Jeff Weaver's Kidney Transplant Page

Jeff Weaver's Kidney Transplant Page Polycystic Kidney Disease and Kidney Transplant. My kidney function was near failing and if it hadn't been caught, they would have failed soon.

In January of this year I went to see the doctor for a sore throat and ended up having blood work done due to very high blood pressure. When the results of the blood work came back, I was diagnosed with Polycystic Kidney Disease which is a genetic mutation that causes cysts to grow on the kidneys and eventually fail. Since the first diagnosis, I have changed to a vegan diet as I must limit my protein, among many other things. With medication and the diet, I have a had a small increase in kidney function and so far the kidney decline has stabilized. I still am not experiencing any symptoms and my doctor isn't putting my on dialysis yet, but that is reexamined during my monthly appointments. My transplant team has encouraged me to get the word out that I am in need of a kidney transplant, preferably from a living donor if one is available, as a living donor kidney has a better success rate and a longer life span than a deceased donor. The purpose of this page is to allow people to follow my journey through this challenge and to provide an avenue for the people I know to spread the word about the need for me to receive a kidney transplant. If you or anyone one you know is interested in learning more about the process of becoming a donor, please contact:

Swedish Organ Donor Transplant Program
Diane Gould, RN
1101 Madison St. #200
Seattle, WA 98104
(206) 386-3657
(800) 996-7426
Fax: (206) 386-3699
email: [email protected]

On October 18th at noon, I received the call from Swedish Transplant Center that I was a match for a deceased donor kidn...
11/23/2017

On October 18th at noon, I received the call from Swedish Transplant Center that I was a match for a deceased donor kidney. I immediately left work and spent a couple of hours packing and making sure loose ends at home would be taken care of during our absence. Got on the plane at 530pm, flew to Seattle, and underwent the transplant surgery at 8am on the 19th.

The kidney was nearly a perfect match and began functioning immediately after the transplant. Within two days, my body's toxicity was down to near normal levels and after five days, I was discharged from the hospital.

We were fortunate to secure temporary apartment housing with a non-profit charity, the "Transplant House". It is run by individuals who are also past transplant recipients.

The next four weeks consisted mainly of multiple trips per week for bloodwork labs and follow up clinics with the transplant team. I healed remarkably fast and was cleared to return home to Fairbanks on November 21st.

I am now taking immunosuppressants, and will be for the rest of my life in order to keep my body from rejecting the kidney. I must be very careful now as I am much more susceptible to infections, colds, viruses, and certain cancers.

Based on my overall progress in healing and recovering, I am hopeful that I will be able to return to work by mid to late December.

The Swedish Transplant team was phenomenal and made the entire process extremely easy to work through. I'm very grateful for them.

09/22/2017

I haven't updated the page in quite awhile. I had my peritoneal catheter placement surgery about two weeks ago and it has been a good recovery. I will be training to do dialysis at home.

09/01/2016

Saw the doc last week. With the aid of blood pressure medication, pressure is back to normal range now. Still feeling pretty good overall and I am not experiencing any major symptoms even though total kidney function has dropped down to 6.5%. It's been a little more than a year since getting onto the deceased donor transplant list. So, still a small chance that a transplant may occur without having to go onto dialysis; keeping fingers crossed.

09/23/2015

Another good doctor's visit last night. Still showing no symptoms, so I will not be starting dialysis yet. So I will keep going with the vegan diet and try to increase my exercise. Blood pressure is still a little high, but hoping that with a little more weight loss and activity, it will come down some without having to take medication.

07/30/2015

Had my bi-monthly check up with my Nephrologist, Dr. Lefler; very good visit. Even though my lab work results show that I am in end stage renal disease, I am still not experiencing any symptoms. So dialysis has been put off again. The Dr. said that he will not have me start dialysis until I do start to show symptoms of decline.

I am on the deceased donor waiting list, but for my blood type, A+, the average wait time is 2 to 4 years. Although, he did say that since he has been practicing in Alaska, he hasn't had a patient wait more than 2 years for a transplant. Hopefully, by continuing my low sodium, vegan diet, and with a little luck, I will be able to keep off dialysis until a transplant arrives.

He is very pleased at how I am following all my doctors' instructions with extreme diligence and that I am very active and dedicated to making myself as healthy as I possibly can be. He said that if he could he would make me a drill instructor for the rest of his patients. LOL

Took a solo hike up Angel Rocks Trail and achieved my goal of making it to the top.  Couldn't have asked for a more beau...
07/12/2015

Took a solo hike up Angel Rocks Trail and achieved my goal of making it to the top. Couldn't have asked for a more beautiful day for the hike.

06/22/2015

Thursday, during lunch I got the notification call from my transplant nurse coordinator that my case was presented to the review board and I was approved to be placed onto the deceased donor list. Excellent news!

06/15/2015

My case was delayed. Have to redo some blood work and then they can present my case to see if I will be put onto the transplant list.

06/08/2015

Heard from my transplant nurse coordinator today. The transplant team said that my testing results all look favorable and the team will present my case to the Swedish Medical Review Board on Wednesday to see if they will approve putting me onto the deceased donor list.

06/08/2015

On Thursday I went in for my my second set of blood lab work. This is mostly the same as my last lab work but the purpose is to ensure the blood type and cross matching are accurate.

Address

North Pole, AK
99712

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