08/27/2026
The prep needed to get Dylan ready for school starts in July. I have to reach out to each of Dylan’s 10 specialists to request updated plan of care forms, as well as seizure plans, and any other letters or directions to be updated for the school year.
I start early because depending upon the physician-their office, vacations, their patient load, etc. it could take up until today for me to get all the forms back, which is what happened in this instance.
I have to make copies and make a binder for the nurses, the bus, the school and I have to have my own copies on file.
I also have to update and laminate all of the new plans that go on the back of his wheelchair
In addition to all of that, we have to store all of the equipment that we use at school and then basically try to set up a private room for Dylan at school with all of his equipment and Medical needs. Its the equivalent of a dorm move in.
We did that today.
I couldn’t have done it without the help of my husband, lifting all the heavy things, in our caregiver and Dylan’s health aid, Brooke. Who made it so organized and helped me pack everything up yesterday after work. And then helped us unpack and decorate today. 
Pretty much everything in the room is provided by us. All of the medical equipment we paid for. All of the decorations. Me.
I do this because having him in school is what is keeping him going, and I truly believe that him being included gives him something to look forward to and is vital to his mental health.
Looking forward to a great start!
