Holistic Hidradenitis Suppurativa Help

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Holistic Hidradenitis Suppurativa Help

💜Making connections between Hidradenitis Suppurativa and diet.

Holistic chronic inflammation management, and more!
💚Nutritionist, Chef, 2x best selling author.
💜HS Resources👉 https://linktr.ee/hswarrior

08/14/2026

All jokes aside… I can eat whatever I want. I chose not to and there’s a difference. It’s been a decade of managing HS and other inflammatory issues with nutrition. A long road, and every day I’m grateful to wake up pain free 💜

08/13/2026

I will die on the hill that what we eat will always impact how we feel. I understand that there are some people that will always require surgery or medication on their health journey, but I don’t think that that should be in the absence of nutrition as part of the management tools in play. I would argue that if you are on medication and needing surgery that it is even more important to dial in your nutrition!

While all of this may not apply to everybody. I do know that it is important for people to understand what it takes. How I live today does not reflect how I got here. My lifestyle and diet choices are much more flexible than what they were nine years ago, and every phase of this journey came with its own challenges, but I will in every lifetime. choose this journey over and over and over again.

08/12/2026

HS ISN’T JUST A SKIN CONDITION. IT’S A SYSTEMIC ONE. 🩸

For years the conversation around HS started and ended with the skin. Wound care, antibiotics, maybe a biologic. But your skin is downstream of what’s happening in the rest of your body.

HS is now understood as a systemic inflammatory disease — one that shows up alongside insulin resistance, thyroid and autoimmune conditions, hormone dysregulation, anemia, and vitamin D deficiency far more often than in the general population. These aren’t random comorbidities. They’re connected by the same inflammatory pathways driving your flares.

That means the labs that matter aren’t just about “ruling things out.” They’re about understanding the full picture of what’s fueling your disease — and finding the highest-leverage places to actually intervene.
Swipe through for the 6 labs I bring to every HS appointment 👉

None of this replaces your dermatologist. But walking in informed changes the conversation from “manage the flare” to “understand the whole picture.”
Save this for your next appointment 📌

08/11/2026

No one is coming to save you. 🙏

I say that with love — because it’s the thing that changed everything for me.

For a long time I waited to feel *heard* before I felt empowered. I was waiting for the right doctor, the right appointment, the right diagnosis to finally take my symptoms seriously. And sometimes that wait is long. Sometimes it doesn’t come.

At some point I realized: my health is my responsibility first. Not instead of good medical care — alongside it.

That means:
📋 Tracking my own symptoms, not relying on memory
🔬 Knowing what labs and markers actually matter for me
🧠 Learning the language of my own condition
💬 Showing up prepared, not just hopeful

You can’t control the system. You can’t control how much time a doctor has. But you can control how invested you are in your own case.

That shift — from patient to partner — starts with you deciding you’re worth the effort.

👉 What’s one thing you’ve taken ownership of in your health journey? Tell me below.

08/10/2026

YOU DON’T NEED TO OVERHAUL YOUR WHOLE DIET. START WITH ONE THING. 🍲

When I talk about managing chronic illness through nutrition, people assume it means an all-or-nothing protocol — every trigger eliminated, every meal perfect, starting Monday.

While that is what I had to do, and it’s not sustainable for everyone.

What actually builds routine is picking one habit and repeating it until it stops feeling like a decision.

If you’re looking at a list like this and feeling overwhelmed, that’s your sign to pick just one. Not all three. One.

Swipe through, choose the habit that feels most doable this week, and let it be boring and repeatable before you add the next thing 👉

Which one are you starting with? Tell me below 👇

08/08/2026

Kinda chic 💅 if you ask me.
Educating Derms at the CHSS on Nutrition: A Tool for HS Management

Kinda Chic 💅
To have multiple chronic conditions and still live my best life!

Kinda Chic 😍 to get to 41 and be in the best shape of my life!

Kinda Chic to be the COO of an incredible HS patient advocacy org and totally crush it with my team on a daily basis — creating resources for the HS community 💜

08/07/2026

You have OPTIONS!! Here’s every category of HS treatment on the table right now 👇

🧬 BIOLOGICS
3 FDA-approved options: Adalimumab (Humira), Secukinumab (Cosentyx), Bimekizumab (Bimzelx). Built and studied for long-term use.

💊 COMING SOON: JAK INHIBITORS
Oral pills, not injections. Povorcitinib is closest to approval, with strong new 54-week trial data. Upadacitinib is also in the pipeline.

⚖️ METABOLIC SUPPORT
HS is tied to metabolic & hormonal inflammation. Metformin, spironolactone, and GLP-1s are increasingly used as adjunct therapy.

🦠 ANTIBIOTICS: THE NUANCE
Low-dose doxycycline is prescribed for its anti-inflammatory effect — not to fight infection. HS isn’t primarily bacterial.

My honest take: antibiotics feel more benign because they’re familiar. But long-term use has real downsides — gut disruption, resistance. Biologics are literally designed for long-term use. Antibiotics aren’t.

If you’ve been on antibiotics for years with no exit plan, that’s worth a conversation with your doctor.

🥗 THE COMMON THREAD
No matter the treatment path — diet and stress management still belong in your care plan.

Patient education, not medical advice — always loop in your dermatologist. 💜

08/06/2026

I built this toolbox brick by brick and I use it. Ask for help. Speak up. No one is coming to save you. Like Drew Barrymore in Ever After, you have to save yourself. But it does help to have a team and a community behind you too 💜

08/05/2026

Something that doesn’t get talked about enough: HS isn’t driven by one single inflammatory pathway.

There are several — TNF-α, IL-1, IL-17, JAK/STAT — and current treatments are designed to block or suppress specific ones. The problem? We don’t currently have testing that tells us which pathway (or pathways) are driving YOUR HS specifically. So a medication might be doing an incredible job on one pathway... while others are still active.

This is how I think about what nutrition accomplished for me: it wasn’t replacing a targeted treatment. It was calming inflammation more broadly — potentially touching pathways a single-target medication isn’t reaching.

So if you’re on a treatment that’s improving your symptoms but not getting you all the way to remission, it’s worth asking: what’s still active underneath that? And could diet and lifestyle help close that gap instead of being the first thing you drop?

Address

Miami, FL

Website

https://nutritionforhidradenitissuppurativa.com/, https://linktr.ee/hswarrior

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