Nolan’s Fan Club

Nolan’s Fan Club For everyone who’s a fan of the Nolan and all his shenanigans, we invite you to follow along as we attempt to navigate his world.

Sometimes I like to sit on the couch and cuddle a blanket since there is definitely not a little boy wrapped in the blan...
06/17/2026

Sometimes I like to sit on the couch and cuddle a blanket since there is definitely not a little boy wrapped in the blanket who is definitely not hiding there. Nope, just me and a blanket.

This absolute freaking champion had Botox earlier this week to help with his muscle spasticity. He gets all the comfort ...
06/14/2026

This absolute freaking champion had Botox earlier this week to help with his muscle spasticity. He gets all the comfort measures we can give him, but it still doesn’t feel great. Afterwards, he just wants to be cuddled while he snoozes. Mom happily provides the cuddles. (Plus she gets to continue to be a creep and take pictures of the sleepy dude.)

Nolan didn’t want to sit with the spare. He looked pretty content when he wasn’t shooting me dirty looks and loudly fili...
06/13/2026

Nolan didn’t want to sit with the spare.
He looked pretty content when he wasn’t shooting me dirty looks and loudly filing complaints though.

And just like that, another school year ends. I love how much these two love each other.
06/01/2026

And just like that, another school year ends. I love how much these two love each other.

Such a cool dude!
05/27/2026

Such a cool dude!

I don’t want to jinx it, but at the same time I want to scream it out for everyone to hear. Nolan’s neurologist was so p...
05/23/2026

I don’t want to jinx it, but at the same time I want to scream it out for everyone to hear. Nolan’s neurologist was so pleased with his progress today!
Sometimes it’s hard to see the progress when you’re so close to it. His doctor was pointing out so many improvements and it was so awesome to realize how far he’s come!

I am a total creep when it comes to taking pictures of this kid sleeping. He’s freaking adorable though!
05/15/2026

I am a total creep when it comes to taking pictures of this kid sleeping. He’s freaking adorable though!

It’s been too quiet lately so the chaos goblin decided to shake things up. His feeding tube balloon developed a lovely h...
05/09/2026

It’s been too quiet lately so the chaos goblin decided to shake things up. His feeding tube balloon developed a lovely hole in it, resulting in a mad scramble to IR this morning to replace it. While we waited, creative measures were employed to keep the tube in place. Shown here is the 2B KEEPER 3000. It did not work well. Especially when someone squirms, kicks, rolls, and generally tries to flop around as much as possible.

This man has been on a mission this week. He wants to eat, eat, eat! He has been doing awesome at eating things orally a...
05/02/2026

This man has been on a mission this week. He wants to eat, eat, eat! He has been doing awesome at eating things orally and been taking in nearly an ounce of puréed food each day. That may not sound like much, but for him that is insane!

04/20/2026

If you were in the Ankeny Costco this morning and heard banshee shrieking and feral child yelling…ummm. Hi. That was my kid. I’d say I’m sorry, but I’m not. He was having a great time. And you were probably in his way so, uh, move over.

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Norwalk, IA

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