07/02/2026
July 1st, We had to hook Kasai back up to his concentrator yesterday evening. He’s on 3 and half liters. He’s been very j***y the last few days. It was causing him to sat low or have desats. We tried extra albuterol, tried saline treatments and everything we could before having to call his Pulmonologist. After going over everything we all agreed that hes probably having a flare up with the heat and already having colonized infections. We decided to treat with meds we know have worked in the past. He’s going on an antibiotic (Bacterium),a nebulizer treatment (Tobramycin), and than if he doesn’t get better in 3-5 days they sent Ciproflaxin which is a broad spectrum antibiotic that treats many things including respiratory tract infections. He’ll be on the Bacterium & Tobramycin for 7-10 days. We’re hoping these help. We also follow up with his pulmonologist on a tele-health visit on the 16th. She was talking about possibly doing a month on month off treatment with the Tobramycin considering he is colonized with bacteria’s and is prone to flare ups. We’re hoping this helps get him back on track. Thank you all for the continued love,support & prayers!
