Carson’s Lymphatic Malformation Journey

Carson’s Lymphatic Malformation Journey Carson was born with a Lymphatic Malformation, specifically PIK3CA. We are bringing awareness to you!

Carson has put in his wishes with make a wish!!! Today our wish grantors came over, brought cookies, and gifts for all t...
08/11/2026

Carson has put in his wishes with make a wish!!!

Today our wish grantors came over, brought cookies, and gifts for all the kids! The sweetest women!

He got to make three wish ideas and we will hear back soon about which one of his wishes will be granted!



08/07/2026

✨🫶🏼

We’ve got some new followers over the last couple of days!! Let’s re-introduce ourselves!!Carson was born with a rare di...
08/07/2026

We’ve got some new followers over the last couple of days!! Let’s re-introduce ourselves!!

Carson was born with a rare disease called a Lymphatic Malformation(LM). His LM is cervical from ear to ear, cheeks, tongue, and inside his throat and throughout his entire mouth. He was actually misdiagnosed at 23 weeks in utero, and then at 30 weeks he was diagnosed with his correct condition.
Due to his airway being compromised he was born via c-section at 36 weeks!
He stayed in the NICU for his first 6.5 months.
He’s got a tracheostomy and a gtube!

Our page is to bring awareness to not only LM But also other Vascular Malformations as well, so make sure to follow our friends too! We’re all on the same-ish journey! It’s like we’re the same book but different chapters, with many amazing characters!! We are also bringing awareness to the treatment being done over in Europe for this!

Vascular Birthmarks Foundation
Harper’s CM- AVM Journey
Growing with Sophie: A Vascular & Lymphatic Malformation Journey
Minding Myla's Journey
Kinley’s Venous Malformation Story
Easton’s LM Journey
Kate’s AVM Journey
Brick’s Venous Malformation
Together for Taylor - Helping make specialized AVM CURE in Italy possible
Nora’s Journey with Lymphatic Malformation
Walking Hope: Walker’s Journey with a Rare Vascular Malformation
Braxton's Venous Malformation
Kaliber’s Courage - A VLM Journey
Gavin’s Medical Adventure
Kennedy's Cause
Lily’s Journey with Venous Malformation

I may have forgotten some, becuase there has been so many coming up!!! Which is amazing! If I forgot your page please leave a comment below for our followers!! 🫶🏼🫶🏼🫶🏼

08/03/2026

Welcome to our journey! Randi was born with a rare genetic condition called CM-AVM syndr… Faith Borum needs your support for Help Randi Get Treatment in Italy

Carson received his Make-A-Wish Wisconsin packet!!! Make-a-wish is truly one of the most beautiful things we have encoun...
08/03/2026

Carson received his Make-A-Wish Wisconsin packet!!!

Make-a-wish is truly one of the most beautiful things we have encountered.

When I found out about Carson’s diagnosis my heart shattered. I was so worried about how this would not only affect Carson, but how it would also impact the two older kids.

Make a wish includes the siblings, not only Carson, all three of the kids are excited for this journey! We can’t wait to meet with our granters, we will forever be grateful! I shed tears every time I think about this awesome opportunity!

Make-a-wish will now be apart of our lives forever, to hopefully return the favor to another family 🫶🏼✨

08/01/2026

Hello everyone!!

We want to see if we can get Easton’s page to 500 followers!! Right now, we’re just under 200. If we’re able to do that, 500 people know about vascular birthmarks and spreading more awareness!!

While you’re at it, follow our friends to follow along on their journeys also!! 🇮🇹❤️

Lily’s Journey with Venous Malformation
Harper’s CM- AVM Journey
Carson’s Lymphatic Malformation Journey
Kinley’s Venous Malformation Story
Kate’s AVM Journey
Brantley’s Journey With Glomuvenous Malformations
Walking Hope: Walker’s Journey with a Rare Vascular Malformation
Nora’s Journey with Lymphatic Malformation
Growing with Sophie: A Vascular & Lymphatic Malformation Journey
Mah'lani's journey with Parkes Weber Syndrome
Minding Myla's Journey
MaKenzie's Journey
Together for Taylor - Helping make specialized AVM CURE in Italy possible
Aubriella's Lymphatic Malformation Journey
Kaliber’s Courage - A VLM Journey
Hope for Hallee - VLM Journey
Brick’s Venous Malformation
Brianna’s Lymphatic Malformation Journey
Colm's Venous Malformation Journey

73 days left until we leave for the Vascular Birthmarks Foundation in NY!!! What we’ve been up to lately; Lots of dr app...
07/27/2026

73 days left until we leave for the Vascular Birthmarks Foundation in NY!!!

What we’ve been up to lately;

Lots of dr appts with Vascualr, ENT, Trach clinic, pulmonary, oncologist, and labs, and dentist appointments!
Time with family, playing outside, hanging out with friends, and just enjoying our day light!
On top of all this we moved!

Carson was luckily only SLIGHTLY affected by the smoke from the fires north. 😮‍💨
It’s hard keeping a three year old inside when all he wants is to play outside🤣
Now that our air has been better he’s out chasing the chickens and peeing outside. Yes, you read that right🤣 no more diapers so if it’s outside or the toilet I’m not arguing!!

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