Love Finds Answers-NAKEISHA’S medical journey

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Love Finds Answers-NAKEISHA’S medical journey Medical journey • Chronic illness • Advocacy
Symptoms, surgeries, healing & hope
📍 Documenting the path to answers

09/14/2026

Good Monday morning, everyone! ☀️💛

A brand-new week is here, and that means a brand-new chance to find something good in the little moments.

Maybe today won’t be perfect. Maybe you’re carrying something heavy that nobody else can see. But you’re here—and that matters. ❤️

Take a deep breath. Take it one moment at a time. And remember: you don’t have to have the whole week figured out today.

Wishing you a Monday filled with hope, kindness, smiles, and a little bit of magic. ✨

Happy Monday! Let’s make it a good one. 💕

https://www.hopkinsmedicine.org/health/conditions-and-diseases/myasthenia-gravisUnderstanding my pyridistigmine medicati...
08/26/2026

https://www.hopkinsmedicine.org/health/conditions-and-diseases/myasthenia-gravis

Understanding my pyridistigmine medication for myasthenia Gravis condition.

Myasthenia gravis is a chronic, complex, autoimmune disorder in which antibodies destroy neuromuscular connections. This causes problems with communication between nerves and muscle, resulting in weakness of the skeletal muscles. Myasthenia gravis affects the voluntary muscles of the body, especiall...

08/11/2026
07/11/2026

REEL TEXT / VOICEOVER:

“I thought the hardest part was surviving…”

I was wrong.

The hardest part has been waking up every day in a body that is still fighting.

A body that has been through more than I ever imagined.

A MALS revision surgery that changed everything.
A battle that almost took me from the people I love.
A second chance at life that I will never stop being grateful for.

But the truth is…

Surviving doesn’t mean the battle is over.

Some days my victories look different.

A few hours without vomiting.
A little more strength.
A moment where the pain quiets down.
A day where I get to laugh with my children and forget, even for a moment, how much my body hurts.

Behind closed doors are the battles people don’t see…

The burning pain of bile.
The exhaustion of gastroparesis.
The fear that comes with every new symptom.
The appointments, scans, biopsies, and waiting for answers.

There are moments I’m scared of what the future holds.

Moments I wonder how much more my body can endure.

But then I look at the faces I fought so hard to stay for.

My angels.

My reason.

My reminder that every single moment is worth fighting for.

I may not have the same body I had before.

I may not know what tomorrow brings.

But I know this…

I am still here.

I am still choosing hope.

I am still choosing love.

I am still choosing to live.

💜

Love Finds Answers

Love Finds Answers – Part 2: The Battle No One Sees 💜Everyone celebrated when I survived.And believe me—I did too.But su...
07/11/2026

Love Finds Answers – Part 2: The Battle No One Sees 💜

Everyone celebrated when I survived.

And believe me—I did too.

But survival was only the beginning.

No one prepares you for what comes after you’ve looked death in the face. No one tells you that you can be overwhelmingly grateful to be alive while simultaneously grieving the life and the body you once knew.

Every morning, I wake up wondering what my body will bring today.

Will I be able to eat?

Will I keep anything down?

Will today be another day of vomiting bile until my stomach is empty and my body is shaking from exhaustion?

The bile…it’s relentless.

It’s bitter. It burns. It leaves my throat raw, my stomach cramping, and my entire body aching. There are moments when I’m vomiting with nothing left in my stomach except bile, and I wonder how something invisible to others can hurt so deeply.

Then there’s gastroparesis.

People hear the name, but they don’t see what it steals.

It steals comfort.

It steals energy.

It steals the simple freedom of trusting your own body.

Some days my stomach feels like it’s filled with bricks. Other days it twists and cramps until I can barely stand upright. I find myself praying for relief from something most people never have to think about.

As if that wasn’t enough, my days are filled with blood sugar crashes that leave me weak and confused, POTS episodes that make my heart race and the room spin, and overwhelming fatigue that reaches into my bones.

And just when I think I’ve made it through one battle…

Another begins.

Months after everything I endured with my MALS surgery, I’ve found myself facing breast masses, unexpected ni**le leakage, biopsies, more imaging, more appointments, and more follow-up visits. Every phone call, every scan, every procedure comes with the same quiet fear:

What are they going to find this time?

It’s emotionally exhausting to keep preparing yourself for answers you pray you’ll never hear.

Living this way changes you.

You stop planning too far ahead because you’ve learned that life can change with one phone call.

You learn to celebrate good test results because you know how precious they are.

You learn to smile through pain because your children are watching.

You learn that courage isn’t the absence of fear—it’s choosing to keep going while carrying it.

There are days my body hurts so deeply that I don’t know how I keep moving.

But then I hear my children laugh.

I feel their hugs.

I watch them play.

I listen to their little voices call, “Mom.”

And suddenly, every painful step becomes worth taking.

I don’t know what tomorrow holds.

I don’t know what my next appointment, my next scan, or my next surgery may bring.

There are moments when that uncertainty feels overwhelming.

But it has also taught me something beautiful.

It has taught me to treasure ordinary moments.

