Roaring For Eli

09/06/2026

Myrtle Beach bound! 🌊☀️🦁

After this long past week, we are more than ready for some beach time, fun, and making sweet memories together. Eli couldn’t be more excited, and seeing him this happy makes out hearts so happy. 🩶

Here’s to a great trip with our favorite little lion. 🦁🌊

09/04/2026

GOD IS GOOD 🙌

We got Eli’s MRI results back and his scan is STABLE compared to his MRI from July. 🙏🩶

We honestly don’t even know how to put into words what it feels like to hear that right now. We have been so scared going into this MRI, especially with it being his first one since finishing radiation, and we have prayed and prayed for good news.

And today, stable is good news.

There are still so many unknowns with everything and we know we still have a long road ahead, but today we are just thanking God. Thanking Him for carrying Eli through everything he has already been through and thanking Him for giving us this little bit of good news that we have been praying so hard for.

We have asked God so many times to please give us more time with our boy. More days. More memories. More normal moments together. And right now, we are just so grateful.

Please keep praying for Eli. Keep praying that things stay stable, that his little body keeps healing from radiation, and that God continues to guide every decision and every step from here.

We know this journey is completely out of our hands, but it is not out of His. ✝️

Keep Roaring for Eli 🦁🩶🧠

09/04/2026

09/04/2026

He is back in our arms. Please say big prayers for the appointment we are walking in to. ✝️🩶🧠🦁

09/04/2026

I know we just made a post but we wanted to also share this.

We are sitting here waiting on Eli's MRI results, and the fear and the anxiety have been almost more than we can carry today.

And then I looked down and found this little painted rock. A smiling avocado, I flipped it over and it said "Nora's Journey. Share me!"

Somewhere out there is another family walking their own hard road, and instead of folding into it, they're painting little rocks and leaving them out in the world for strangers to find. Today that stranger was me, sitting in a hospital trying to hold it together.

It was such a small thing, and it wrecked me in the best way. We are not alone in this. We are not the only family living through something unimaginable right now, and there are people out there who know exactly what this kind of waiting feels like.

I wouldn't wish this on anyone. Not one single family. But there is a real comfort in knowing others understand, and that they're still standing, and that they still have enough left over to hand a little hope to someone else.

Thank you, Nora's Journey. Thank you for leaving this rock, for sharing your journey, and for giving our family hope.

So we keep fighting. We keep hoping. We keep praying. And this little guy is going back out into the world soon to find whoever needs him next.




Nora’s journey

09/04/2026

There’s a kind of fear that comes with MRI day that is hard to explain unless you’ve lived it.

It’s waking up with a pit in your stomach.

It’s watching your child go without food or drinks because they have to be put under anesthesia.

It’s trying to stay calm for them when inside you are terrified.

It’s kissing them before they’re taken back and putting your whole world into someone else’s hands.

Then comes the waiting.

Waiting for them to fall asleep safely.
Waiting for the MRI to be finished.
Waiting for them to wake up.
Waiting for the doctor.
Waiting for the results.

And somehow, every minute feels longer than the one before it.

Because an MRI isn’t just a scan when it’s your child.

It can hold answers about whether treatment worked.
Whether things are stable.
Whether something has changed.
What comes next.

And all the while, your child is just being your child.

They may be asking for a snack, wanting their favorite show, talking about what they want to do later — while you’re sitting there knowing the words that come after that scan could change everything.

That part is hard.

Trying to stay present in the moment instead of living ten steps ahead. Trying not to let fear steal the time you have right in front of you.

It holds so many hopes, fears, prayers, and what-ifs all at once.

As a mom, you want so badly to take every hard thing away from your child, and MRI days are another reminder that there are some things you simply cannot fix for them.

So you hold their hand.
You smile when you want to cry.
You pray harder than you ever thought possible.
You remind yourself that God is already in the room you’re afraid to walk into.

And you wait.

To every parent who knows this feeling, I see you.

Sometimes the waiting is one of the hardest parts of all. 🙏🩶🦁🧠

09/04/2026

Eli got the sweetest surprise in the mail today, and it came at such a perfect time. 🥹🦁🎶🧠

Aaron and Kara Days, if you happen to see this, thank you from the bottom of our hearts. Eli has always loved music and playing different instruments, so this was such a thoughtful gift. Seeing his little face light up when he realized his lion was on it made it even more special. 🩶

We are also back home from the hospital and so thankful to be here. Tomorrow is a big day for us — Eli has his MRI, his first MRI since finishing radiation. There are definitely a lot of emotions going into tomorrow, and we are praying so hard for encouraging results and for the best possible outcome from everything his little body has been through.

Please keep our sweet boy in your prayers tonight and tomorrow. Pray that the MRI shows that the radiation did what we hoped it would, that things are stable or a miracle, and that God gives us peace and strength for whatever comes next. 🙏🩶

Aaron and Kara, thank you again for putting such a big smile on his face today. It truly meant more than you know. 🦁🩶🧠

08/31/2026

We’re back at Children’s with Eli.

Earlier today, he started having uncontrollable trembling on the right side of his body, and they believe he may have had a focal seizure. His CT scan is also showing a little more fluid buildup and swelling/edema.

Right now, we’re waiting to find out if they want to drain the fluid again and if they’re going to move up his MRI so they can get a better look at everything.

Thankfully, he’s doing okay right now and is back to himself for the most part — besides repeatedly letting us know that he wants to go home. 🩶

Please keep praying for our boy and for answers, wisdom for his doctors, and that everything stays stable. We appreciate every prayer more than you know. 🙏🦁🩶🧠

08/24/2026

Hey everyone, Eli’s dad here. I should’ve made this post earlier and I apologize for that.

Last night was one of the most unforgettable nights of our lives. Seeing so many people there to support our son, and him being able to see the support he has, still gives me chills.

Thank you to everyone who showed up for our family and our boy. To my sister, and to our family and friends who we consider family, thank you from the bottom of my heart. You all worked so hard to make last night possible. When things got hard, you just got tougher, and you carried us through it. Thank you to Pohlman Lanes, and to everyone who contributed baskets.

Everyone’s collective generosity is what allows us to keep spending as much time with our baby as possible while making sure he has everything he needs. For that I cannot thank you all enough. Words cannot describe how grateful our family is.

Thank you as well for the continued prayers and well wishes for Eli

I tried tagging as many people as possible, if you weren’t tagged just know I tried and it wouldn’t let me 😅 but we still love and appreciate you all!🩶🧠🦁✝️