Avett's Avengers

Avett's Avengers Avett's story began on December 18, 2014. He had four seizures and we took him to the ER where a CT revealed a mass on the left frontal lobe of his brain.

He was just 22 months old. Avett is one tough guy! He has had 2 brain surgeries, several rounds of inpatient chemo, 31 treatments of proton therapy and 1 full year of maintenance chemo. He received his last round of chemo in August of 2016. He is approaching 5 years post treatment! He will continue a 6 month MRI regimen to check for growth of the tumor. He is a fighter and truly the sweetest, most loving little boy, even through every obstacle he has endured. He is our super hero!

08/01/2026
07/05/2026

July 15 is Glioblastoma Awareness Day. 🩶

This month, we’re raising awareness for one of the most aggressive forms of brain cancer and honoring the patients, caregivers, families, researchers, advocates, and loved ones impacted by GBM.

Awareness starts with conversation, and every share helps more people understand what glioblastoma is, why research matters, and how they can support the GBM community.

Mark your calendar, share this post, and join us on July 15.

06/24/2026
Avett had a great time at Camp! Camp Claphans - JD Mccarty Center ❤️
06/10/2026

Avett had a great time at Camp! Camp Claphans - JD Mccarty Center ❤️

06/05/2026

Avett's latest MRI results appear to be okay overall; however, there does appear to be a small area of concern that is more prominent than in the last MRI. This requires attention on the following scan. This is not what we were expecting, and are obviously concerned. We are going to stay positive for Avett. He has a few camps coming up that he is very excited about, and we want him to enjoy his summer. We see his oncologist in July, and we will formulate a plan of action. As always, thank you all for your support, and please continue to keep Avett and his family in your thoughts and prayers. 🩶💛🩶

06/03/2026

Avett has his 6 month MRI today. This will be our first experience with the VNS device and an MRI. Please keep him in your thoughts and prayers. 🩶💛🩶

05/07/2026
05/05/2026

Avett’s surgery went well and he is at home and resting. Thank you for all the thoughts and prayers! 🩶

It is 7:15, the surgery scheduled to start at 7:30. Avett says “30 minutes”… I say, well about 15 minutes. Avett says…. ...
05/05/2026

It is 7:15, the surgery scheduled to start at 7:30. Avett says “30 minutes”… I say, well about 15 minutes. Avett says…. “Tomato, tamato….” He has us cracking up. 🍅

He just went back for surgery. Please keep our funny guy in your thoughts and prayers today. 🩶

05/01/2026

Avett will has an upcoming VNS surgery scheduled next week. Please keep him in your thoughts and prayers! 🩶

“Vagus Nerve Stimulation (VNS) Therapy is an FDA-approved, add-on treatment for drug-resistant epilepsy that uses an implanted device to send mild electrical pulses to the brain via the left vagus nerve, reducing seizure frequency and severity. It is commonly used for patients over age 4 (or 12 for certain models) when medication is ineffective and traditional surgery is not an option.”

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1200 Childrens Ave Ste 10000
Oklahoma City, OK
73104

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