Neuroendocrine Tumor Research Foundation

06/07/2026

Today is — a day to honor every person living with neuroendocrine cancer. Your stories and your support for research and for each other make this community what it is. To neuroendocrine cancer survivors and your loved ones: we see you and we celebrate you. 💙

06/06/2026

Why is NETRF's mission more important than ever?

Scott Oakes, MD, of the University of Chicago says it best: NETRF doesn't just fund research. It builds the community that makes breakthroughs possible. Researchers, clinicians, patients, and supporters are all working toward one purpose: to create a better future for those living with neuroendocrine cancer.

Your support keeps that community going. This June, every gift will be matched dollar for dollar, up to $100,000*, thanks to the generosity of NETRF Board Member Steve Kaufer.

DOUBLE YOUR IMPACT NOW ➡️ https://ow.ly/nSnJ50Z8cbA

Be part of the community that is unlocking research breakthroughs.

*Learn more about the June Match https://ow.ly/ey4v50Z8cby

06/05/2026

We're very proud to share that the President of our Board of Directors, Josh Mailman, was recently recognized as Honorary Fellow of the Society of Nuclear Medicine and Molecular Imaging (SNMMI). He is the first non-physician to receive this honor.

Josh is a leading voice in neuroendocrine cancer patient advocacy. We're grateful that he has been on our NETRF Board for many years, in addition to his work with SNMMI.

Congratulations Josh, and thank you for all you do for the neuroendocrine cancer community!

Pictured, left to right: Heather Jacine, Incoming SNMMI President, Karin Braugh, SNMMI Outreach Staff, Jean-Luc Urban, Outgoing SNMMI President, Josh Mailman, NETRF Board President, Linda Budzinski, Director SNMMI Outreach, Helen Nadel, Past President.

06/03/2026

Tijana Jovanovic-Talisman, PhD had spent years studying neuroendocrine cancer when the disease hit home: her mother was diagnosed with small intestinal neuroendocrine tumors. Now as a caregiver, she turned to NETRF for trusted information and support.

"That experience gave me a real appreciation for what NETRF does for patients and families."

Today, Tijana is a NETRF grantee, working to develop a simple blood test that could detect neuroendocrine cancer earlier.

Inspired by her family's experience, Tijana is turning personal experience into scientific progress.

This June, you can help advance research like Tijana's. Thanks to the generosity of NETRF Board member Steve Kaufer, every gift will be matched dollar for dollar, up to $100,000.*

Make your gift early to double your impact ➡️ https://ow.ly/Loi850Z7j8M

*Learn more about the June Match at https://ow.ly/foRF50Z7j8O

06/02/2026

Every breakthrough in neuroendocrine cancer research starts with a gift like yours, and this June, yours goes twice as far.

NETRF Board member Steve Kaufer is matching every dollar donated to NETRF, up to $100,000. That means you're doubling your impact and bringing patients closer to earlier detection, new therapies, and personalized medicine.

Don't miss this chance to make your gift now to unlock breakthroughs.

Make a gift ➡️ https://ow.ly/9nli50Z6qFA

Learn more and see full campaign details at netrf.org/breakthroughs

05/29/2026

🗝️In just a few days, you’ll have the chance to double your impact and create a better future for neuroendocrine cancer patients and their loved ones. This is an opportunity you won’t want to miss, so check your inbox or stop back here on June 1 to learn more!

Stay tuned. 👀

05/28/2026

Registration is open for Know Your NETs 2026!

Informed by your feedback, this conference is designed for patients and caregivers navigating every stage of the neuroendocrine cancer journey — from diagnosis and treatment decisions to long-term management and thrivership.

What to expect:

✅ The latest advances in neuroendocrine cancer research & treatment
✅ Clinical trials & monitoring updates
✅ Tools for symptom management & living well
✅ Real-world cases discussed by leading neuroendocrine cancer specialists
✅ Insights from multidisciplinary care teams

Join us online for learning, new perspectives, and community.

Register now ➡️ https://ow.ly/ypLp50Z4YKb

05/21/2026

Watch the latest episode of our Thrivership Series, now online.

Episode 37: Understanding Advanced Directives

This episode unpacks advanced directives and the importance of planning ahead with clarity, compassion, and intention. Advanced directives are one of the greatest gifts a person can give to themselves and the people they love. They can help to ensure that your wishes, dignity, and definition of quality of life remain at the center of your care. Join us as we explore practical steps, meaningful conversations, and ways to approach this topic as part of living fully and intentionally

Watch now ➡️ https://ow.lyzYZQ50Z2RYa

05/11/2026

Are you located in the Columbus, Ohio area?

Don't miss a free, in-person program to learn from leading experts in neuroendocrine cancer and make meaningful connections with fellow patients and caregivers.

Agenda topics include:

- What's new in clinical trials?
- What's new in treatments?
- Managing symptoms that impact quality of life
- Q&A with expert panel

REGISTRATION TODAY. Take a moment to register now as space is limited.

https://ow.ly/tvXs50YXPUl

05/07/2026

A new, NETRF-backed study by Carl Gay, MD, PhD, of UT MD Anderson Cancer Center looks at how chemotherapy may lead to treatment resistance and relapse in patients with small cell lung cancer.

https://ow.ly/3XTB50YWk4R

Researchers from The University of Texas MD Anderson Cancer Center have discovered that some cancer cells express the YAP1 protein only after treatment with chemotherapy, allowing them to survive by becoming more invasive and leading to treatment resistance with eventual relapse in patients with sma...