The Norris Lab

06/04/2026

MUSC News recently highlighter the 2026 MUSC MIND conference featuring a full day dedicated to Ehlers-Danlos syndrome research and advocacy. To learn more about emerging research, go to MUSC News and search for the article “It was Never in Your Head: EDS Reaches a turning point” 💙

https://www.musc.edu/content-hub/News/2026/06/01/it-was-never-in-your-head-eds-reaches-a-turning-point

06/03/2026

What’s your EDS research question? Add it to our virtual whiteboard to inform future research directions! 🔬🧑🏻‍🔬🧫🥼👩🏽‍🔬🩺⚕️🐁👩‍💻📝

We want to hear from you!!

Go to thenorrislab.com to add your question!

***Quick note for mobile users: the whiteboard visual is only available on desktop, but you can still share your research question by typing it into the chat box at the bottom of the home page or the EDS research page. To draw on the virtual whiteboard, please use a desktop! 💙💛

06/02/2026

Celebrating Dr. Westbury, a postdoctoral scholar and wonderful addition to the Norris Lab team!!!

05/26/2026

Overview of a systematic review of vascular aneurysms in Ehlers-Danlos syndrome subtypes!

05/20/2026

Follow along as we talk to Norris Lab staff how they got involved in EDS research and which accommodations they tend to use or appreciate in the lab! Making things accessible helps everyone. Accessibility is inclusivity
❤️🧡💛💚🩵💜

05/19/2026

Check out our lunch and learn lecture on hypermobile Ehlers-Danlos syndrome! If you are a medical student interested in EDS and hEDS specifically, this free resource is available on The Norris Lab EDS Resources page or use the following link:

Our lunch & learn, “Is it Really That Rare? Rethinking hEDS in Everyday Practice,” brought together a room full of future clinicians ready to improve how Ehlers-Danlos syndrome is understood and treated.Dr. Norris introduced the Ehlers-Danlos syndromes, a group of connective tissue disorders tha...

05/19/2026

Quick breakdown about neurodivergence and hEDS / HSD from our global survey study on Diagnostic Challenges, Life-long Comorbidities, and Unmet Needs

05/16/2026

Every EDS subtype deserves answers.

Through our mouse repository, researchers worldwide can access genetically accurate EDS mouse models generated with CRISPR-Cas9 technology.

Providing the tools for researchers to enter the field can lead to accelerated new discoveries, additional funding opportunities, and improved care for patients.

05/15/2026

This EDS Awareness Month, here is a look into the long and complicated history of how the Ehlers-Danlos Syndromes have been named and classified. Throughout history, cultural beliefs and medical norms have shaped the politics of nosology. Each year, the field grows and pushes toward better diagnosis, deeper biological understanding, improved care, and clearer classification. We are excited to continue working on these conditions and for the implications of better diagnostics and care for patients.

05/14/2026

Congratulations to MD-PhD candidate Ranan Phookan for winning first place for his poster presentation at Weinstein Cardiovascular Development & Regeneration Conference