Join Brynlee’s Battle

07/22/2026

Before Brynlee was diagnosed, I had no idea this world even existed.

I didn’t know the language of lab results, specialists, medications, or hospital stays. I didn’t know what it meant to hold your breath while waiting for test results or to celebrate numbers on a screen like they were birthdays.

Then everything changed.

Nothing prepares you for hearing your child’s name called back instead of yours. Nothing prepares you for watching your baby become the patient.

Somewhere between appointments, sleepless nights, endless questions, and learning how to advocate for a medically complex child, I became someone I never expected to be.

Some days I miss the version of me who didn’t know this life.

But then I look at Brynlee.

She has taught me what strength really looks like. She has shown me that courage doesn’t always roar—sometimes it looks like a little girl facing another needle, another test, another hard day with a smile that still lights up the room.

I never would have chosen this road.

But I’d walk it a thousand times over if it meant Brynlee gets to keep growing, laughing, and becoming exactly who she’s meant to be.

Every hard day is worth it for her. 🤍

07/21/2026

What an unforgettable night for our sweet Brynlee.

From the bottom of our hearts, thank you to every single person who bought a raffle ticket, stopped by to say hello, shared our fundraiser, donated, or simply prayed for our girl. Every act of kindness reminds us that we are not walking this journey alone.

Brynlee had the best evening. She is completely worn out from playing at the derby, enjoying all the fair food she could, and running around making memories. Seeing her smile, laugh, and just be a kid for a little while was something we’ll treasure forever. 💛

One of the sweetest moments of the night was watching Brynlee pick the winning raffle ticket herself on the track. It was such a special memory that we’ll never forget.

A huge, heartfelt thank you to Vanessa Shaw and Drake Dady and his friends for spending your evening walking around selling raffle tickets for our sweet girl. Your time, love, and willingness to help means more than words can ever express.

A special shoutout to Bryn’s Uncle Scott Cordle for proudly showing his love for Brynlee with the custom stickers on his car. It means so much to see so many people wearing their support for our little warrior.

Thank you Smash It Demolition Derby for putting on a one of a kind derby we all love to watch and making our girl the spotlight tonight!

Thank you PD Signs & Graphics for the door wraps, they were so perfect and stood out!!

And a massive thank you to Shane M Kuhns for creating the most incredible airbrushed helmet. It turned out absolutely amazing, and everyone couldn’t stop talking about how beautiful it was. Your talent and generosity helped make this fundraiser so special.

The love this community has shown our family has carried us through some of our hardest days.

Thank you for believing in our girl, for cheering her on, and for reminding her that she has an army standing beside her every step of the way.

We are forever grateful for each and every one of you. 💛🎗️

07/20/2026

07/20/2026

Today’s the derby!!!
Don’t forget to wear your shirts, buy your shirts, and buy raffle tickets for the two helmets we’re raffling off!! 🩷🩷

07/19/2026

Some days, leaving the house with a child who is nonverbal and has medical challenges feels like climbing a mountain.

My girl is different in her own beautiful way. Some days are exhausting, and some days are the most rewarding days I could ever ask for. The hard part is never knowing how the day will go whether she’ll want to explore, whether she’ll be too tired, or whether she’ll just need the comfort of home.

There are days when it feels incredibly lonely watching other children do things that my child can’t, or having to step away and do our own thing while everyone else is enjoying themselves. Those moments can be heartbreaking.

But no matter how hard it gets, I’ll always be her biggest advocate and her safe place. I hold onto hope that one day my sweet girl will find her voice, that we’ll get her medications figured out, and that she’ll be happier and able to show the world all that’s inside her.

Until then, we’ll keep taking it one day at a time celebrating every little victory and loving her exactly as she is. 💜

07/19/2026

DERBY IS TOMORROW!!
wear your shirt to support Bryn and buy tickets for the helmet raffle!!
We still have some left of some sizes if you still need one!! 🩷

07/17/2026

This week has been incredibly heavy for our family.

We’ve been at Nationwide Children’s Hospital every single day this week for appointments, meeting with doctors, going over test results, asking questions, and trying to understand everything that comes with Brynlee’s new diagnosis. It feels like every day brings more information to process, more decisions to make, and more uncertainty about what comes next.

As a mom, my heart just hurts.

Watching your child walk back through those hospital doors after everything she’s already been through is something I can’t even begin to describe. While I know Nationwide is where she receives amazing care, it also holds so much trauma for Brynlee. Those hallways, exam rooms, and waiting areas remind her of a time when she spent months fighting for her life.

You can see the fear in her now. She clings to me a little tighter. She’s more hesitant walking into appointments. She knows where she is, even at just two years old. It’s heartbreaking knowing that a place meant to help her also carries so many painful memories.

Some moments this week have felt overwhelming. There have been tears, long conversations with doctors, difficult questions, and so many emotions. We’ve left appointments mentally exhausted, trying to process everything we’ve been told while still showing up the next day to do it all over again.

Through it all, Brynlee continues to amaze me. Even on the hardest days, she still finds little reasons to smile. She still laughs, plays, and reminds me just how incredibly resilient she is. Her strength is something I’ll never be able to put into words.

Right now, we’re taking everything one appointment, one conversation, and one day at a time. We don’t have every answer yet, and that’s one of the hardest parts. We’re trusting her medical team, leaning on our faith, and believing God will continue to guide us through whatever lies ahead.

Please continue to pray for our sweet girl. Pray for wisdom for her doctors, for peace as we navigate this new diagnosis, and for Brynlee’s little heart as she walks back into a place that holds so much trauma for her. Most of all, pray that she continues to find the strength she’s shown since the very beginning.

Thank you to everyone who has checked in, sent prayers, and continued to love our family. Even when I don’t always respond, please know every message means more than you know.

One day at a time. That’s all we can do. ❤️🎗️

07/15/2026

An update on our sweet Brynlee. 💜

Today we finally got the answers we’ve been searching for.

Brynlee has officially been diagnosed with ACTH deficiency (secondary adrenal insufficiency). This means her body is not making the ACTH hormone that tells her adrenal glands to produce cortisol, a hormone her body needs to live and respond to illness, injury, and stress.

Because of this, Brynlee will need to take cortisol replacement medication three times a day, and right now we’ve been told she’ll likely need it for the rest of her life.

This is a very serious diagnosis. If her body doesn’t have enough cortisol especially when she’s sick, injured, or under physical stress she can go into an adrenal crisis, which is a life-threatening medical emergency. We’ll have to be extremely careful anytime she gets sick, and we’ll always need to make sure she gets the medication her body can’t make on its own.

As heartbreaking as it is to add another diagnosis to everything she’s already been through, we’re thankful we finally have answers. Looking back, it explains so much why she’s been so tired, moody, and not feeling like herself.

Our girl just keeps proving how strong she is. She’s already fought brain cancer, chemotherapy, radiation, and so much more, and now we’re learning how to manage another lifelong condition. We’ll take it one day at a time, just like we always have.

Please continue to pray for Brynlee as we adjust to this new normal. Pray that her medication works well, that we quickly learn how to manage this safely, and that our sweet girl continues to smile, play, and be the incredible little fighter she is.

Thank you all for loving Brynlee and walking this journey with us. Your prayers, messages, and support mean more than words could ever express. 💜🎗️

07/15/2026