Cloe Rose Blooming Rose

01/03/2024

Update: Cloe is slowly improving. Still on BiPap. She is dry/dehydrated, the diuretics worked alittle to well, so her blood pressure was low again. Back on Epinephrine. She has been on Dexmedotomide because she's been unsafe, with trying to get out of bed, pulling at her wire, IV lines, and disconnecting the BiPap tube. They had to up the Dexmedotomide more yesterday.
Cloe is fragile because her heart is very weak and she has chronic kidney disease. So it's a fine line with the diuretics.

I have been out of work since January 2023, so things have been very tough.
I do hate to ask. But any donation will help or please share this GoFundMe.
Most importantly we need Prayers, positive thoughts and vibes.

https://gofund.me/dadf5d26
Much love to everyone ❤️

09/09/2023

09/09/2023

https://gofund.me/dadf5d26
Update Cloe went back to surgery early morning Thursday. It was a bigger surgery then when they first put the PD cath a couple of weeks ago. The PD cath gotten moved and was coiled around some fatty tissue. So, they removed some of the fat tissue in her abdomen. They adjusted the PD cath, and tacked it down to the abdominal wall. She is in alot of pain. They also flushed it after surgery. Flushing PD Caths takes around an hour if it's working correctly or longer if its not. So it worked, they will flush it daily until it is ready to be used for dialysis. Until then she continues to use the Dialysis cath in her neck for hemodialysis. The one in her neck is temporary and can only be used for 90 days. The 90 days is up on either 9/17 or 9/18 so this is cutting way to close.

She is having a very tough time with pain and still being in the hospital.
This has been a very long and hard hospital stay for her. This poor kid has been through hell and back. She is so depressed and cries. She wants to go home very badly. This keeps breaking my heart.
Please keep praying, sending positive thoughts and vibes for Cloe.

08/27/2023

Cloe had surgery Tuesday for a peritoneal cath. Takes 3 weeks to heal. As long as it heals and works correctly then we will be able to do peritoneal dialysis instead of hemodialysis.

08/27/2023

Update 8/19/2023
Cloe is out of the CICU. I am very very happy about this. She has come a long long way in the last 80 days. She is very resilient, tough, and strong willed! With that being said, she is far from being healthy. She has major medical problems and my goal is to get her home, happy, comfortable, and safe from any germs/infections as best as I can. As her mom, I will always do right by her! ❤️❤️🙏🙏❤️❤️🙏🙏

08/21/2023

This update is from 8/8
Cloe is doing remarkably well. She has shocked the doctors and nurses. Cloe decided to prove them wrong. They said she most likely would remain on ventilator and 24/7 dialysis for the rest of her life. She is now off the ventilator and only needing oxygen at night. Cloe went from 24/7 dialysis, to daily 3 hrs dialysis, to every other day dialysis!!! She is a fighter! Cloe is my strong willed, feisty, and very polite daughter! I always call her a spitfire! She has very strong opinions and isn't afraid to show or say it!
We had a hugh meeting with her team of doctors. We discussed short term plans to get her home and long term plans. Cloe has a hard, difficult, and dangerous road ahead of her. Cloe's heart is weak due to her having Diastolic Dysfunction (chronic heart failure) and kidney failure, surgery to fix the very complexed heart defect is not an option right now because she will most likely not survive . If her Kidneys improves, let's say in 6 months then we could possibly talk about surgery but still very risky and most likely will not improve her condition as Diastolic Dysfunction is not fixable! Like I have said before, she does not qualify for kidney or heart transplant. We don't know what the future holds for Cloe, just that it will be short, whether it's 6 months, a year, or more...we just don't know. She is at very high risk for infections, pneumonia, even just the average cold will cause major complications.
So my goal and job for Cloe is to help get her in a safer spot so she can come home, keep her as safe and healthy as possible, to keep her happy and comfortable with what time she has left!
Yes Some of this update is great news, specially with what was happening last month. But this is also very heart breaking news.
So please keep praying, sending positive thoughts and vibes to Cloe

https://gofund.me/83f7d9b4

07/07/2023

https://gofund.me/dadf5d26
Hi. My name is Gina Silva. My daughter Cloe, age 16 (17 as of June 26th) who has Down syndrome, was born with complexed heart defects and is pacemaker dependent. She has gone through multiple open heart surgeries, cardiac caths, and many pacemaker surgeries. She also has chronic heart failure. Cloe has been sick since January 2023 and I had to stop working at that time to care for her at home. She has been in the hospital since June 1, 2023 for a infection in her blood and Endocarditis. She's also fluid overload around heart and lungs. She unfortunately took a turn for the worse and was air lifted to Boston Children's Hospital. Cloe is now fighting for her life. She went into respiratory failure and kidney failure, and her heart is weak. She is now on a ventilator and on a dialysis machine 24/7.

Cloe is a an amazing person and has been through so much in her 16 years. She is feisty, strong willed, happy, always smiling, very caring, and a fighter for sure! Cloe lights up any room and has many people who love her. She has a birthday coming up on June 26. Cloe has been wanting to go to Disney World and see all the Disney Princesses. She loves Barbie dolls, Disney Princesses, she also loves watching Icarly, Big Time Rush, Victorious, and Zoey 101.
Any funds raised will go towards anything that Cloe needs. Also will go towards utilities, rent, food, and any other expenses from being out of work and being in the hospital. I've been staying with her in the hospital 24/7.
Any donations will be very much appreciated.
Please send prayers, postive vibes and thoughts.
Please share this GoFund.
I will post updates.
Thank you so much,
Gina

Hi. My name is Gina Silva. My daughter Cloe, age 16 who has Down syndro… Gina Silva needs your support for Cloe's needs, expenses, utilities, rent, & medical