Chronically Ill Vee

Chronically Ill Vee Hi I'm Veronica and welcome to my page all about my life with a ileostomy, being chronically ill, and disabled.

06/05/2026

I have a migraine.

So this what I do when I have a migraine guys. I take my rescue medication called Zavzpret, use my migraine cap! I do have a code with them! It’s VERO15 and you will get 15% off your order, and I use this migraine essential oil stick from that they sent me from TikTok. It honestly helps!

I’m praying this helps and it doesn’t get worst because my head hurts so bad. Like I said it’s been raining all day here in MI so it started off with a headache and now it’s a migraine. I’m just hoping it doesn’t get worst and this all helps!

I just wanted to share this with you guys and reminded you that not only is it Pride Month! Happy Pride Month. But it’s also migraine and headache awareness month! Migraines and headaches are the worst and it’s so much more than “just a headache” it’s painful, debilitating, hard, and just not far. And drinking more water or taking a Advil or ibuprofen will not help. So please be nice to anyone you know who suffers from chronic migraines and headaches. Because this makes life very hard on us. But please remember you are not alone! I’m always here for you and I will always be here for you! We got this. I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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Medicine pick up…•So I picked up my meds today and this is how they gave it to me. I did have a lot but they just throw ...
06/03/2026

Medicine pick up…

So I picked up my meds today and this is how they gave it to me. I did have a lot but they just throw them all in a Meijer bag! Like wth?

I have so much trouble with this pharmacy that it’s not even funny. My doctor office has to constantly call them, give them proof why I need my medications, just all kinds of stuff, they’ve even asked me why I need all these medications and what’s wrong with me. Which is ridiculous! I’m chronically ill and disabled. I shouldn’t have to tell you anything when my doctor office is already sending you everything and more as to what you need. And it has nothing to do with the insurance company. It’s just ridiculous. I’ve been going here for 6 years now and I still have problems.

Anyway I just wanted to share this with you guys because I got so frustrated today. But I hope you guys are having a good day, if not do something for yourself to have a good day, even if it’s something small! And remember you are never alone. I’m always here for you! Always. I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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Migraine and headache awareness month.•June is migraine and headache awareness month! Migraines are so much more than “j...
06/02/2026

Migraine and headache awareness month.

June is migraine and headache awareness month! Migraines are so much more than “just a headache” and taking a Tylenol or Advil WILL not help. I’ve been dealing with migraines since I was 10 years old and now I’m 33 years old. That’s over 30 years of dealing with migraines.

Mine are or can be hereditary, and because I have neurofibromatosis my migraines are really bad. My grandpa and his siblings all dealt with migraines and headaches, my mom also stuffers from them, along with my brothers. And there is nothing you can do to stop them besides take a preventative medication, rescue medication, botox, never blocks and trigger point injections. And even then you will still get migraines. There’s no cure for chronic migraines and headaches.

I showed you a bunch of different pictures because migraines and headaches can look different and sometimes you won’t know if someone is dealing with a migraine or headache. Those of us who deal with chronic migraine and headaches literally have to push ourselves to try and function and even then sometimes we can’t. We have to lay down, take our rescue medication, and pray it goes away.

So please remember migraines are so much more than “just a headache”. Taking a Advil, Tylenol, drinking more water, will not help. And you will never understand how bad they are until you have one. We aren’t lazy, we aren’t making it up, we aren’t lying, we are just trying to function and praying it will go away.

If you guys have any question please ask away! And please know I am always here for you. Always. Whether that be through a comment or DM. I am always here for you and this is a safe place for you. But I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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06/02/2026

Wristdrop update!

So yesterday I saw my occupational therapist and things are slowly getting better! I can now left my wrist up like how you normally can, but I can’t hold it for very long, my fingers are getting better, but I still have a long road ahead of.

He’s thinking it’s going to be a year before things are back to normal and I have to wear my brace for at least a year. Which sucks hearing that BUT the fact that I’m making progress, I’m beyond happy. Because like I said March 9th, I couldn’t do anything. And now June 1st I can left my wrist up and left my fingers up.

So please let this be your sign to not give up. I know it’s hard. I know it sucks. I know it’s frustrating. I know it feels hopeless. But things will get better! Even if it’s slow. Things will get better and take the small little progress as a BIG win!! I promise you things will get better and I will always be here with you and god you! I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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Hydration and tunnle PICC line supplies!💧•So yesterday they brought me my hydration (IV fluids) and everything I need fo...
06/02/2026

Hydration and tunnle PICC line supplies!💧

So yesterday they brought me my hydration (IV fluids) and everything I need for my tunnle PICC line! So my PICC line is different than a normal PICC line. My goes into my chest like a port and they were going order a port but because I would be using it everyday they decided a tunnel PICC line would be best because I would be using it every day! Is still considered a central line.

So they gave me a whole month supplies of hydration (IV fluids) saline flushes, heparin flush, everything I need to change my dressing, alcohol pads, regulators, and finally a new pump and regulators for the pump! You guys have no idea how long I’ve been waiting for a new month! It’s been about a YEAR!

I’m beyond happy I finally got a new pump. Not only can I use this when we go places, but it’s always nice to have! So this was very exciting. Silly to be happy over PICC line stuff but I’m beyond excited.

But I just wanted to share this with you guys because I was so happy to finally get a new pump and do get my tunnle PICC line stuff! If you have any questions please ask way! And please know I am always here for you guys! Whether that be a through comment or DM, I am always here for you. Always. You are never alone! I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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invisableillness

05/31/2026

Ostomy Hack!

