That Medical Mom

That Medical Mom A high-energy group that will make any party an astounding success! The highest caliber of musicians, professional, & courteous!

Our repertoire covers everything from the latest Top 40, Motown, Jazz & Swing, Classic Rock, 60's 70's 80's 90's, R&B and Soul. We believe that versatility is key when your looking for a band capable of entertaining multiple generations of guests who enjoy a variety of musical genres.

07/15/2026

Behind every joke is a reality most people never see. We laugh because sometimes that's the only thing keeping us from crying. And honestly? If ever does make a documentary about raising a child with a rare disease in America, it'll probably be a comedy, a thriller, and a horror film all rolled into one.

07/15/2026

What started as a mom simply trying to tell her daughter's story has grown into opportunities to amplify the voices of so many families raising children with rare diseases, disabilities, and medical complexities.

This month, I'm incredibly honored that Evely is featured on the cover of the July edition of and even more honored that I was asked to write the cover story.

There is something incredibly full circle about being trusted to tell a story I've spent the last decade living.
To every family who has trusted me with your story, shared your journey, or found comfort in ours, this belongs to all of us.✨️💚

I am pretty sure my "laugh so I don't cry" laugh is bordering on manic at this point. 😅We're here at MUSC this week, an...
06/02/2026

I am pretty sure my "laugh so I don't cry" laugh is bordering on manic at this point. 😅

We're here at MUSC this week, and literally all of Evely's specialty doctors are here except for one.

One.

Guess which specialty our emergency last night fell under?

Yep. The one doctor who isn't here.

You truly cannot make this stuff up.

Sometimes I think medical mom life exists in a category all its own because the odds of these situations are so ridiculous that if they happened in a TV show, people would complain that the writing wasn't realistic.

And yet... here we are.

Thankfully, we're being cared for by an incredible team, but I'd be lying if I said this week hasn't been a lot. The exhaustion, the uncertainty, the constant pivoting all adds up.

So, again, if you pray, pray. If you send good vibes, send them. If you light candles, meditate, speak intentions, or simply hold people in your thoughts, we'd be grateful for that too.

We're taking it one moment at a time over here. ✨️

We’re spending the bulk of this week here in Charleston having a lot of important conversations about what Evely’s futur...
06/01/2026

We’re spending the bulk of this week here in Charleston having a lot of important conversations about what Evely’s future may look like now that we finally have a genetic diagnosis. We’ll also be discussing and planning for surgeries she will need in the near future.
There’s something very emotional about moving from the undiagnosed part of the journey into the diagnosed one. In some ways, there is relief in finally having answers after so many years. But there’s also grief, uncertainty, processing, and a whole new chapter of decisions ahead of us.
If you pray, please pray for wisdom, guidance, discernment, peace, and the right people to surround us as we navigate this next part of the journey for our girl. 🩷

05/27/2026

FYI non-speaking does not mean non-sassy 😭

People really think non-speaking means they don’t communicate, meanwhile my girl can convey annoyance, sarcasm, boundaries, and “don’t play with me right now” with incredible accuracy.

We had a little moment today, followed by a little check-in and a peace treaty kiss 🤍
Disability parenting is heavy sometimes, but the humor in it all has carried me through so many hard days. And one thing about Evely… she is absolutely going to make her feelings known one way or another. 🤌🏿😂

05/22/2026

Yesterday, I had the honor of speaking during a virtual conference with and Stanford Center for Continuing Medical Education about the pros and perils of virtual engagement for families navigating medical complexity and rare disease.

One of the things I felt most important to say was this:

Families aren’t always turning to virtual spaces because they distrust providers.

Often, they’re searching for connection, language for what they’re experiencing, and people who understand the reality of living it.

For many of us in the rare disease community, social media became more than a platform. It became a lifeline. A place where isolation softened. A place where we found shared experiences, support, advocacy, and sometimes even answers.

At the same time, these spaces can also carry emotional weight, vulnerability, and complexity.

Both things can be true.

I’m grateful to have been included in such an important conversation centered around lived experiences, caregiving, and the evolving role virtual spaces play in healthcare communities.

🤍

05/16/2026

As a mom, giving your child a phone feels BIG. It’s exciting… but if I’m honest? It can also feel a little terrifying.
Because it’s never just about a phone. It’s questions like:
Who can contact them?
What are they seeing?
How much access is too much?
How do I give independence while still protecting childhood?
That’s why Pinwheel immediately caught my attention.

I’m setting Skye’s phone up now, and as a parent, some of my favorite features so far:
📱 Approved contacts only — communication happens ONLY with people I approve
📱 Parent/caregiver profile controls everything
📱 Approved apps only
📱 No open access to social media
📱 Healthy tech habits built into the experience
📱 Real phone, but with intentional boundaries

I love that it feels less like handing a child the internet… and more like gradually teaching responsible technology use.
As parents, we’re all trying to find that balance between connection, independence, and safety. I’m really excited to see how this goes for our family 💛
If you’ve been curious, you can use code PINWHEEL10 for a discount.

Part 2: Skye’s reaction coming soon 👀

05/14/2026

When it’s 79° and sunny ☀️
and there are no appointments, no therapies, no meetings, and no extracurriculars…
Just us.
Grateful for every moment that lets us simply live instead of constantly rushing to the next thing. 💛

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