Stand With Lilah

Stand With Lilah 𝐊𝐚𝐭𝐞𝐥𝐲𝐧𝐧 (Lilah’s Mom)
🎗 Childhood Cancer Advocate
💛 Founder of Forever Us Foundation
📸 Owner of Graceful Moments Photography LLC
(17)

06/08/2026

She begged for these hair clips at the store. It’s these moments that I just love getting to see her experience new things. It’s very healing for us. Cancer took away many experiences but nothing is forever. God is good and she is getting to experience all the things she missed out on. 💛🎗

Here’s a day I hope to celebrate for many more years to come. 💛🎗Lilah is a CANCER SURVIVOR! Lilah was diagnosed with a g...
06/07/2026

Here’s a day I hope to celebrate for many more years to come. 💛🎗

Lilah is a CANCER SURVIVOR!

Lilah was diagnosed with a grade 4 brain tumor at just 18 months old. With just 50% chance of survival, she immediately underwent aggressive treatment. Brain surgery, 5 rounds of chemo (three of which included stem cell transplant), and 6 weeks of proton radiation. That’s a lot for a little girl to endure. But she did and she is now living as a CANCER SURVIVOR! Survivorship doesn’t mean the journey is over but it is a great thing to celebrate.

Lilah’s next scan is in a week. We really live scan by scan because of the aggressive nature of Lilah’s cancer. But we are hopeful for good results. Our God is good and no matter what good will come.

06/06/2026

We’re less than 10 days out from our next scan so I’m a little nervous.

✨I want to go back✨Our make a wish trip was so blissful. We had a blast as a family. Seeing our kids so excited about ev...
06/04/2026

✨I want to go back✨

Our make a wish trip was so blissful. We had a blast as a family. Seeing our kids so excited about every little thing helped bring the magic back into our lives. Tyler and I felt like kids again. Staying up late, eating too much ice cream and pizza, buying whatever souvenirs made our girl happy. It was so much fun.

Last year when we were in the middle of chemo, watching Lilah puke, I was not thinking of this moment. I could barely see past that day, past that moment. We watched her little body get pumped with literal poison in hopes to save her life. We watched her become too weak to walk or to even get out of bed. We watched our ONE YEAR OLD fight for her life.

But here we are a year later. A place I was too scared to think of. And it is magical. Having this trip as a family to just HAVE FUN was much needed. Not once did I think about the cancer while on the trip. Not once did I think of her upcoming scans. Not once was I worried for our girl. We just had fun.

Thank you Make-A-Wish America and Give Kids The World for giving our family something we desperately needed. If I could relive this trip over and over again, I would.

06/02/2026

I told myself I wasn’t going to fall into the scanxiety this time but here we are. Just like clockwork my body tenses up. My mind starts to flood. My eyes filling up with tears. I can feel the days counting down. The reality creeping up on me.

The past three months have been so blissful. We have had nothing but pure joy. Lilah has been thriving. So it only makes sense that it will all come crashing to a halt.

Yes I know these thoughts are nothing but anxiety. Doesn’t mean they are easily silenced. You won’t tell me anything I don’t already know. I am a follower of Christ. I pray. I know. But I am also human and it’s not so easy to just “shut off” your anxiety. Especially when you’ve been anticipating your child’s death for over a year. We are hopeful Lilah is a long term survivor. But doesn’t leave us anymore scared on the journey to get there.

06/01/2026

I’m glad her wish came true ✨💛

It’s so cool that I got to meet the wonderful  tonight and get a copy of her book Birth Vibes! It’s even cooler that she...
05/29/2026

It’s so cool that I got to meet the wonderful tonight and get a copy of her book Birth Vibes! It’s even cooler that she had heard of our story. Can’t wait to read the book and prepare for our third baby’s arrival 💛 praying this delivery is uneventful

Some of my favorite photos from our ✨wish✨ trip! Lilah had a blast and we had a blast watching her. It was magical (and ...
05/28/2026

Some of my favorite photos from our ✨wish✨ trip! Lilah had a blast and we had a blast watching her. It was magical (and sweaty). So glad her and William got to experience this together.

05/28/2026

Thankfully I didn’t actually catch on fire while in Florida. I did sweat buckets though 🥵

Address

3334 West Friendly Avenue Suite 103
Greensboro, NC
27410

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