heard at least one of these.

Sometimes people say these things because they don't understand what living with an invisible chronic condition can be like. But even when they are not meant to hurt, these comments can feel dismissive.

Sickle cell is more than what you can see from the outside. A person can smile, work, attend school, create content and go about their day while still dealing with pain, fatigue or other challenges.

Instead of assuming, listen. Instead of dismissing, ask. Instead of judging, support. ❤️

Now it’s your turn:

What’s one thing people say about sickle cell that you’re tired of hearing?

Drop it in the comments. 👇🏾

Knowing your genotype is important—but knowing it accurately matters even more.An incorrect or unreliable genotype resul...
08/10/2026

Knowing your genotype is important—but knowing it accurately matters even more.

An incorrect or unreliable genotype result can have serious consequences for healthcare decisions, family planning, and understanding your health.

Reliable testing methods, including HPLC where appropriate, can help improve confidence in genotype results and reduce the risk of misdiagnosis.

Healthcare professionals play an important role in ensuring people receive accurate testing and appropriate follow-up when results are unclear or inconsistent.

Accurate testing. Informed decisions. Better care.

📌 Share this with a health professional and help spread the importance of reliable genotype testing.

Awareness is important—but awareness alone cannot solve the challenges surrounding Sickle Cell Disease.People need more ...
06/10/2026

Awareness is important—but awareness alone cannot solve the challenges surrounding Sickle Cell Disease.

People need more than information. They need access to appropriate healthcare, accurate genotype testing, support, research, and communities where they are treated with dignity.

Moving from awareness to action means asking:

What can we do differently? What needs to change? What role can each of us play?

Whether it is challenging stigma, supporting a warrior, improving access to care, volunteering, funding research, or advocating for better systems—change requires action.

👇 What change do you want to see for people living with Sickle Cell Disease?

Tell us in the comments.

Behind every hospital visit, medication reminder, appointment, and difficult night, there may be a caregiver quietly car...
29/09/2026

Behind every hospital visit, medication reminder, appointment, and difficult night, there may be a caregiver quietly carrying a lot.

Caregiving for someone living with Sickle Cell Disease can be physically and emotionally demanding. And sometimes, caregivers become so focused on caring for others that they forget to care for themselves.

That’s why caregivers need more than instructions. They need rest, understanding, emotional support, practical help, and someone who cares about how they are doing too.

If you know a caregiver, check in on them today.

A simple “How are you holding up?” can mean more than you realise. ❤️

📲 Share this with a caregiver who needs to hear it.

“They’re just being dramatic.”For someone living with Sickle Cell Disease, hearing this during a pain crisis can be deep...
24/09/2026

“They’re just being dramatic.”

For someone living with Sickle Cell Disease, hearing this during a pain crisis can be deeply hurtful.

Sickle cell pain is a real physical experience caused by processes such as reduced blood flow and inflammation. The intensity can vary, and you may not always be able to see it from the outside.

A person can be smiling, talking, or trying to carry on with their day and still be in significant pain.

So when a warrior tells you they are hurting, believe them. Listen without judgment. Offer support.

We don’t have to understand someone’s pain completely to take it seriously.

❤️ Let’s replace doubt with compassion.

📣 Help us end the stigma by sharing this message.

What actually happens during a sickle cell crisis? 🩸One important process is called vaso-occlusion.In Sickle Cell Diseas...
22/09/2026

What actually happens during a sickle cell crisis? 🩸

One important process is called vaso-occlusion.

In Sickle Cell Disease, some red blood cells become sickle-shaped, rigid, and sticky. They can get trapped in small blood vessels and reduce blood flow.

When blood flow is reduced, tissues may receive less oxygen and nutrients, which can trigger pain and inflammation.

This is one reason a sickle cell crisis can be so painful and exhausting. And because blood vessels supply the entire body, the effects can go beyond pain.

The more we understand what happens inside the body, the better we can support people living with Sickle Cell Disease.

❤️ Knowledge creates understanding.

Share this post with someone who wants to understand SCD.

When you hear “sickle cell,” what comes to mind?For many people, the first thing is pain. And while pain crises are an i...
18/09/2026

When you hear “sickle cell,” what comes to mind?

For many people, the first thing is pain. And while pain crises are an important part of Sickle Cell Disease, they are not the whole story.

SCD can affect blood flow and oxygen delivery throughout the body, contributing to complications such as anaemia, fatigue, infections, and organ problems. Living with a chronic condition can also affect a person’s emotional, social, and financial wellbeing.

That’s why awareness must go beyond talking about pain.

See the person, not just the crisis. ❤️

📌 Save this post and share it to help someone understand sickle cell beyond pain.

Address

CITEC Estate Mbora
Abuja

Opening Hours

Monday 09:00 - 05:00
Tuesday 09:00 - 05:00
Wednesday 09:00 - 05:00
Thursday 09:00 - 05:00
Friday 08:00 - 05:00

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