The Norris Lab

10/16/2026

Join us for the Norris Lab Research & Community Day! 💚

We’re hosting a free virtual webinar to connect with the patient and researcher community, share updates on our current projects, and talk about what’s ahead for hEDS research. Bring your questions for Dr. Chip Norris and our team by inputting them on the virtual question board at www.thenorrislab.com

🗓️ Thursday, November 5
🕐 1:00 to 3:00 PM ET
💻 Virtual

Register at thenorrislab.com or through the link in our bio.

10/16/2026

Register for our Norris Lab Research and Community Day and make sure you are signed up for our newsletter for updates!

We are looking forward to seeing you there!

10/15/2026

It’s officially spooky season in the Norris Lab.

10/14/2026

The Norris Lab has been up in Columbia the last two days working on Transmission Electron Microscopy for Tethered Cord Syndrome samples!

10/14/2026

The Norris Lab is holding a hypermobile Ehlers-Danlos syndrome research webinar on November 5th from 1-3 PM to discuss new research findings, ongoing projects, clinical collaborations, the patient-scientist model, & advocacy initiatives 💛 Please submit any questions you want Dr. Norris to answer to our virtual question board at www.thenorrislab.com at the bottom of the home page. Stay tuned for registration details. Will we see you there?

10/13/2026

Swipe to the end to see our questions! Comment your answers below :)

10/08/2026

Hey South Carolina! 👋 The Bobby Jones EDS, Chiari, and Syringomyelia Walk is coming to Charleston.

📍 MUSC Greenway
📅 Saturday, October 17, 2026
⏰ Festivities start at 3:30pm, walk begins at 5:30pm

So who was Bobby Jones? He was the most successful amateur golfer of all time, and he lived with syringomyelia, a rare neurological condition in which a fluid filled cyst forms inside the spinal cord. Over time it took his ability to walk. Reflecting on golf and life, he said: “You have to play the ball as it lies.”

The Chiari & Syringomyelia Foundation was founded in 2007 and took on the Bobby Jones name in 2019 in partnership with his family. Today, Bobby Jones CSF carries his legacy forward by funding research and education on Chiari malformation, syringomyelia, and related conditions like Ehlers-Danlos syndrome, POTS, and MCAS.

Come walk with us, enter the raffle, grab a snack, and connect with a community that gets it. Stop by The Norris Lab booth for research updates, educational resources, and goodies! 🦓

Swipe to learn more, and tag someone who should join you.

Registration: https://fundraise.givesmart.com/vf/26charlestonsc

10/07/2026

EDS+ COMMUNITY!!!!! We hope to see you at this year’s Bobby Jones’s unite4answers walk!
Register now at https://fundraise.givesmart.com/vf/26charlestonsc

10/03/2026

What is Vascular Ehlers-Danlos Syndrome?

VEDS is a rare, severe genetic disorder that causes very fragile tissues and a high risk for severe bleeding and internal injuries.

October is designated as Vascular Ehlers-Danlos Syndrome (VEDS) Action Month to raise global awareness of the condition, share personal stories, and drive action toward earlier diagnosis and better care.

Share your story or your solidarity below ❤️

10/02/2026

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