LupusAutoimmune

05/05/2026

Understanding the Requirements for Sickle Cell Disease
Comprehensive Systems of Care

Join the U.S. Department of Health & Human Services (HHS) Office of Minority Health (OMH) for a two-part roundtable series focused on advancing comprehensive systems of care for sickle cell disease (SCD). A comprehensive system of care for SCD offers multidisciplinary and specialized healthcare services to the SCD community throughout the lifespan. Participants will learn about and discuss key components of comprehensive SCD care, current challenges, and emerging best and promising practices.

This series will engage SCD warriors, healthcare providers, community organizations, advocates, and federal partners to identify core needs and priorities for comprehensive SCD systems of care and to explore opportunities for coordination and collective action.

Part One: Understanding the Requirements for Sickle Cell Disease Comprehensive Systems of Care

Thursday, May 14, 2026, 2-3:30 p.m. ET

This 90-minute roundtable will:

Identify key elements, current challenges, and emerging best practices of a comprehensive system of care for SCD, including the role of nutrition.
Raise awareness about current activities and policies related to comprehensive systems of care for SCD.
Register Today for Part 1

Please feel free to share this invitation with colleagues who may be interested and stay tuned for future communications about Part 2.

In Case You Missed It:
Last September, HHS OMH hosted a two-part webinar series on SCD and gene therapies. Watch this webinar series on:

Part One: Trust, Clinical Trials, and Transformative Therapies: Ethical Pathways in Gene Therapy and Sickle Cell Disease
Part Two: Innovations and Advances in Sickle Cell Disease Gene Therapies
Visit the HHS OMH SCD Webpage for more information about our SCD initiatives.

Sickle cell disease (SCD) is a complex group of inherited blood disorders associated with debilitating pain and complications that can affect the entire body. SCD affects about 100,000 people in the United States; more than 90% are non-Hispanic Black or African American, and an estimated 3%-9% are H...

04/24/2026

Happy Earth Day! Don't know what to do for Earth Day?
Here ya go:
https://www.earthday.org/earth-day-tips/

03/20/2026

https://dhss.delaware.gov/dss/snapalert/
Important news about food benefits and work requirements for Able-Bodied Adults Without Dependents (ABAWDs).

Act now to avoid losing your food benefits!
If you received a notice from about SNAP benefits but have not yet verified your work or exemption information with your case manager, call 1-866-843-7212 today!

3 ways to keep your SNAP food benefits:
Prove you work or participate in the SNAP Employment and Training Program at least 80 hours every month.
or
Provide a signed form from your doctor saying you are physically or mentally unable to work.
or
Meet an approved federal exemption. Keep scrolling to learn more below.

Listen Social Services Menu Home About About DSS Sections & Programs FAQs Contact Information Office Locations Services ASSIST Cash Assistance General Assistance Refugee Cash Assistance Temporary Assistance (TANF) Food Supplement Program Child Care Income and Eligibility Information Regulations Publ...

03/13/2026

https://www.facebook.com/share/p/185kdUmhb2/

03/13/2026

World Kidney Day, March 12, 2026

03/08/2026

What time is it?

It's Daylight Savings Time! SPRING FORWARD!

03/08/2026

Get ready to spring forward! Don't forget to set your clocks ahead one hour on Sunday, March 8, 2026, as 2:00 AM becomes 3:00 AM.

02/07/2026

Hey everyone ( ) it's Nicole, the founder of Lupus-Autoimmune Advocacy 2.0, Lupus-Autoimmune Advocacy 2.0, LupusAutoimmune
I would like to welcome you to the group and to our chat. Feel free to ask questions about anything related to autoimmune diseases and/or advocacy. This is a fantastic community of patients, doctors, specialists, and supporters who constantly impress me with their vast knowledge and insight about these diseases.

01/23/2026

The 2026 Legislative Session is now underway!
We are tracking legislation introduced this session that may affect the disability community.

The list includes bills addressing accessibility, education, employment, housing, health care, transportation, and more. This page is updated regularly throughout the session and is intended as an informational resource for advocates, self-advocates, families, and service providers.

Click the link below to view the complete list of bills:
https://mdod.maryland.gov/news/Pages/2026-Legislation.aspx

01/23/2026

It's that time of year again...where sudden flares are not our only problem. Dermatological issues are all too common in months. Let's make sure we have the to take care of & protect our .

Dry, chapped skin is common as the air becomes colder and drier in the winter months—and that’s especially true of your hands, which can often become rou...