09/16/2026
This Saturday, we are gathering to celebrate Alex’s life.
This last week has been harder than I can express, but today brought a moment of profound comfort: we collected our keepsakes from Michelle.
We will each be carrying a personal keepsake with us at all times. Alex will always be with us, and he will live on beautifully in his children.
As we prepare to honor him, I need to share a hard truth. I need you to educate yourselves about streptococcus, because it is far more dangerous than society expects.
We dismiss it as “just strep throat,” but that familiarity is a fatal flaw.
The danger of streptococcus is twofold: it can attack with devastating speed, or it can cause silent, lifelong damage long after the initial infection is gone.
If left unchecked or misdiagnosed, streptococcus can cause:
1. Streptococcal Toxic Shock Syndrome (STSS): A rapid, life-threatening cascade where bacterial toxins hijack the immune system, leading to shock and multi-organ failure in a matter of hours, not days.
2. Rheumatic Heart Disease (RHD): An autoimmune response that can develop weeks after a throat infection, causing permanent, lifelong damage to the heart valves.
3. Post-Streptococcal Glomerulonephritis (PSGN): Severe kidney inflammation that can lead to chronic renal issues or long-term hypertension.
4. PANDAS/PANS: In children, a sudden, severe autoimmune reaction to strep that triggers obsessive-compulsive behaviors, tics, and drastic neurological changes.
5. Reactive Arthritis & Chronic Joint Damage: Persistent, painful inflammation of the joints that can become a lifelong burden.
6. Invasive Tissue Destruction: Including necrotizing fasciitis, which, even if survived, often results in amputations, severe scarring, and chronic pain.
The medical system often defaults to a “wait and see” approach because early symptoms mimic common viruses. But with strep, waiting is exactly what the bacteria exploit.
Please, do not let the familiarity of a “strep” diagnosis blind you. Advocate fiercely for yourself and your children.
Ask the hard questions.
We are keeping Alex’s memory alive, and part of that is using this painful knowledge to protect others.