Empower My Congenital Heart

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Empower My Congenital Heart

All Your Medical Info, Connections, and Resources —in Your Pocket— Built by CHD Patients and Researchers.

08/11/2026

Knowing your medical history isn’t just important for your doctor’s appointments—it can also benefit you in many other areas of your life.

"Ultimately, understanding my medical history is one of the most valuable tools I have as an ACHD patient. It improves communication with healthcare providers, enhances safety during emergencies, and empowers me to make informed decisions about my health. By learning, maintaining, and sharing my medical history, I am investing in my future health and well-being." - Chandra Morris.

Read Chandra’s full blog as she shares the different ways knowing her medical history has helped and empowered her throughout her life.

08/07/2026

"When people think about living with congenital heart disease, they often focus on the patient: the surgeries, the medications, the doctor appointments, and the tests. What is sometimes overlooked is the team that stands beside us through it all. For me, that team has always included my parents and, later, my husband."

Read Misty's blog as she shares how congenital heart disease is a lifelong journey and that no one should travel it alone. Through her support system of her mom, dad and now husband, Misty has felt supported every step in her journey!

08/06/2026

Ambassador Sheyenne opens up about all the thoughts, feelings, and emotions that come before an appointment. Her honesty and vulnerability gives us a window into a CHD patients world and how appointments are far greater than just a single day.

07/31/2026

For many people living with congenital heart disease, one CHD cardiologist isn't the only chapter of the story.

Over the years, life changes. We move, transition from pediatric to adult care, switch insurance, or seek a second opinion. Each new cardiologist shapes our healthcare journey in different ways.

But along the way, we learn what matters most: finding a provider who listens, understands the complexity of our individual CHD, and earns our trust.

💙 Read our latest blog by Heidi Hill titled, "The Cardiologist I Trust and The Insurance That Won't Cover Him."

Have you had more than one CHD cardiologist? What's one quality that has helped you trust your care team?

07/29/2026

CHD appointments can bring a mix of emotions. For ambassador Shelley, one practice has helped her approach each appointment with greater calm and confidence: mindfulness.

In her latest blog, Shelley shares how mindfulness has become a portable coping strategy that helps her stay grounded before, during, and after CHD appointments. Rather than trying to eliminate anxiety, she explains how being present allows her to better navigate difficult moments and advocate for herself.

If cardiology appointments leave you feeling overwhelmed, you're not alone. Sometimes the smallest tools can make the biggest difference.

Click the link in our bio and select "Stories From Our Ambassadors" to read Shelley's story and discover how mindfulness may help you show up for your own CHD journey.

What helps you feel calm before a cardiology appointment? Share your go-to strategy in the comments. We'd love to learn from one another.

07/24/2026

Months and days leading up to a cardiology appointment can bring about varying emotions. Hear from our ambassador, Janee, as she shares how two emotions can co-exist at the same time, and that is perfectly okay!

07/22/2026

Preparing for a cardiology appointment looks different for every ACHD patient. 💙 But one thing many patients have in common is that taking a few steps to prepare helps them walk into their appointment feeling more confident.

Over the next few weeks, our ambassadors will share what helps them prepare for cardiology appointments, the emotions they experience leading up to each visit, and the role their support systems have played throughout their lifelong ACHD care.

07/15/2026

Throughout this month, our ambassadors have shared their personal journeys to finding the right ACHD care. While each story was unique, one message came through loud and clear: finding an ACHD specialist has made all the difference in their heart care.

Not sure where to start? The Adult Congenital Heart Association (ACHA) makes it easy. Their clinic directory lets you search by your city and state to find ACHD centers and specialists near you.

Your heart deserves expert care. Visit and use their clinic directory to find an ACHD specialist today.

07/10/2026

Transitioning from pediatric to adult congenital heart disease (CHD) care can bring a mix of emotions—excitement, uncertainty, and a lot of questions. 💙

One of the biggest reminders from Sheyenne's story? You don't have to have everything figured out on day one. Building trust with a new care team, learning to advocate for yourself, and taking ownership of your health is a journey, not a single moment.

Click the link in our bio and select "Stories From Our Ambassadors" to read Sheyenne's full blog.

07/06/2026

Shelley had been under a general cardiologist's care her whole life and didn't know the difference between an ACHD specialist and a regular cardiologist. But when she started seeing an ACHD specialist, she encountered many surprises along the way. Each surprise led her to feel more confident in the care she was receiving.

Read her full story by clicking the link in our bio and select "Stories from Our Ambassadors."

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