08/07/2026
This is one of those posts..... the reality of living with a SCI...
Back on June 3rd at 3AM, Cameran yelled out for me hysterically. I do not think I moved as fast as I did since his accident. When I got to him, he was panicking that something was not right and I proceeded to check his BP.... 219/110, I legit thoughthe was having a heart attack! We were transported to Spotsylvania Memorial and he was discharged on having as severe Anxiety attack and we come home.
Within the next week, we got him with his P*P and treatment started for anxiety. Over the next few weeks Cameran was hypervigilant of his breathing because of said panic attack and would tell me he didnt feel like he was breathing right. In return, I reassured him everything was alright, it was just the feeling of anxiety.
June 13th rolls around. Cameran wakes up and half of his good hand was numb. That is definitely a neurological issue so we left for VCU. The closer we got to Ladysmith the numb feeling started progressing accross his hand, so we stopped at Ladysmith Rescue and they get us to VCU. He was discharged with having a form of Neuropathy because of his SCI and sleepingon arm wrong. It took nearly 2 days for him to regain normal feeling back in his hand.
While returning home on I95 from VCU, Cameran goes into anxiety attack as we are approaching Ladysmith. We stop at Wawa, get him a drink, and he tells us that there is no way he can continue to travel in the car while riding in the wheelchair. As any parent would, on June 23rd we purchased a Kia Carnival. He is now able to ride passenger and his wheelchair rolls right up into the back.
Fast forward to the evening of June 27th. Something was not right, BP was running dangerously high again, we were transported to Spotsylvania Memorial, and this is when things get interesting.... Blood work comes back fine and the doctor orders x-rays. X-rays come back that he has A LOT of trapped air, everything else looks fine, and the ER doctor wants to discharge him home due to nothing else that can be done. Cameran could not even sit up he had so much trapped air and at this point had been burping non-stop for nearly 6 hours.
I nicely told her something was not right, I was not bringing him home like that, and she needed to figure out what was wrong. A bit goes by and she returns telling us she has ordered a CT w/ contrast. Cameran was steadily burping, the results come back, she reports that all organs are working normally and they he was just full of trapped air... By this time we had been up for 24 hours and I was done with the BS. I inform her that the situation he was in could send him into AD, in which she responded with, What is that? ARE YOU KIDDING ME!?!
Needless to say, after going back and forth for about 12 hours, he was admitted to the hospital from the ER. We had not been in the room for an hour before the doctor came in and informed us that Cameran had a UTI and developed a Ileus! I then informed them that the ER doctor had tried discharged him not once, but twice on the diagnosis he was full of air. He was discharged 3 days later.
Nearly 24 hours of non-stop burping and nearly 36 hours of absolutely no sleep, things started looking up.
My question.... While anxiety definitely played a role back on June 3rd and given he didn't think he was breathing right, did we come home with him not being fully diagnosed by Spotsylvania Memorial Hospital? On June 3rd, is that when his UTI was just starting out and it just progressed up until June 27th when his nervous system couldn't take it any more?
I guess we will never know, but an ER doctor should be required to have a general knowledge of the full human body. At no time should a patient in need show up to the ER and the doctor asks, what is that?
June was definitely a month for the books but it did nothing but make Cameran stronger as he was baptized on July 15th! ✝️
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