To soak in every hug a little longer.

To laugh a little louder.

To hold my babies a little tighter.

To appreciate every sunrise, every bedtime story, every messy kitchen, every “I love you,” because none of us are promised tomorrow.

Pain has changed my body.

But it has also changed my heart.

It has taught me gratitude in places I never expected to find it.

I am still hurting.

I am still healing.

I am still afraid sometimes.

But I am also still here.

And that is a gift I will never take for granted.

Thank you to every person who continues to pray for me, encourage me, and walk beside me through this journey. Your kindness reminds me that even on the hardest days, hope still exists.

If my story reaches even one person who feels alone in their own battle, then every difficult chapter has a purpose.

God has carried me this far.

And I trust He will carry me through whatever comes next.

💜 One day. One prayer. One miracle at a time.










07/11/2026

My babies give me reason!
Mama fighter!
Never give up!

Lovefindsanswers

07/11/2026

MALS Surgical Release Revision Update – I’m a Survivor. ❤️

There are moments in life that change you forever. This surgery was one of them.

I am a survivor.

What was supposed to be a complex MALS revision became a fight for my life. Because of the incredible skill, determination, and compassion of Dr. Benjamin Starnes and his surgical team, I am still here today. There are no words that can truly express my gratitude for the life they saved.

Recovery has been one of the hardest battles I’ve ever faced. The pain isn’t something I can fully put into words. Every breath, every movement, every attempt to stand or walk has come with intense pain as my body tries to heal from major surgery. There have been days when simply making it through the next hour felt like a victory.

Although the surgery is behind me, the journey isn’t over.

I continue to struggle with vomiting bile, unpredictable blood sugar crashes, and ongoing POTS episodes that leave me weak, dizzy, and exhausted. Healing isn’t a straight line. It’s filled with setbacks, uncertainty, and countless moments where I’ve had to find strength I didn’t know I had.

But I’m still here.

Every day I wake up is another opportunity to keep fighting. Every small step forward is proof that hope is stronger than fear.

To everyone who has prayed, checked in, encouraged me, or stood beside me through this journey—thank you. Your love has carried me through some of the darkest days of my life.

Please continue to keep me in your prayers. I still have a long road ahead, but I’m determined to keep moving forward, one day at a time.

To anyone else battling chronic illness or recovering from life-changing surgery: don’t give up. Your story isn’t over.

I survived. And I’m still fighting. 💜

❤️ Love Finds Answers: Healing Isn’t Always a Straight Line ❤️One of the most important things I’ve learned on this jour...
06/04/2026

❤️ Love Finds Answers: Healing Isn’t Always a Straight Line ❤️

One of the most important things I’ve learned on this journey is that healing is rarely a straight line.

Many people see surgery as the finish line. The reality is that surgery is often just one chapter in a much longer story.

Since my recent surgical revision, I have experienced some victories that I am deeply thankful for.

The Wins:
❤️ I have seen some improvement in my ability to eat and digest food.
❤️ There are moments when my body feels like it’s moving in the right direction.
❤️ Some symptoms have eased enough to give me glimpses of hope.
❤️ Every small step forward feels monumental after years of searching for answers, fighting to be heard, and wondering if I would ever find relief.

But I also want to be honest about the challenges.

The Reality:
💔 Severe pain episodes that can be intense and unpredictable.
💔 Pain that sometimes makes it difficult to take a deep breath.
💔 Hypoglycemia episodes that continue to be frightening and can happen without much warning.
💔 Dizziness and weakness that can suddenly stop me in my tracks.
💔 Episodes of rapid heart rate and feeling like my body is working overtime just to function.
💔 Ongoing fatigue that no amount of sleep seems to fix.
💔 GI dysmotility symptoms that continue to affect daily life.
💔 Swelling and discomfort that remind me recovery is still happening.
💔 Nausea and days when eating is still a challenge.
💔 The emotional toll of living with uncertainty and wondering what symptom may show up next.

The truth is that healing isn’t about becoming perfect overnight.

It’s about celebrating progress while acknowledging the struggle.

It’s about recognizing that some days are victories, some days are setbacks, and most days are a mixture of both.

For anyone walking through chronic illness, rare disease, medical trauma, or an ongoing search for answers, I want you to know this:

Don’t give up.

Keep asking questions.

Keep advocating for yourself.

Keep searching for answers.

Keep seeking healing.

Keep fighting for the life you deserve.

Keep believing that your symptoms matter and that your story matters.

And when you have the strength, reach back and help someone else who’s still struggling to find their way.

The chronic illness community has taught me that some of the strongest people in the world are fighting battles no one can see.

Today, I’m choosing gratitude for the progress.

I’m acknowledging the pain.

I’m honoring the setbacks.

And I’m holding onto hope.

Because healing isn’t measured by how quickly we recover.

It’s measured by our willingness to keep moving forward, one day, one appointment, one answer, and one victory at a time.

Keep fighting.
Keep trying.
Keep searching for answers.
Keep healing.
Keep lifting each other up.

With love,
Nakeisha ❤️

❤️

Address

Mayo Hospitals
Phoenix, AZ

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