Spina Bifida Association of California

Home
United States
Fort Myer, VA
Spina Bifida Association of California

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Spina Bifida Association of California, 2000 Duke Street, Suite 300, Fort Myer, VA.

The Spina Bifida Association of California (SBA of CA) is an organization dedicated to building a better and brighter future for all people impacted by Spina Bifida.

08/07/2026

💙 Better care starts with better education.

When you support Walk-N-Roll, you're helping the Spina Bifida Association equip healthcare providers with the knowledge they need to better serve adults living with Spina Bifida.

Through SBA's primary care curriculum, providers learn how to:
✔️ Understand the unique healthcare needs of adults with Spina Bifida
✔️ Recognize when specialist referrals are needed
✔️ Improve communication by addressing cognitive and health literacy challenges
✔️ Support access to preventive screenings in accessible healthcare settings

By strengthening the knowledge of primary care providers, we're helping improve access to quality care and better health outcomes for adults with Spina Bifida.

Join us in making an impact. Register for Walk-N-Roll today: https://vist.ly/5dyx4

08/07/2026

⏰ Today is the final day to share your story.

If you or a loved one has been impacted by access to urologic or ostomy supplies, now is the time to speak up.

Your story can help lawmakers understand what's at stake. The proposed CMS competitive bidding program could limit product choice, delay access to medically necessary supplies, and force substitutions that may not meet an individual's unique needs.

The right supplies help prevent complications such as UTIs, kidney damage, skin issues, pain, and hospitalizations—and support independence and quality of life.

Don't miss this opportunity to make your voice heard. Comment below or send us a DM before the end of the day.

Your story may be featured in a thumbnail page of testimonials included in advocacy packets for members of Congress, as well as future advocacy social media posts, helping ensure lawmakers hear directly from the people and families they represent.

Every story matters. Every voice makes a difference.

08/06/2026

Your Voice Can Help Build More Inclusive Playgrounds. 🛝💙

Did you know that inclusive playgrounds benefit all children? They create opportunities for kids of all abilities to play, learn, build friendships, and grow together.

If you've ever wanted to advocate for more accessible play spaces in your school or community, this session is for you.

Join us to learn practical strategies for working with schools, parks departments, and community leaders to help make inclusive play a reality for children with Spina Bifida and other disabilities.

📅 August 20, 2026
⏰ 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
🔗 Register today: https://vist.ly/5cnje

08/05/2026

We're excited to recognize Coloplast as the 2026 Walk-N-Roll Season Snack Sponsor! 🎉

As our Season Snack Sponsor, Coloplast's support will be recognized at the snack table during every Walk-N-Roll event throughout the season.

We're grateful for partners like Coloplast whose commitment helps make Walk-N-Roll possible and helps strengthen the Spina Bifida community.

💙 Join us in thanking Coloplast in the comments, then register, donate, or start a team to help create a better and future for all those impacted by Spina Bifida.

🔗https://vist.ly/5dqpp

08/05/2026

⏰ Only 2 days left to share your story!

The proposed CMS competitive bidding program could limit access to the urologic and ostomy supplies that people with Spina Bifida rely on every day.

Delays in receiving supplies, fewer product choices, or being forced to switch to products that don't meet your needs can have serious consequences—including UTIs, kidney damage, skin complications, pain, loss of independence, and even hospitalization.

Whether you're a person living with Spina Bifida, a family member, caregiver, clinician, or supporter, your voice can help educate members of Congress about what's at stake.

📣 Share your story by August 7. Comment below or send us a DM to tell us why protecting access to medically necessary supplies matters to you.

Your story may be included in advocacy materials shared with members of Congress and featured in future advocacy social media posts. If shared, only your first name and last initial will be used.

Together, we can help ensure lawmakers hear directly from the people, families, and communities whose lives depend on access to the right supplies.

08/02/2026

🚨 Your voice can make a difference.

For people living with Spina Bifida, having access to the right urologic and ostomy supplies isn't a convenience—it's essential to staying healthy, independent, and active.

