Dementia Aide

08/14/2026

There’s a moment when you realize the roles are starting to shift and your loved one may need you more than ever.

I’ll never forget when it happened to me - my stomach dropped, and I remember thinking, “You’re going to have to step in.”

I felt heartbroken. Responsible. Overwhelmed. Obligated....Compassion.
All at once.

It’s a lot to carry.

So if you’re in that moment right now, be kind to yourself. You’re doing your best.

And you don’t have to figure it all out alone. We created a free, 24/7 Discord community where caregivers and families can ask questions, share the hard moments, or just be around people who get it.

https://discord.gg/QWspcXPWdU

Follow us for support, kindness & community.

08/10/2026

What’s new in dementia research and what does it mean for you? 🧠

About a month ago, I attended one of the world’s largest Alzheimer’s and dementia research conferences…and there was a lot to feel hopeful about.

Here are the updates I would want to make sure you know!

Let me know what y’all think about my nerdy glasses 🤓 … do they make you take me more seriously?

Alzheimer's Association National Down Syndrome Society

08/02/2026

Big life moments can bring the biggest waves of grief. ❤️

When my husband and I got married, there was one person I wished could have been there more than anyone...my dad.

While nothing could replace his presence and I was really nervous that I'd be an emotional wreck... finding small, meaningful ways to honor him and others that had passed made the day feel a little more complete and gave me a deep sense of peace.

If you're planning a wedding, graduation, baby shower, or another milestone after losing someone you love, I hope this gives you a few ideas, and reminds you that it's okay to celebrate while still missing them.

You don't have to choose between grieving someone you love and having a beautiful day. You deserve both.

Here are some easy ones:
-Wear something they gifted you or reminds you of them
-Leave an open seat or space for them
-Display photos of them. This became one of my favorite parts of our wedding because it sparked conversations and gave our guests a chance to learn about the people who shaped our lives.
-Take some quiet time during the event to connect with them

There are countless more we did and that I can share with you, I'll get a blog post up in the next days on the site for you to check out.

07/29/2026

👏👏👏

The Lewy Body Dementia Association (LBDA) is proud to announce a $2.5 million grant to the Glenn Biggs Institute for Alzheimer’s and Neurodegenerative Diseases at UT Health San Antonio to lead Clin-Syn, a national, multi-site study designed to advance the detection and diagnosis of dementia with Lewy bodies (DLB).

“Clin-Syn is more than a biomarker study; it is a strategic investment in the evidence infrastructure the Lewy body dementia field urgently needs. By determining what emerging alpha-synuclein tests actually measure, how they relate to symptoms and coexisting Alzheimer’s pathology, and how they can be used in real-world clinical and research settings, this initiative can help move us from diagnostic uncertainty toward earlier, more precise diagnosis and better-designed clinical trials. Most importantly, it brings us closer to a future in which people living with Lewy body dementia can be identified sooner and matched to the right care and, ultimately, the right treatments.” — Sudhir Sivakumaran, PhD, Chief Scientific Officer, LBDA.

Clin-Syn will evaluate multiple emerging alpha-synuclein biomarker tests alongside Alzheimer’s disease biomarkers, clinical symptoms and participant perspectives. The study will enroll 125 participants across four expert research centers: UT Health San Antonio, the University of Florida, the University of California San Francisco and Virginia Commonwealth University.

The project will also create a high-quality, open-access repository of biological samples and clinical data to support future biomarker validation, diagnostic research and therapeutic development in DLB.

This landmark initiative reflects LBDA’s commitment to tackling the practical barriers that have slowed progress in LBD: diagnostic uncertainty, limited biomarker validation, mixed disease pathology and the need for more precise, trial-ready patient populations.

Learn more about Clin-Syn: https://ow.ly/gEV950Zut04

07/24/2026

Hits home.

Don't fill your cup with the opinions of people who have never carried the weight of your responsibilities. It's easy for others to judge your choices when they haven't faced your struggles, paid your bills, cared for your family, or walked through the sleepless nights you've endured. Advice is valuable, but not every opinion deserves a place in your mind.

The people who truly understand your journey are often the ones who know how heavy the load can be. Protect your peace by listening less to criticism from the sidelines and more to the wisdom you've gained from living your own life.

— Cyyyy

07/23/2026

The new research carries more weight for people who are in the middle of their lives 🚨

07/21/2026

One of the biggest mistakes I made as a caregiver was believing I had to carry everything myself.

I thought asking for help meant I wasn't doing enough.

Looking back, I wish I had reached out sooner.

Care is meant to be shared. The more support you have, the longer and better you can show up for the people you love. ❤️

Follow 🔔, Subscribe & Like ❤️

07/16/2026

There are things you can do but not if you don’t have the info!

Get the latest info on how to prevent, manage and treat directly from the Alzheimer's Association through the Free and Virtual AAIC for all conference.

07/16/2026

Today is the day! Join the free and virtual Alzheimer's Association conference curated for you and your family to find out first hand the latest research in Alzheimer’s, other Dementias, Brain health and women’s health.

Link to the conference is in the bio or here below for you to copy:

https://www.alz.org/aaic-for-all

You can get access to the content for 30 days after today as well so you can take your time and go at your own pace.

07/14/2026

If you want to be in the front lines of the information, this Thursday the is hosting a completely free and virtual conference specifically for people with dementia and their caregivers / care partners.

It is not only for Alzheimer’s - they also focus on other dementia’s and even new ground breaking research on Down syndrome and menopause.

This is where they will translate all the deep nerdy science 🔬🧬🤓 into practical language for us non-researchers to hear and implement. They’ll talk about what the science is saying (positive or negative) and any advancements in treatments and interventions that we should know about.

It’s called AAIC For All: Community.

I put the link for you to register in my bio or use this link which will take you to the Alzheimer’s association website to register.

https://www.alz.org/aaic-for-all