Now I know someone maybe have thought about this already but this is the first time I wore my jean shorts overalls since I bought them last year and this how I emptied my bag!

I thought it was easy and wanted to share it with my fellow ostomates! Because the struggle is real when it comes to rompers and dresses! Not only do you have to whole the dress or romper up, you gotta be careful not to get any output on it! And that sucks! Lol

But yeah I just wanted to share this with you guys and I hope it’s helpful! If you have any questions please ask away! Also please know you are not alone! I’m always here for you and will always be here for you! We got this! I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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Doing my nails. 💅🏼•So as you guys know I have wristdrop and I can’t go get my done. So I’ve been buying press on nails a...
05/30/2026

Doing my nails. 💅🏼

So as you guys know I have wristdrop and I can’t go get my done. So I’ve been buying press on nails and they’ve been last me a long time! These are the ones I did today.

Not going to lie I did mess my finger on both hands BUT I did it and I’m so freakin proud of myself. Was it hard? Yes. Does it suck I can’t get my nails done? Yes. Did I struggle putting these press on? YES! But I did it and I’m so proud of myself. I think I did a good job. But let me know what you guys think and if you have any tips or tricks when it comes to doing press on nails. Because it’s hard doing my right hand right now. 😭

I know this is random but I want to share everything with you guys! So I thought why not show you my nails! If you have any questions please ask away! And remember you are not alone. Especially if you’re dealing with something like me or different. You are not alone. Don’t give up and I will be cheer you on! We got this! I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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05/29/2026

Occupational therapy!

✨ Incase you didn’t want to look at the pictures I made a reel for you guys! ✨

So today was my 4th appointment with my occupational therapist and not much has changed when it comes to my wrist, BUT my fingers are now at 0 which is normal and I’m so excited! He told me normally people get improve with their wrist first. But I’m doing it with my fingers first and he said that’s a good sign.

He used. E-STIM on my arm to help wake up my nerve. It’s like a little electrical shock that wakes the nerve up and moves your arm to your fingers. It’s so weird seeing it but it didn’t hurt, for me at least.

He also fixed my brace because while I was wearing it it was hurting my bones and just felt uncomfortable, so he fixed it and added cushion to my brace. Oh and he also played Fall Out Boy for me during our appointment and it was so cool.

But that’s the update guys. I’m nowhere near gettinf full function back with my wrist yet, but I am doing better and I’m so excited about that. And if you’re going through something similar or the same as me. Please don’t give up. I know it’s hard. I know it’s frustrating. I know it suck’s. But I promise things will get better and we got this. And I will always be here for you guys. Always. If you have any questions please ask away and I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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Occupational therapy!•✨ if you swipe to the right you’ll see a video of my arm moving from the E-STIM or TENS, that send...
05/29/2026

Occupational therapy!

✨ if you swipe to the right you’ll see a video of my arm moving from the E-STIM or TENS, that sends electrical shocks to wake up my nerve.✨

So today was my 4th appointment with my occupational therapist and not much has changed when it comes to my wrist, BUT my fingers are now at 0 which is normal and I’m so excited! He told me normally people get that or improve like that with the wrist first. But I’m doing it with my fingers first and he said that’s a good sign.

However because I’ve been having pain in my upper arm and thumb he wants me to take a break from doing my exercises. Because sometimes your body needs time to relax and heal. So no exercise this weekend. But I’m so happy things are getting better. It’s going slow but it’s getting better and I’m so excited about that.

He also fixed my brace because while I was wearing it it was hurting my bones and just felt uncomfortable, so he fixed it and added cushion to my brace. (If you swipe to the last two pictures you’ll see what I mean.) Oh and he also played Fall Out Boy for me during our appointment and it was so cool.

But that’s the update guys. I’m nowhere in getting function back with my wrist yet, but I am doing better and I’m so excited about that. And if you’re going through something similar or the same as mine. Please don’t give up. I know it’s hard. I know it’s frustrating. I know it suck’s. But I promise things will get better and we got this. And I will always be here for you guys. Always. If you have any questions please ask away and love you guys and thank you for allowing me to share my life with you! ♡♡♡
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The Mandalorian and Grogu 💫•So on Saturday I saw the Mandalorian and Grogu and omg I loved it! I even dressed up for it....
05/27/2026

The Mandalorian and Grogu 💫

So on Saturday I saw the Mandalorian and Grogu and omg I loved it! I even dressed up for it. I had to wear my Grogu (This Is The Way) t-shirt! And yes I decorated my purse but honestly it always looks like that! Let me know if you wanna see a what’s in my purse post or video and I’ll totally do one! I love seeing a “what’s in my purse” video! Oh and did I buy a cup…..yes. Yes I did! It’s so cool, I had to!

Oh and yes I took a few pictures of the movie and I don’t regret it even though, I know you’re not supposed to! But I love The Mandalorian and Pedro Pascal so much! I’m also a huge Star Wars fan if you guys didn’t know. I have so much Star Wars stuff! Let me know if you guys wanna see that too!

I know this is random but I wanted to share this with you guys because like I said I love The Mandalorian and Grogu! And I thought my outfit and purse was so cute that I had to share it lol! Again I know this is random, I just wanted to share this with you guys because I was so excited and it made me so happy to see the movie! Please let me know if you guys like post like this! Oh and a huge s/o to my boyfriend for dressing up with me and loving Star Wars like I do. I love him so much. But I love you guys and thank you for allowing me to share my life with you! ♡♡♡
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Brighton, MI
48114,48115,48116

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