The Association for Frontotemporal Degeneration

The Association for Frontotemporal Degeneration AFTD offers support, education, and research updates about frontotemporal degeneration (FTD) for families, caregivers, and healthcare professionals.

Working toward a future free of FTD. AFTD is a 501 (c) (3) nonprofit, and our work is community-driven. Support our mission here: https://www.classy.org/give/381228/ #!/donation/checkout

Why do we walk? To honor those we love and help create a better path forward for families affected by FTD. ❤️ Melissa, T...
08/16/2026

Why do we walk? To honor those we love and help create a better path forward for families affected by FTD. ❤️

Melissa, Taylor, and Jaci are walking in memory of Dave and for everyone on an FTD journey.

Join us this fall for Walk for FTD.

▶️ Learn more and register: https://bit.ly/4fSSNPF

Caring for someone living with FTD can be challenging, and young caregivers deserve support, too. ❤️ AFTD's Young Careg...
08/15/2026

Caring for someone living with FTD can be challenging, and young caregivers deserve support, too. ❤️

AFTD's Young Caregivers Respite Comstock Grants provide caregivers aged 40 and under with up to $500 to help cover respite care, mental health support, or self-care.

Learn more and apply: https://bit.ly/4fUj8wM

On July 9, Seth Stern, who is living with FTD and is a member of AFTD’s Persons with FTD Advisory Council, stood outside...
08/14/2026

On July 9, Seth Stern, who is living with FTD and is a member of AFTD’s Persons with FTD Advisory Council, stood outside the Today Show plaza to help educate others about frontotemporal degeneration. ❤️

By sharing his story and raising awareness, Seth helped bring attention to a disease that is often misunderstood and misdiagnosed.

Learn more about FTD: https://bit.ly/3TMF1Fu

08/13/2026

Younger-onset dementia affects entire families — including children, teens, and young adults.

In this video, Patti Lafleur of Lorenzo's House shares how their organization brings light to families navigating younger-onset dementia through healing in community, advocacy, and education. ❤️

Learn more about Lorenzo’s House and the support they provide: https://bit.ly/4gdHjoS

Food is more than what’s on the table — it’s the memories, traditions, and people we cherish. ❤️Through Food For Thought...
08/11/2026

Food is more than what’s on the table — it’s the memories, traditions, and people we cherish. ❤️

Through Food For Thought, supporters honor loved ones affected by FTD with meaningful meals and gatherings, from chili contests to pickle fundraisers to family celebrations.

🥪 What food reminds you of someone special? Share it in the comments — then turn your favorite tradition into a Food For Thought event: https://bit.ly/4g2b7Vb

If you’ve recently been diagnosed with Primary Progressive Aphasia (PPA), you don’t have to navigate it alone. AFTD’s Li...
08/09/2026

If you’ve recently been diagnosed with Primary Progressive Aphasia (PPA), you don’t have to navigate it alone.

AFTD’s Living Well with PPA program offers a supportive space to connect with others who understand what you’re experiencing. Over six consecutive Saturdays, participants will explore life with PPA, share experiences, and learn practical strategies for moving forward together.

📅 September 12 – October 17, 2026

For more information, contact the AFTD Helpline:
📧 [email protected]
📞 1-866-507-7222

💡 FTD can affect people during some of the busiest years of their lives. As individuals and families navigate an FTD dia...
08/07/2026

💡 FTD can affect people during some of the busiest years of their lives.

As individuals and families navigate an FTD diagnosis, they may also be balancing careers, financial responsibilities, caregiving, and other daily demands.

🔗 Find legal and financial planning resources: https://bit.ly/3QUyEPk

Every mile has a reason. ❤️ 🏃 Meet four members of the AFTD-Team who are running in honor of loved ones affected by FTD...
08/06/2026

Every mile has a reason. ❤️ 🏃

Meet four members of the AFTD-Team who are running in honor of loved ones affected by FTD. From New York City to Honolulu, they’re turning every mile into hope while raising awareness and supporting families impacted by FTD.

Swipe to meet the runners behind the miles, then join the AFTD-Team here: https://bit.ly/4cd8i2l

08/05/2026

What is it really like to participate in FTD research? 🔎

In this video, AFTD Ambassador Julia Pierrat shares why, despite the emotional ups and downs, participating in research can be so meaningful. She reflects on the relief that comes from taking part and the compassion of research teams who make participants feel truly valued.

Every study brings us closer to a better understanding of FTD and to developing future treatments.

Learn about the many ways to participate in FTD research: https://bit.ly/455tjIx

Advocates and bipartisan California lawmakers gathered at the State Capitol to urge passage of SB 1047, legislation that...
08/04/2026

Advocates and bipartisan California lawmakers gathered at the State Capitol to urge passage of SB 1047, legislation that would expand the California Neurodegenerative Disease Registry to include frontotemporal degeneration.

FTD advocate Emma Heming Willis joined families, advocates, and legislators to highlight why including FTD in the registry is essential to improving research, informing public health efforts, and advancing efforts to .

👉 Learn more: https://bit.ly/4yVwakT

Address

2700 Horizon Drive, Suite 120
King Of Prussia, PA
19406

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+18665077222

Website

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