Prayers for Emma Claire

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Happy Easter! He is Risen!
04/06/2026

Happy Easter! He is Risen!

We would really appreciate prayers for Emma 🩷She’s had extra appointments, blood draws, and testing lately as her team w...
04/02/2026

We would really appreciate prayers for Emma 🩷

She’s had extra appointments, blood draws, and testing lately as her team works to figure out what’s going on and make a plan. While it’s been a lot, we’re thankful she’s being closely cared for and supported.

We’d be so grateful for prayers for wisdom for her doctors, peace for Emma, and continued strength and healing. We’re so grateful for your continued prayers and support. 💕

Up at 4:30am…2 pokes, 2 appts, and still smiling. This girl sure makes the best out of every situation 🩷Now time to head...
03/17/2026

Up at 4:30am…2 pokes, 2 appts, and still smiling. This girl sure makes the best out of every situation 🩷

Now time to head home, until next month!

Ready for a day at the hospital! 🩷
03/16/2026

Ready for a day at the hospital! 🩷

AWANA Grand Prix fun! 🏁🏎️Emma was so excited to make a Princess Aurora car and she even won 1st place for design! 💖👑
03/06/2026

AWANA Grand Prix fun! 🏁🏎️

Emma was so excited to make a Princess Aurora car and she even won 1st place for design! 💖👑

Made it to Seattle yesterday and Emma got her blood drawn last night. Now she’s ready for a day of appointments with the...
02/09/2026

Made it to Seattle yesterday and Emma got her blood drawn last night. Now she’s ready for a day of appointments with the heart transplant team! ❤️

February is Heart Month, and for our family, it’s a reminder of everything Emma has overcome. ❤️From hospital beds and t...
02/08/2026

February is Heart Month, and for our family, it’s a reminder of everything Emma has overcome. ❤️

From hospital beds and tubes to big smiles and double digits… so many prayers answered.💕

Congenital Heart Defect (CHD) affects 1 in 100 babies, and Hypoplastic Left Heart Syndrome (HLHS) affects 1 in 4,000 babies and our sweet Emma is one of those incredible heart warriors. From surgeries and hospital stays to a life-saving heart transplant, she has been through so much, and yet through it all has shown amazing strength and resilience.

She inspires us every single day with her joy, determination, and beautiful spirit. 💖

Please join us in raising awareness for CHD and supporting all the brave heart warriors and their families. 🫀❤️💙

02/06/2026

♥️ H A P P Y • H E A R T • M O N T H ♥️

February is HEART month and we celebrate our heart warrior and all of the heart warriors out there, and spread awareness about congenital heart defects! 💙❤️

Diagnosis:

Emma was diagnosed shortly after birth with hypoplastic left heart syndrome and an intact atrial septum.

Hypoplastic Left Heart Syndrome (HLHS) is a severe congenital heart defect where the left side of the heart is underdeveloped. Specifically, the left ventricle, which is responsible for pumping oxygenated blood to the body, is too small or completely absent. Emma’s was completely absent. The aortic valve, aorta, and sometimes the mitral valve are also underdeveloped or malformed. This results in the heart being unable to pump oxygenated blood efficiently to the body.

Intact Atrial Septum (IAS): In HLHS, there is typically a communication between the left and right sides of the heart, often through a hole in the atrial septum (the wall separating the two upper chambers of the heart). However, in cases with an intact atrial septum, there is no hole between the atria. This means that the right side of the heart (which is still functional) cannot directly send oxygen-rich blood to the left side.
This is a critical situation because with no communication between the atria, the blood flow is severely restricted. The heart is essentially "blocked" from effectively circulating oxygenated blood to the body. This is why Emma needed emergency open heart surgery the day she was born.

Survival rates for infants with HLHS/IAS are low, with some case series reporting survival rates of 35–50% at one year. And yet here we are 9.5 years later, watching our miracle baby grow up! We are so thankful!

It’s Wear Red Day! Who are you wearing red for today?We’re wearing red for Emma and all the heart warriors!! ♥️🫀        ...
02/06/2026

It’s Wear Red Day! Who are you wearing red for today?
We’re wearing red for Emma and all the heart warriors!! ♥️🫀

Flying into 2026 and preparing for many miles ahead! ✈️We started out January by making the big drive (6+ hours one way)...
01/23/2026

Flying into 2026 and preparing for many miles ahead! ✈️

We started out January by making the big drive (6+ hours one way) to Seattle to see a new specialist for Emma. We found out we will need to travel back every month or so this year…which is more than usual, but despite the challenges that adds, we’re trusting God and thankful she’s getting the care she needs!

We are also thankful that she’s living life to the fullest! Her highlight for this month was going winter camping in yurts with her AHG troop 💕

Merry Christmas from our family to yours! ❤️🎄
12/25/2025

Merry Christmas from our family to yours! ❤️🎄

Our miracle girl did an amazing job as Tiny Tim in A Christmas Carol this weekend 🩷
12/08/2025

Our miracle girl did an amazing job as Tiny Tim in A Christmas Carol this weekend 🩷

Address

P. O. Box 674
Clarkston, WA
99403

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