May5Foundation

May5Foundation The May5foundation is a private family foundation dedicated to research, advocacy, awareness & outreach.

Please visit our website to learn more about our outreach and programs. https://www.Mays5foundation.com

Donation site;

https://may5foundation.square.site/product/wedoamaysingthings/16

May5foundation
337-277-7264

Maya always dreamed of being a dancer, but at 11 years old, her life changed in an instant. A stroke forced her to relea...
06/03/2026

Maya always dreamed of being a dancer, but at 11 years old, her life changed in an instant. A stroke forced her to relearn how to walk, speak, and navigate the world through a new lens. She turned to the only thing that called to her just as deeply as dance: art.
What started as a necessary pivot became an intentional form of expression and healing.

Growing up with sickle cell, Maya often felt like an outsider. She struggled to feel seen while navigating a chronic illness that many people didn’t understand, all while being naturally shy. So, she created what she couldn’t find.

“A lot of my pieces are about navigating life with sickle cell. I want people to understand what isn’t always visible.”

Living with sickle cell means navigating an “invisible illness,” one that is often dismissed or misunderstood. That reality appears vividly in her work. One of her pieces features roses tipped with darts aimed at the body, a metaphor for the ebb and flow of pain that isn’t always visible to others, and what it means to manage that pain in public. It reflects the constant, shifting nature of living with sickle cell.

More than anything, she wants young Black artists and those living with chronic illnesses to see themselves reflected in her work. Her piece, Sacred Rest, centers the importance of rest, something often overlooked in both art and everyday life. “Rest is incredibly important, especially living with a chronic illness.” Now exhibiting in her first museum at the Northwest African American Museum, Maya is stepping into a new phase in her journey. After a period where things felt slow, she’s beginning to see renewed momentum.

“My art has taught me I’m incredibly resilient, that I’m powerful.”

Maya refuses to be confined. Her work reflects that mindset, blending Afrofuturism, identity, and symbolism into a visual language that is entirely her own. As she looks ahead, she remains intentional about growth.

World Sickle Cell Day is June 19! Are you ready to show the world that  ? Get involved by joining our community at one o...
06/02/2026

World Sickle Cell Day is June 19! Are you ready to show the world that ? Get involved by joining our community at one or more of the below events.

06/01/2026
Warriors MatterEmmy was previously one of our World Sickle Cell Day Warriors. (See mays5foundation.com for previous Emmy...
06/01/2026

Warriors Matter

Emmy was previously one of our World Sickle Cell Day Warriors. (See mays5foundation.com for previous Emmy highlight).

We are coming to everyone to ask you to stand with us in prayer for Emmy.
On Monday, Emmy will head back to the hospital for another try at stem cell harvest.(the procedure for “the cure”)

Emmy will be admitted Monday, have a blood exchange Tuesday, and then stem cell collection Wednesday through Friday. At the end of each day, we’ll know a little more about whether this is working.

After many conversations with the research team, Emmy and her family have decided this will be their final attempt. Everything possible has been done to set her body up for success. She’s had three blood exchanges. She’s been healthy. Her line has been in place since April. They are trying a stronger medication this time—one that will likely come with complications but also gives the best shot at a successful collection.

We need BIG prayers.

We need a minimum of 6 million to move forward. If we collect less than that, we won’t be able to continue pursuing the cure.

The truth is, Emmy is tired, she’s been down this road 2 times already and it hasn’t been successful.

Emmy is brave and strong beyond her years, but she also knows how much is riding on this week. She feels the weight of it all. She’s worried because she understands just how important this collection is.

Emmy has strong faith and belief and has put all her trust in God.

Pray for wisdom for her medical team. Pray that her body responds well to the medication. Pray for strength and peace as she walks through another difficult week.

Please also pray that if this doesn’t go in Emmy favor, pray for her strength.

Emmy, her family, her team, and all of us are so grateful for every person willing to pray alongside us. ❤️

Please continue to keep the prayer wheel turning for Warrior JahMarrion. He woke up from the surgery in a lot of pain, b...
06/01/2026

Please continue to keep the prayer wheel turning for Warrior JahMarrion. He woke up from the surgery in a lot of pain, but everything looks good so far.

Prayer works, keep praying and lifting he and his family up.

Funeral arrangements for Sickle Cell Warrior Charles Tyler FletcherMay 31stSt Francis Xavier Catholic Church 1120 S Myrt...
05/31/2026

Funeral arrangements for Sickle Cell Warrior Charles Tyler Fletcher

May 31st

St Francis Xavier Catholic Church
1120 S Myrtle Street
Baton Rouge, LA 70802

Visitation 9 am -10 am
Funeral 10:30

Repass in school Cafeteria

Please keep Warrior JahMarrion and his family uplifted as he is recovering from a major surgery.Sickle Cell will not def...
05/29/2026

Please keep Warrior JahMarrion and his family uplifted as he is recovering from a major surgery.

Sickle Cell will not defeat this Warrior.

Our Sickle Cell Community suffered a great loss today with the passing of Warrior Amy Mason-Cooley.Amy was a warrior, a ...
05/29/2026

Our Sickle Cell Community suffered a great loss today with the passing of Warrior Amy Mason-Cooley.

Amy was a warrior, a mom, a wife, an advocate and a fighter.

We are still losing to many warriors in 2026 to this horrible disease. We will not stop fighting, we will not bow down.

Amy, get your rest Warrior, you fought the good fight, we will take it from here.

Please send prayers and strength to her husband Justin, family and friends.

This is going to be very difficult for her 5 year old twins Maeson and Maverick to understand, please keep them in prayers.

We love you Amy, always and forever.

Please join us in wishing one of our toughest, most courageous, intelligent and favorite Sickle Cell Warriors  a very Ha...
05/28/2026

Please join us in wishing one of our toughest, most courageous, intelligent and favorite Sickle Cell Warriors a very Happy Birthday 🎈🎉🎊.

Happy Birthday Phillip 🎂 🥳 🎉, you are the definition of a Warrior.

Houston, are you ready to bring awareness to Sickle Cell and celebrate freedom? 🩸Join us for our World Sickle Cell Day a...
05/27/2026

Houston, are you ready to bring awareness to Sickle Cell and celebrate freedom? 🩸

Join us for our World Sickle Cell Day and Juneteenth Awareness Events.
Join us June 18- June 20.

🩸 Our events will offer education , information and resources. The blood drives are a chance to save lives.
A simple act of donating can mean saving the life of a warrior.

See you in Houston and beyond.

Address

313 Pacific Avenue
New Orleans, LA
70114

Telephone

+13372777264

Website

https://www.paypal.me/mays5foundation, https://cash.app/$may5foundation

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