Alice in Cranioland

Alice in Cranioland On June 18th 2013, our soon to be 5 month old baby girl was diagnosed with Left Coronal Craniosynostosis. She had skull surgery July 12th 2013...

News story about Alice
http://www.youtube.com/watch?v=NKSUElWbzfM

Our blog about Alice's journey http://coronalcraniosynostosis.blogspot.com

Awareness videos about Alice -

https://www.youtube.com/watch?v=B-UWIu5J_5Y

https://www.youtube.com/watch?v=FaZ6SzCXDXU

A group to discuss endoscopic surgery for Craniosynostosis
A place for parents to discuss the less invasive surgery option to treat Cr

aniosynostosis https://www.facebook.com/groups/523481684505643/


On June 18th 2013, our soon to be 5 month old baby girl was diagnosed with Left Coronal Craniosynostosis. She had skull surgery at just 5 months old. We created a blog to help other families and let them know of the options available to them and to help raise awareness. What is Craniosynostosis??? It's the premature closing (or fusing) of one or more of the boney gaps in an infant's skull. These gaps are known as sutures. The sutures are supposed to remain open until 2 years of age to allow for proper brain growth. Left untreated it could cause pressure to build up in the skull. Possibly resulting in developmental delays, facial deformities, seizures and other long term health problems.

12 years ❤️🙏 “I’ll never forget that day. They’ll take care of you, they say. As they rolled you away, my eyes filled wi...
07/12/2025

12 years ❤️🙏 “I’ll never forget that day. They’ll take care of you, they say. As they rolled you away, my eyes filled with tears. A million thoughts went through my head and so many fears.”

Happy 3rd 'Cranioversary' to our sweet Alice! It's been 3 years since our sweet girl had skull surgery for Craniosynostosis. She had endoscopic strip cranie...

Hard to believe that it’s been 10 years since the news story about Alice aired on tv. Forever grateful that she is doing...
12/03/2023

Hard to believe that it’s been 10 years since the news story about Alice aired on tv. Forever grateful that she is doing so well 💕

Stephanie Rochon reports on WTVR CBS 6 News.

10 years ago today, our 5 month old baby girl had skull surgery for a birth defect called Craniosynostosis. Her skull fu...
07/12/2023

10 years ago today, our 5 month old baby girl had skull surgery for a birth defect called Craniosynostosis. Her skull fused too soon, the surgery allowed room for her brain to grow. It was one of the scariest, most heart-wrenching moments of my life. I feared the worst and time seemed to stand still that day. Somehow it has flown by since then and here we are ten years later and she is doing amazing. Happy Cranioversary sweet girl! 💜💜

Happy 10th Birthday Alice!! 🎉💕I don’t know where the time has gone! Our sweet girl is a whole decade old! It’s crazy to ...
01/29/2023

Happy 10th Birthday Alice!! 🎉💕
I don’t know where the time has gone! Our sweet girl is a whole decade old! It’s crazy to think that we are approaching the 10 year anniversary of her diagnosis and surgery.

Happy Cranioversary to our sweet girl! It’s hard to believe it’s been 9 years since that emotional day.Alice’s first vis...
07/12/2022

Happy Cranioversary to our sweet girl! It’s hard to believe it’s been 9 years since that emotional day.

Alice’s first visit to the aquarium was about 2 weeks after her skull surgery. We went after she had her post op appointment with Dr Magge, July 2013. Nine years later, she finally got a chance to go again. I’m pretty sure the dolphins were her favorite 💕

07/12/2022

*UPDATED VIDEO* Our daughter was diagnosed with Left Coronal Craniosynostosis at 5 months old. We made this video to help raise awareness of Craniosynostosis...

Happy 9th Birthday to our sweet cranio princess. We love you so much, Alice!
01/29/2022

Happy 9th Birthday to our sweet cranio princess. We love you so much, Alice!

It’s hard to believe it’s been 8 years since we handed this sweet girl over to a complete stranger for skull surgery. Wa...
07/13/2021

It’s hard to believe it’s been 8 years since we handed this sweet girl over to a complete stranger for skull surgery. Watching them walk down the hall with our 5 month old baby girl and the fear that came over me that day is unexplainable. She showed us how tough she was at a young age. Then again this year with her eye surgery. She gives us that sweet smile and tries to be as brave as she can. She’s been through more than most 8 year olds but the average person would never know it. She has come so far and I’m so thankful she is doing so well. Happy Cranioversary Alice ❤️

Address

501 E Pratt St
Baltimore, MD
21202

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