A proposed CMS competitive bidding program could reduce access to the catheter and supplies that best meet your unique needs. Being forced to switch products or experiencing delays in receiving supplies can put your health at risk.

The consequences can include:
• Urinary tract infections (UTIs)
• Kidney damage
• Skin breakdown and complications
• Leaks and discomfort
• Pain and loss of independence
• Preventable hospitalizations

Congress needs to understand what's at stake for individuals and families in the Spina Bifida community.

📣 Share your story by August 7. Comment below or send us a DM to tell us why access to the right supplies matters to your health, independence, and quality of life. By speaking up, you're not only advocating for yourself—you’re helping protect access to essential supplies for your friends and others across the Spina Bifida and disability community.

08/01/2026

📚✨ Today’s the day! ✨📚

Join us tonight at 7 PM ET for a special family-friendly webinar with Kelly Jeffers, author of I Might Be Just a Little Bit Different! 💙

Bring your children and join Kelly as she reads her inspiring book, shares her journey living with Spina Bifida, and answers questions from attendees.

Through her story, Kelly shares a message of hope, love, and determination while celebrating the beauty of what makes each of us unique.

💙 We can’t wait to see you there!

Join us on Zoom:
https://vist.ly/5d97m

07/31/2026

💙 Walk-N-Roll fuels advocacy.

Every dollar raised through Walk-N-Roll helps advance the Spina Bifida Association's mission, including advocacy efforts that empower individuals, families, and healthcare providers to make their voices heard.

Thanks to your advocacy, $7.5 million in federal funding was secured this year for the National Spina Bifida Program, which supports research, improves clinical care, identifies best practices through the National Spina Bifida Patient Registry, and helps improve health outcomes for people living with Spina Bifida.

When you register, fundraise, and support Walk-N-Roll, you're doing more than participating in an event—you’re helping advance research, improve care, and create lasting change for the Spina Bifida community.

Join us at Walk-N-Roll and help fuel the advocacy that moves our mission forward. Register today: https://vist.ly/5d7rn

07/30/2026

Your Advocacy Can Make a Difference

The proposed CMS competitive bidding program could limit access to the urologic and ostomy supplies that people with spina bifida rely on every day.

Limiting product choice, delaying access, or requiring substitutions can have serious consequences, including UTIs, kidney damage, skin complications, pain, loss of independence, and even hospitalization.

Whether you're a person with spina bifida, family member, caregiver, clinician, or supporter, your voice can help educate members of Congress about what's at stake.

Share your story—or tell us why protecting access matters to you—by August 7. Comment below or send us a DM.

Your story may be featured in a thumbnail page of testimonials included in advocacy packets for members of Congress, as well as future advocacy social media posts supporting efforts to protect access to medically necessary urologic and ostomy supplies. Only first name and last initial will be used when your story is shared.

Together, we can help ensure lawmakers hear directly from the people and communities they represent

07/30/2026

⏰ Just a couple days away!

Join us Saturday, August 1 at 7 PM ET for a special family-friendly webinar with Kelly Jeffers, author of I Might Be Just a Little Bit Different! 📚💙

Born with Spina Bifida, Kelly has spent her life breaking barriers and showing what is possible. From her years as a nationally ranked disabled ski racer to her work in human rehabilitation, Kelly brings a powerful message of hope, love, and determination.

During this webinar, Kelly will read her children’s book, share her story, and answer questions from attendees. Bring your children and join us for a meaningful conversation about celebrating differences, building confidence, and seeing the possibilities in every person.

💙 Don’t miss this special opportunity to connect with Kelly and hear the story behind I Might Be Just a Little Bit Different!

Join Zoom Meeting on August 1:
https://vist.ly/5cz3x

Address

2000 Duke Street, Suite 300
Fort Myer, VA
22314

Website

http://www.spinabifidaassociation.org/

Alerts

Be the first to know and let us send you an email when Spina Bifida Association of California posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Want your practice to be the top-listed Clinic in Fort Myer?