sic_awre

10/08/2026

🎒 Caregivers, this conversation is for you.

What happens when your child needs support at school because of sickle cell disease? How do you make sure a 504 Plan or IEP works on paper and in the classroom?

Join Vanessa Rhodes, Brenda Green, Hermionne Johnson, Star Simmons, and Teacher Jasmin for a candid caregiver panel about advocating for your child, communicating with schools, navigating absences and hospitalizations, documenting concerns, and helping students get the support they need.

📅 Wednesday, August 12, 2026
⏰ 4–6:30 PM PST | 7–9:30 PM EST
💻 Virtual

Come ready to listen, learn, and leave better equipped to advocate. Tag a sickle cell parent or caregiver who needs to be part of this conversation.

RSVP - https://tinyurl.com/504plans2026 (link in bio!)

12/07/2026

Your creativity deserves the spotlight! 🎨📚✨

If you’ve ever wanted to share your art, books, jewelry, photography, handmade products, comics, or other creative work with the Warrior Family, this is your moment.

We are looking forward to Warrior Con 2026 Artist Row! This is more than a vendor space but a chance to inspire others, grow your audience, make connections, and celebrate the power of creativity within our community.

📍 Sheraton Gateway Los Angeles
🗓 Thursday, July 23, 2026
🕓 4:00–6:00 PM

✨ We’d love to know, what do you create? Tell us in the comments! 👇 Then tag a creative warrior who needs to see this.

Register now at www.sicklecellconvention.org and join us for the 13th Annual Warrior Con in Los Angeles. We can’t wait to celebrate your talent! Link in bio

28/06/2026

Lodging scholarship support is available for Warrior Con 2026.

The Sickle Cell Community Consortium is offering lodging support to help eligible warriors, caregivers, Golden Warriors, and newly diagnosed families attend this year’s Convention in Los Angeles, California.

📅 July 22 to 26, 2026
📍 Sheraton Gateway Los Angeles Hotel

📝 Apply here: https://tinyurl.com/scwcscholarship26
Lodging support is limited, so applicants are encouraged to apply as soon as possible.

27/06/2026

📣 Los Angeles, Warrior Con is coming!
The Sickle Cell Community Consortium is hosting Warrior Con 2026, happening July 22 to 26, 2026, at the Sheraton Gateway Los Angeles Hotel.
Get ready for a powerful week of community, education, advocacy, wellness, family connection, research conversations, and real support for the sickle cell community.
This year’s theme, Legacy in Action: The Next Move, is all about showing up, moving with purpose, and building the next chapter together.
📍 Los Angeles, California
🎟️ Register now: www.sicklecellconvention.org

The main registration flyer features Agios as Title Sponsor and Pfizer Rare Disease as Impact Sponsor.
SeeYouInCali

13/11/2024

Are you looking to SPOTLIGHT your products or services in the sickle cell community? 🌟

Don't miss your chance at the 4th Annual Sickle Cell Caregiver Summit! Sign up now to showcase what you have to offer and reach caregivers nationwide.

🖱️ Sign up here: https://tinyurl.com/scdscspotlight
⏰ Deadline: November 13

📢 All selected participants will be spotlighted on www.scdcaregivers.org
Be seen, make an impact, and support the community! 💪

26/09/2024

📣Breaking News 📰

Pfizer Inc. (NYSE: PFE) announced today that it is voluntarily withdrawing all lots of OXBRYTA® (voxelotor) for the treatment of sickle cell disease (

14/08/2024

My baby girl is starting her big girl job as a 2nd grade teacher. I couldn’t be more proud of all she has accomplished and the many challenging she has overcame to get to this point.

Please help her start the year out right by contributing supplies to her classroom via her Amazon Wish list or donating funds via the platform of your choice.

Thank you for your continued love & support. It truly takes a village ❤️

CashApp: $purplejazzzy (that’s 3 z’s)
PayPal:
Zelle: send DM

03/08/2024

28/07/2024

Join us for the “Understanding 504 and IEP Plans: Sickle Cell Disease and School Educational Workshop for Parents, Guardians, and Students.” August 7, 2024 at 7 EST. Click the link in my bio to register!