Prayers for Destiny

09/05/2026

09/03/2026

❤️💙 Did you know… ❤️💙

08/26/2026

First Day of 5th Grade for Destiny! Time needs to slow down. 🏫♥️🥹

07/20/2026

07/07/2026

This is a question I receive frequently. “Will her CHD go away as she gets older?”

07/01/2026

I saw this in a CHD group I’m in and it hit spot on. So I wanted to share.

One of the hardest parts of living with complex CHD is that so much of the battle is invisible.

People see a smile.
They see laughter.
They see a child playing.

What they don’t see are the medications, the appointments, the sleepless nights, the constant monitoring, the anxiety before every echo, and the uncertainty that never truly leaves.

A child doesn’t have to “look sick” to be fighting one of the biggest battles of their life.

We don’t expect everyone to understand every diagnosis or every surgery.

We simply hope they’ll understand this:

❤️ A smiling child can still be seriously ill.
❤️ Stable doesn’t always mean healthy.
❤️ Invisible doesn’t mean imaginary.

Be kind. Be compassionate. You never know what a heart family is carrying behind that smile. 💙 ❤️

06/23/2026

Last Day of School for this girl. ✏️ 🗒️ 📚
✌️out 4th grade

06/09/2026

Bring on Summer vacation! 🌞🌊🏖️🐚

05/27/2026

Most people think CHD ends after surgery.

I need you to understand why that is one of the most painful things a CHD family can hear.

They mean well.

They say things like —
she had her surgery right?
So she is all better now?

And you smile.
Because explaining it would take longer than they are prepared to listen.

But here is the truth.

Surgery is not the finish line. Nowhere close.

Surgery is just the beginning of a lifelong road that most people never see.

After surgery comes —

The follow up echos.
The cardiology appointments that never stop.
Not in childhood.
Not in adolescence.
Not in adulthood.
Never.

The medications that become as routine as breakfast.

The pulse oximeter that lives on the nightstand because your nervous system does not know how to sleep without knowing the number.

The developmental delays.
The speech therapy.
The occupational therapy.
The IEP meetings where you have to explain the heart before you can explain anything else.

The secondary conditions that develop over time.
Heart failure.
Arrhythmias.
Kidney failure.
Liver disease from years of altered circulation.
Exercise intolerance that follows them into adulthood.

The anxiety that lives in the body of every CHD parent who knows that stable is not the same as safe.
That a good echo today does not guarantee a good echo next year.
That things can change fast.
Because they have changed fast before.

Surgery gave our children a chance.

A beautiful.
Hard fought.
Miracle of a chance.

But it did not cure them.

It did not close the file.
It did not reset the clock.
It did not give them the same road as every other child.

It gave them their road.

A road with more appointments and more unknowns and more courage required than most people will ever have to find.

These children are not fixed.

They are fighting.

Every single day.
For the rest of their lives.

And they deserve a world that understands that.

Share this so the people in your life finally understand what CHD really means.