Super Colt's Fight Against Epilepsy

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Super Colt's Fight Against Epilepsy In 2016 our healthy boy began the fight of his life against a rare and aggressive form of Epilepsy. This is his journey…

After failing all treatment options, we made the difficult decision to focus on quality of life, giving him the best life possible.

Literally the last 10.5 years of my life… ok medical mamas (and dads), who else can relate?? 🙃
10/14/2026

Literally the last 10.5 years of my life… ok medical mamas (and dads), who else can relate?? 🙃

It’s Homecoming season… this was Tyler and I freshman year of high school at our homecoming dance. Crazy to think that 2...
10/05/2026

It’s Homecoming season… this was Tyler and I freshman year of high school at our homecoming dance. Crazy to think that 26 years later we would have 5 kids (22, 19, 17, 13 and 9)… all 7 of us living this wild, scary and heartbreaking Epilepsy journey together. When I thought about my future back in 2000, I probably would have confidently told you that Tyler and I would get married and have children (I was a 14 year old madly in love 😂), but never ever ever would have considered that one of our future children would suddenly become medically complex, and spend over a decade fighting for his life. It’s really wild to think of how a person’s future can change so drastically in the blink of an eye. I say it over and over… appreciate every single day… love those babies and your family every single day… at the end of the day, you don’t have control over what could happen in your future, so make the most out of what you are given. ❤️

If you ask C**t what he wants to be when he grows up, he will always say… “A coach like my dad!!” He thought he was pret...
10/04/2026

If you ask C**t what he wants to be when he grows up, he will always say… “A coach like my dad!!” He thought he was pretty cool standing with the team after their last game today. He also pulled the wagon with all of the gear through the park, because “that’s what coaches do!” 😃 Tonight we went out to eat with the team, and C**t sat at the end of the table with the players. They are always so good with him, always make him feel special and included. C is having a blast in KC this weekend, this is SO GOOD for him!! 😊

Tyler is coaching this weekend in Kansas City, so C**t and I tagged along for another weekend trip together. 😊 We are c...
10/03/2026

Tyler is coaching this weekend in Kansas City, so C**t and I tagged along for another weekend trip together. 😊 We are currently eating breakfast in the hotel restaurant with C**t’s little Troll buddy, Branch.
C**t- “Mama, Branch is starving, but please don’t order him gluten, he’s allergic.”
Me- “Noted, no gluten for Branch.”
😁😁😁

For the last couple of weeks, C**t has been dealing with one thing after another… respiratory virus + sinus infection + ...
10/01/2026

For the last couple of weeks, C**t has been dealing with one thing after another… respiratory virus + sinus infection + ear infection + increased seizures + stomach virus… he’s missed quite a bit of school, but we are hopeful he will be able to go tomorrow. 🤞We have his IEP meeting in the morning, and then tomorrow night Make-A-Wish Iowa gifted our family tickets to Ringling Bros. and Barnum & Bailey Circus!! 🤡 C**t is crazy excited to go to the circus, send us lots of good vibes… we want him feeling great, so he can enjoy the show. 🎪

09/28/2026

Yup!!

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2829 South Ankeny Blvd.
Ankeny, IA
50023

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