The Invisibly Aware OT

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The Invisibly Aware OT Supporting those living with/parenting invisible illnesses/hidden disabilities

Pain can be part of many different conditions and it doesn’t always look the way we expect. It can be visible or invisib...
09/07/2026

Pain can be part of many different conditions and it doesn’t always look the way we expect. It can be visible or invisible. Constant or unpredictable. And even people with the same diagnosis can experience pain very differently.

That’s why awareness matters.

Awareness helps people feel seen and believed. It builds understanding and advocacy. It brings attention to the need for continued research, and reminds us that we can’t always tell what someone is managing simply by looking at them.

This September, let’s recognize the many different experiences of pain. Let’s listen to, believe, and support the people living with pain.

The school day may be over, but our kids’ brains and bodies have been working hard all day. 💙I see this so clearly with ...
08/26/2026

The school day may be over, but our kids’ brains and bodies have been working hard all day. 💙

I see this so clearly with my own two kids. My daughter may want to swing outside with friends or relax quietly in her swing. My son may want to get his homework done right away or need some physical movement first.

And even for them, it can look different from one day to the next.

The goal isn’t creating the perfect after school routine. It’s helping our kids notice how their brains and bodies feel and giving them options to choose what they need to reset before moving on with their evening. 😌

☀️Happy first day of school! 🎒After two rounds of Middle School Readiness Camp this summer, it’s exciting to see our cam...
08/25/2026

☀️Happy first day of school! 🎒

After two rounds of Middle School Readiness Camp this summer, it’s exciting to see our campers heading into the real thing! 🚌🚸

Throughout camp, they practiced so much more than opening lockers. Hands-on challenges, games, teamwork, sensory exploration, and plenty of time with Milkshake 🐰 gave campers opportunities to practice executive function skills in real time, build independence, explore the brain-body connection, and discover strategies for self-regulation. Along the way, they built confidence for the everyday demands of middle school.

And now it’s time to put those skills into action! 💚

Wishing all of our campers, and every student making the leap to middle school, a great transition and start to the school year. You’ve got this! ✨

For my daughter, getting through a long school day takes energy, especially when the day doesn’t end with the last bell....
08/11/2026

For my daughter, getting through a long school day takes energy, especially when the day doesn’t end with the last bell. 🏫🔔

Living with chronic conditions, she’s learned that starting her day with a nutritious breakfast and staying hydrated is important, but so is continuing to fuel her body throughout the day. It helps her have the energy and focus she needs for school, while still having something left for theater rehearsals, performances, and the things she loves, like taking the stage as Helena in A Midsummer Night’s Dream this summer. 🎭

And while her chronic conditions make her more aware of it, all growing teen brains and bodies need consistent fuel and hydration too.

So, from one teen to another: don’t start your school day running on empty. Fuel your brain and body for everything your day holds. 💙

Back to school prep has looked a little different in our house over the years. 💙When your child has needs that aren’t al...
08/11/2026

Back to school prep has looked a little different in our house over the years. 💙

When your child has needs that aren’t always visible, getting ready for school can mean more than buying supplies. It can mean updating forms, reviewing accommodations, communicating with staff, and making sure supports are in place before the year begins.

We learned how important this was when my daughter started middle school. Invisible and complex needs can be difficult to fully understand, and that first year brought challenges we hadn’t anticipated. It also meant more advocating, meetings, and documentation along the way.

That experience taught me to be proactive from the start. It won’t prevent every challenge, but clear documentation and communication can give everyone a better foundation.

Because back to school prep isn’t just about what goes in the backpack. It’s about making sure our kids have what they need to fully participate and succeed at school.

When I asked my daughter what advice she would give other teens getting ready for the new school year, her first answer ...
08/09/2026

When I asked my daughter what advice she would give other teens getting ready for the new school year, her first answer was easy: get more sleep! 😴

Living with chronic illnesses, she’s learned how much sleep can affect the way she feels. When she doesn’t get enough, fatigue and other symptoms can be harder to manage, so getting her sleep routine back on track is one of her priorities before school starts.

