Empower My Congenital Heart

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Empower My Congenital Heart

All Your Medical Info, Connections, and Resources —in Your Pocket— Built by CHD Patients and Researchers.

10/01/2026

Applications are OPEN for the next EmpowerMyCH Ambassador cohort!

Do you have lived experience with congenital heart disease and want to help build a stronger, more connected CHD community? The EmpowerMyCH Ambassador Program is an opportunity to share your voice, connect with others, and help shape the future of CHD care and community.

Applications are open now through November 1st!

🔗 Ready to apply? The link is in our bio!
💬 Have questions? Send us a DM—we’d love to hear from you!

09/29/2026

Happy World Heart Day!

Today, we’re celebrating more than just the heart. We’re celebrating the people, stories, and journeys behind every heart in the congenital heart disease community.

Living with CHD can look different for everyone. Some of us have had surgeries, procedures, lifelong medications, unexpected setbacks, or years of navigating healthcare. Others are still learning what it means to live with a heart that was different from the beginning.

Every journey matters. Every story matters. Every heart is worth celebrating.

Today, we invite you to celebrate your heart and the CHD community around you. Share a moment, milestone, lesson, or person who has been part of your journey. 🫶

Happy World Heart Day from EmpowerMyCH!

09/28/2026

Calling all ACHD patients!

Are you passionate about helping make congenital heart disease care better for the people who come after you?

EmpowerMyCH is recruiting our next group of Ambassadors! ❤️

Our Ambassadors bring their lived experiences, perspectives, and voices to help shape resources and conversations for adults living with CHD.

✨ Applications open October 1!

If you’ve ever thought, “I wish someone had told me this sooner,” or you want to help make the CHD community stronger and more connected, this could be an opportunity for you.

Be on the lookout for more information and application instructions coming soon!

Know someone who might be a great fit? Share this post with them!

09/24/2026

Your heart care doesn’t have to end when your appointment does.

For many people living with congenital heart disease, there can be long stretches of time between ACHD appointments. During those moments, having people who understand what it’s like to live with CHD can make a meaningful difference.

In her latest EmpowerMyCH story, Shelley Truskowski shares how she created her own “CHD Heart Team” — a network of connection and support she can lean on between appointments.

Her Heart Team isn’t limited to the people she sees in person. It includes family and friends, online communities, webinars, blogs, newsletters, events, and organizations that help her feel understood and less alone.

Because social connection is part of caring for your heart, too. 💙

Read Shelley’s story: The Heart Team I Found Between Appointments

Read the full story on the EmpowerMyCH blog.

09/22/2026

Your next cardiac appointment isn’t the only time your health matters.

You don’t have to wait until your next scheduled appointment to bring something up with your care team. If you notice a change or have a concern, communicate with your doctor. Your care team can help determine whether something needs to be addressed now, monitored, or simply discussed at your next visit.

Hear from Ambassador Ana Cecilia, on how your appointments are important but so is everything happening in between them.

09/11/2026

Quality healthcare isn’t just about having the right answers. It’s about creating space for patients to ask questions, share concerns, and be part of the conversation.

For Chandra, having a provider take the time to listen to her concerns, answer her questions, and explain the “why” behind her treatment changed the way she felt about her care.

Read Chandra’s story, “The Power of Being Heard,” on the EmpowerMyCH blog.

09/09/2026

ACHD care is a partnership. ❤️

Your appointments aren’t just about what your care team recommends—they’re also about your questions, your priorities, and what matters most to you.

Here from our ambassador Misty on her views and the importance on shared decision making.

08/31/2026

A patient portal helps bridge the gap. ❤️

Between appointments. Between you and your care team. Between questions you have and the information you need.

For people living with CHD, having access to your health information can make it easier to stay informed, organized, and involved in your care.

Click the link in our bio to hear from EmpowerMyCH Ambassador Sheyenne Miller about how she uses her patient portal to navigate her care.

08/28/2026

Hear from our ambassador, Janee, as she shares what helped her build confidence when speaking with her doctors during cardiology appointments!

08/26/2026

Navigating a cardiology appointment can involve much more than choosing a date and time.

From finding the right specialist to understanding insurance coverage, maintaining continuity of care, and affording the tests you need, there can be many steps along the way.

In our latest blog post, Heidi shares how insurance challenges affected her ability to access cardiology care and navigate appointments.

Because sometimes, getting to the appointment is only part of the journey. 💙

Click the link in our bio to read the full story.

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San Francisco, CA

Website

http://empowermych.org/

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