Neuroendocrine Tumor Research Foundation

07/09/2026

"What happens after PRRT?" It's a common question for neuroendocrine cancer patients who've completed this treatment.

In our latest You Ask, NETRF Answers post, NETRF’s Chief Scientific Officer Anna Greene, PhD, breaks down the factors that shape the next steps after peptide receptor radionuclide therapy (PRRT), including tumor type, grade, and current research.

Read more 🔗 https://ow.ly/6wh150Zm5uh

07/08/2026

We hear again and again how informative and meaningful our annual Know Your NETs virtual conference is for patients and caregivers. We don't want you to miss out!

This year's online conference is quickly approaching on July 18 at 11 AM ET.

Register now ➡️ https://ow.ly/ohxs50ZlOeV

Featuring:

✅ *New this year* Patient-clinician conversations
✅The latest advances in neuroendocrine cancer research & treatment
✅ Clinical trials & monitoring updates
✅ Tools for symptom management & living well
✅ Real-world cases discussed by leading neuroendocrine cancer specialists
✅ Insights from multidisciplinary care teams

Thanks to our co-sponsor UChicago Medicine

and additional sponsors Novartis | Exelixis | Lantheus | RayzeBio | ITM | Curium | Boehringer Ingelheim | Crinetics Pharmaceuticals | AbbVie

07/01/2026

Know Your NETs is back, and it's designed for you.

Join us online on July 18 for our largest annual patient and caregiver conference. You'll hear the latest in research and treatment, and gain tools and strategies for managing your health and thriving.

What to expect:

✅ *New this year* Patient-clinician conversations
✅The latest advances in neuroendocrine cancer research & treatment
✅ Clinical trials & monitoring updates
✅ Tools for symptom management & living well
✅ Real-world cases discussed by leading neuroendocrine cancer specialists
✅ Insights from multidisciplinary care teams

Join us online for learning, new perspectives, and community.

Register here ➡️ https://ow.ly/K5QF50ZjqQ0

2026 Know Your NETs Virtual Patient and Caregiver Conference Saturday July 18, 2026 | 11 AM – 4 PM ET Join us online on July 18 for our largest annual patient and caregiver conference. You’ll hear about the latest science and treatments from leading experts in the field, gain inspiration and ins...

06/30/2026

In the latest episode of the NETWise podcast, “Do Zebras Change Their Stripes?,” we delve into the constantly evolving diagnoses and tumor progression that comes with having neuroendocrine cancer.

We also unpack why the zebra became a symbol for this disease, what tumor heterogeneity means for patients, and how doctors use tools like DOTATATE PET and FDG PET scans to guide treatment decisions as things change.

Listen here, or wherever you get your podcasts ➡️ https://ow.ly/WxPT50ZiRoK

06/29/2026

We did it. 💙

Thanks to this incredible community, we've achieved our June match goal. Every eligible gift, up to $100,000, was matched dollar for dollar by NETRF Board member Steve Kaufer.

Thank you.

Now the real work continues.

Breakthroughs are not unlocked by chance. They happen when bold ideas meet focused investment, and when a community refuses to stop showing up.

If you haven’t made a gift yet this June, there is still time to join this remarkable effort. Every gift will help accelerate the research that brings us closer to earlier diagnosis, better treatments, and, one day, cures.

Join us in unlocking what's possible ➡️https://ow.ly/y58t50ZiqHc

06/27/2026

What an incredible day at NET Impact in Columbus, Ohio!

Yesterday's Patient and Caregiver Education Program brought together an inspiring community of neuroendocrine cancer patients, caregivers, and specialists for a meaningful program including

✅ The latest updates on research, therapies, and clinical trials
✅ Practical tools for well-being and thrivership
✅ Powerful opportunities to share, connect, and engage

Thank you to everyone who joined us. Your voices, stories and spirit make this community extraordinary. The conversations started this week don't end here.

If you missed NET Impact, we're pleased to invite you to Know Your NETs on July 18. This fully-virtual patient and caregiver education program is open to all. See the agenda and register here ➡️ https://ow.ly/xncA50ZhVNI

NETs

06/26/2026

We're so happy to be in Columbus, Ohio for NET Impact today. If you're in the Columbus area, please join us to learn from leading neuroendocrine cancer specialists and connect with fellow patients and caregivers. Program info ➡️ https://ow.ly/lFLM50ZhATi

Thank you to our sponsors for supporting this program: Boehringer Ingelheim, Camurus, Crinetics, Curium, Exelixis, ITM, Lantheus, Novartis, and catering sponsor RayzeBio.

06/24/2026

Every year, no matter where they are in the world, Wayne Firsty and his children Shay and Alana complete a Moonlight Walk in memory of Julie Seltzer-Firsty, whom they lost to lung neuroendocrine cancer in 2014.

For years, they've asked their community to support the walk as a fundraiser for NETRF, and every year their community has shown up. Together, their community reached an incredible milestone: funding a NETRF Mentored Research Award.

Recently, Wayne and Shay traveled to the University of Colorado Anschutz Medical Campus to meet the scientists their fundraising directly supports. They saw first-hand the work of Dr. Hui Yu and her team, who are studying DIPNECH, a rare lung condition that can progress into the same disease that took Julie.

"What was once a goal," Wayne said, "is now a REALITY."

Thanks to the incredible generosity of supporters like you, we've already reached our $100,000 June Match goal. We're deeply grateful to everyone who helped unlock those matching funds.

But the work isn’t over. Now is the time to keep this momentum going.

Make your gift today to unlock the next breakthroughs. ➡️ https://ow.ly/f8gJ50ZgxWE

06/18/2026

The response to NETRF's latest grant cycle is extraordinary: applications from researchers around the world increased by 35%.

That’s more scientists pursuing new ideas, more promising discoveries in the pipeline and more potential breakthroughs for neuroendocrine cancer patients.

The momentum is here. But research that leads to breakthroughs requires funding. We need your support to meet the moment.

Through June 30, every gift up to $100,000 is matched by Board member Steve Kaufer.*

Help us unlock breakthroughs. ➡️ https://ow.ly/8ZyV50Zeqkp

*Learn more about the June Match at https://ow.ly/RUhC50Zeqkr

06/16/2026

When Nancy Lewis was diagnosed with neuroendocrine cancer, she did what any investigative reporter would: she started digging for answers. NETRF gave her the knowledge and connections to take charge of her care. Today, she's a passionate advocate for neuroendocrine cancer research and patients everywhere.

This June, you can join her. Every gift up to $100,000 is matched through June 30, thanks to NETRF Board member Steve Kaufer.* Make your gift now. ➡️ https://ow.ly/nW4K50ZcrUb

*Learn more about the June Match at https://ow.ly/XFI950ZcrUe