But her advice isn’t just for teens with chronic conditions. Every teen has a developing brain and body that benefits from being well rested.

For my daughter, winding down means caring for and spending time with her bunny, Milkshake 🐰 and relaxing with an audiobook, two of her favorite ways to slow down and settle in for the night.

So, from one teen to another: don’t wait until the night before school. Start working toward your school year sleep routine now, a little at a time. 💙

I stay strong for…Us! 💙And for every person living with an invisible chronic disease who quietly shows up each day, carr...
07/10/2026

I stay strong for…
Us! 💙

And for every person living with an invisible chronic disease who quietly shows up each day, carrying burdens the world often cannot see.

This photo captures so much of what life with chronic disease feels like. The rain represents the hard days: the pain, fatigue, uncertainty, setbacks, and invisible battles. The umbrellas are the tools, support, and resilience that help us keep moving forward. And the smiles? They remind us that even on rainy days, joy still exists. We learn to walk through the rain together, while appreciating every ray of sunshine when it appears.

To everyone carrying an invisible battle: we see you. Keep holding on to hope, and don’t forget to celebrate the sunny moments whenever they come. 💙🌈☀️

💚July is Juvenile Arthritis Awareness Month.💚This awareness month is especially meaningful to our family.Many people don...
07/06/2026

💚July is Juvenile Arthritis Awareness Month.💚

This awareness month is especially meaningful to our family.

Many people don’t realize that children can have arthritis too, and we’re incredibly grateful for the juvenile arthritis community that welcomed and supported us during our daughter’s journey. The encouragement, education, and connections we found made an overwhelming time feel a little less lonely.

We’re also deeply thankful for our rheumatologist who looked beyond an initial diagnosis when the pieces didn’t quite fit and standard treatments weren’t bringing the expected results. His willingness to keep asking questions ultimately led us to our daughter’s rare diagnosis of CACP syndrome. 🦓

Our journey reminded us that while many children have juvenile arthritis, some have rare joint conditions like CACP syndrome that closely resemble juvenile arthritis, but require a different understanding.

This July, we’re proud to stand alongside the juvenile arthritis community. Your support was an important part of our journey, and we remain committed to raising awareness for all children living with arthritis and related joint conditions. By listening, learning, and working together, we can help more families find answers, build support, and advance research for both common and rare conditions.

Every child deserves to be seen, heard, and understood. 💚🦓

Post Vacation Reset: Morning Migraine Recovery ☀️🧠Vacation was wonderful…and my “hot” 🔥 or overactive migraine brain def...
06/25/2026

Post Vacation Reset: Morning Migraine Recovery ☀️🧠

Vacation was wonderful…and my “hot” 🔥 or overactive migraine brain definitely noticed and reacted. 😅

Travel, heat, bright sun, changes in routines, excitement, and even too much fun can leave my nervous system feeling overwhelmed or more sensitive to light, sound, movement, and stress.

Instead of pushing through, today is about helping my brain and body recover.

Here are a few things that help me reset my nervous system after summer travel. These are personal strategies that work for me, but everyone’s migraine journey is different. What helps one person may not help another, so finding what works for your own body is important.

✨ What does a recovery day look like for you? What habits or routines help your nervous system recover? I’d love to hear what’s worked for you in the comments.

June is Migraine Awareness Month. 💜Migraine is far more than “just a headache.” It can impact vision, balance, cognition...
06/08/2026

June is Migraine Awareness Month. 💜

Migraine is far more than “just a headache.” It can impact vision, balance, cognition, communication, energy, and the ability to participate in everyday activities. Yet because migraine is often invisible, the challenges it creates can go unseen and misunderstood.

Invisible does not mean insignificant. The challenges may not be visible, but the impact is very real. To those living with migraines: your experience is valid, your resilience is remarkable, and you are not alone.

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21524 Fox Field Cir
San Antonio, TX
20876

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