08/04/2026
My Lyme journey part 2:
Over the next few months, there wasnāt a point in time where SOMETHING didnāt hurt. My shoulders were the longest lasting and most intense. I couldnāt lift my arms without pain so I walked around like a T-Rex. It sounds funny, but you donāt realize how much of your day to day movement requires range of motion of your arms until you canāt do it anymore. Even sleeping became a problem because I couldnāt lay on my side due to the shoulder pain, but also laying flat hurt because my arms hung down slightly. Aside from movement causing pain, at night they would also get a deep throbbing, burning, stabbing pain which kept me awake.
This same pain would migrate to my wrists, and sometimes my elbows although not with the same intensity. My knees and ankles came next, and with my ankle swelling off and on for no apparent reason.
I felt like a crazy person when I tried to explain my symptoms to people because they seemed to be all over the place, although I could see patterns in them. I just didnāt really understand what the patterns meant.
Migrating pain is a hallmark symptom of Lyme (and Psoriatic Arthritis, which is what I began to suspect I had based on my doctorās belief that it was an autoimmune connective tissue disease). But this means that the pain can shift from place to place - sometimes lasting for days, and sometimes for hours. So it seemed like one day something would hurt, and the next day it would be something else. Itās very unpredictable.
My follow up appointments with my doctor resulted in nothing other than lab work that came back ānormalā, although my thyroid numbers had continued to climb. Iād later find out that Lyme also drives autoimmune disease, and can either trigger it or make existing conditions worsen.
After finding out that this was a new possible autoimmune issue, I had decided to go back to the elimination phase of AIP (autoimmune protocol) and cut out all the possible foods that trigger the immune system. I didnāt know what was happening, but I knew that I needed to do everything possible to lower the inflammation that was wreaking havoc inside my body. I also started having matcha everyday instead of coffee, which is anti-inflammatory. I worked on my nervous system. I was doing ALL the things I could, and while I did see improvements I was still having random flares of things and knew that something still wasnāt right.
I did eventually insist on a referral to a rheumatologist because I am not okay with a āwait and seeā approach when it comes to my health. I KNEW that something was wrong - and whether it was an autoimmune disease or something else, I needed to figure it out so I could determine the best way to approach it and prevent long-lasting damage that could prevent me from doing the things that I love.
No matter what health challenge you are facing, knowing how to advocate for yourself is incredibly important. You know your body better than anyone else, even the doctors that weāve been trained since birth to give all our power over to. This is especially true if youāve put in the effort to understand how your body works, how it communicates with you, and how it responds to food, movement, sleep, self care, nervous system work, etc. I do value the knowledge that doctors and different practitioners bring, but at the end of the day I take responsibility for my own health and well-being because I know my body best.
Before my rheumatology appointment, I wrote out all my symptoms. As I read over it, I thought, āThis doctor is going to think Iām insane!ā But I was so desperate for answers. So I took this list and the pictures Iād taken over time of rashes, swellings, etc and presented them to her.
Rather than dismiss me, she actually listened, read, took notes on everything, and even thanked me for being so thorough and having pictures! She said that she wasnāt sure what it was, but that SOMETHING was definitely going on. She asked if Iād been tested for Lyme, and when I said no she wanted to test first to rule it out, as well as some tests for viruses to rule out viral arthritis.
(To be continued in part 3)
Pictures:
1 - my swollen ankle, which happened randomly
2 - Swollen toe (2nd toe on right foot) which also happened randomly
3 - Swollen jaw (my right side near my ear) which happened again in April (and it flared up as I was leading a short backpacking trip so I couldnāt eat half of the snacks that I brought!)
4 - my list of symptoms that I took to the rheumatologist