The Vanishing Family

08/26/2026

The New York Times has named THE VANISHING FAMILY as one of the books everyone will be talking about in 2026!

From the bestselling author of HIDDEN VALLEY ROAD comes a deeply moving story of one family's unimaginable fate: a 50% chance of inheriting a rare form of FTD (frontotemporal dementia). This powerful narrative of resilience and discovery may help unlock new breakthroughs in the prevention and treatment of all dementia.

Pre-order your copy today! On sale 9.29.

08/14/2026

On shelves next month and you can pre-order now! Bob Kolker masterfully captures the heartwrenching story of our family's journey with genetic FTD and our quest to end dementia, together with Cure MAPT FTD.

The New York Times has named THE VANISHING FAMILY as one of the books everyone will be talking about in 2026!

From the bestselling author of HIDDEN VALLEY ROAD comes a deeply moving story of one family's unimaginable fate: a 50% chance of inheriting a rare form of FTD (frontotemporal dementia). This powerful narrative of resilience and discovery may help unlock new breakthroughs in the prevention and treatment of all dementia.

Pre-order your copy today! On sale 9.29.

07/19/2026

If you are part of a MAPT family and in the U.S., please sign up to participate in the ALLFTD study

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

04/09/2026

Pre-order now. Available end of September, 2026.

https://www.instagram.com/p/DV1DBF8FQFm/?igsh=MWh5bXJ1OWZzcmY1Yw==

03/14/2026

Cure MAPT FTD Cure MAPT FTD

Medicaid is changing, and rare disease patients and families need to be prepared. Starting January 2027, some recipients may need to show work, school or volunteer hours to maintain coverage.

Join NORD's webinar where we’ll cover:
✅ How these rules will be rolled out
✅ Our advocacy to ensure uninterrupted access to care
✅ How you can make your voice heard in your state

Don’t navigate this alone. Together we can protect healthcare access for rare patients. Register for the webinar here: https://bit.ly/4daFpFi

12/03/2025

Every dollar donated to Cure MAPT FTD in December is matched one-for-one, up to $15,000. Join the movement today and double your impact.